Bharathi Shiva, 44 suffers from a rare condition called Interstitial Cystitis (IC) or a Painful Bladder Syndrome (PBS) and has lived without knowing about it for two decades. But joining an IC support group has brought her immense relief in terms of…
Iftikhar Zia, together with the rest of the family, has been Zoyeb’s main support system. Zoyeb suffers from a rare neurological condition called Ataxia. Iftikhar on the journey and the accomodations required in schools, colleges to support…
It is important for caregivers to seek help and advice of mental health professionals to ease their journey of caregiving and keep the relationship strong, says Abhimanyu Argal who looks after his wife with Borderline Personality Disorder.
Could you…
Rohit*, 52 from Gurgaon has been living with Bipolar Disorder for close to three decades now, and has realised that a disciplined lifestyle and regular exercise goes a long way in managing the condition.
What were the early symptoms and when?
The…
Join us tomorrow Friday 30th August 2019 for an insightful session where we discuss the role of self advocacy and self determination among persons with disabilities. How did they push the barriers to become independent and create possibilities…
Meet Pranav Lal, a self-taught programmer and an avid photographer with congenital blindness, who uses the vOICe, a computer software that works on the system of a vision to sound map, to commune with nature and sharing that joy with the rest of the…
In our conversation with Anupama Bakhshy, mother of Pranav Bakhshy, a budding model and a young man on the autism spectrum, we gleaned a few insightful learnings based on her experience.
Key take aways for parents of children with special needs,…
Zoyeb Zia, now an assistant professor of Zoology, has a rare condition called Ataxia. Zoyeb talks here about how he coped with the condition after he was diagnosed with Ataxia at the age of 16.
Ataxia is a neurological disorder, which means ‘…
Looking at the severe floods affecting Kerala this year, Anita Pradeep reminisces how she and the family, along with her 25 year old son, Sachu, got marooned in the floods last year and how they managed to keep Sachu calm and brave in the face of…