Auto Immune conditions

शुष्क त्वचा से कई लोग प्रभावित होते हैं पर शोग्रेन्स सिंड्रोम वाले लोगों में शुष्क त्वचा एक विशेष  चुनौती है। नीचे देखें शोग्रेन्स इंडिया द्व्रारा प्रकाशित एक पर्चा जिसमें शुष्क त्वचा से बचाव और उसके उपचार के लिए कुछ टिप्स हैं। शोग्रेन्स सिंड्रोम  से उत्पन्न शुष्क त्वचा की विशेष देखभाल जरूरी है। खुजली, लालिमा, फटना या गलना – यह सब शुष्क त्वचा के लक्षण हैं। शुष्क त्वचा का प्रमुख कारण है शोग्रेंस द्वारा शरीर में प्रतिरोधक क्षमता की कमी और इससे नमी पैदा करने वाली ग्रंथियों का निष्क्रिय…

Ashwini Nalhe, 33 from Nagpur  has been battling Scleroderma and a few other auto immune conditions for over 10 years now. These are rare conditions which people don’t know about, hence don’t understand. But this has torn Ashwini’s life apart in more senses than one,  and yet she has learnt to pick up the pieces and move on. Please tell us a bit about yourself and your condition. I am an engineer and also a lawyer by profession. I have been suffering from a set of autoimmune,…

Aakansha Khadiya is a fun loving foodie who loves trying out different cuisines, loves dancing and travelling and yet has to grapple with a condition which is not understood, is difficult to diagnose but affects the body in various ways. Please tell us a bit about your condition  I am suffering from a number of autoimmune diseases namely Scleroderma, Raynaud’s Phenomenon, Sjogren’s Syndrome since the past 14 years. When were you diagnosed? I was diagnosed with Scleroderma at 17 just after…

42 साल की नीतू स्क्लेरोडर्मा होने से पहले एक सॉफ्टवेयर कंसलटेंट थीं, पर स्क्लेरोडर्मा ने उनके जीवन को और उनकी पहचान को बदल दिया। इस लेख में वे स्क्लेरोडर्मा होने के अनुभव और उस की चुनौतियों के बारे में बात करती हैं और साझा करती हैं कि कौन से जीवन शैली के बदलाव उनके लिए कारगर रहे हैं। वे अब स्क्लेरोडर्मा इंडिया की सह-संस्थापक हैं।  यह 2019 में किए गए एक इंटरव्यू का अनुवाद है | कृपया हमें अपनी स्थिति के बारे में कुछ बताएं, आपको निदान कब मिला और आपके शुरुआती लक्षण क्या थे? जनवरी 2006 में…

Rashmi Bhasin,48 suffers from a rare autoimmune condition called Scleroderma, as well as a host of other issues. It hasn’t been easy for her, but she doesn’t like ‘giving up’, which keeps her going through difficult times. Who is Rashmi, the person Rashmi as a person is very outgoing, loves travelling, meeting people, loves baking and cooking, is a movie buff and loves online shopping. Ready to do anything for anyone. Loves children. Loves animals. Please tell us a bit about your condition…

On World Lupus Day, we ask Lupus patient advocates about their experience in Lupus management and what they think of the theme this year which focusses on "Let's make Lupus visible"   Vachasamrita 1.  What has been the last year like in terms of challenges in handling Lupus? I have been living with 8 years of Lupus, but since mine is a case of juvenile Lupus, it’s been aggressive with rare reactions and drug intolerances. Last year has been more about about handling the…

Annie Verghese, 53 has been fighting Sjogren’s Syndrome for 10 years now, along with a host of other issues. She talks about her difficult health journey, being a patient and a caregiver and the effect of her health on her life. EARLY HISTORY I was diagnosed with Sjogren's Syndrome in 2012, when I was around 43 years old. Around the same time I developed diabetes and also had high BP problems which led to a mini heart problem. After undergoing angiography, I was cleared with 'no problems'. As a…

Devika Phukan, currently a professor in Guwahati, not only battled Sjogren’s but also the trauma caused due to lack of understanding of her condition by medical practitioners (in far flung areas) and the social taboos and ostracization by loved ones. This article has been contributed by Sjogren’s India to highlight the need for early diagnosis and awareness among the medical community. “More than the physical harm from the disease, it was the emotional damage that was debilitating … the…

Ramesh B. Choudhari, 64 from Nagpur was not only afflicted with Ankylosing Spondylitis from a young age, but was diagnosed very late which led to fusion of his joints and consequent surgeries. But that did not stop him from working, and leading a normal life to the best of his abilities. Please tell us a bit about your condition I have been suffering from Ankylosing Spondylitis (AS) since 1972 ( my age was 14 yrs then) , but I was only correctly diagnosed in as late as 1997. I have had multiple…

Prachee Bhosle, 42, who was diagnosed with ankylosing spondylitis and fibromyalgia, two painful rheumatic disorders, shelved her career plans and chose to become a patient leader to raise awareness and advocate for better care and support. She is currently President of Ankylosing Spondylitis Welfare Society.  Please tell us a little bit about yourself, your background? I am a parent to 2 kids, a 14-year-old girl and a 10-year-old boy. Both my kids are homeschooled by me since 2017. After…