Care For Rare Disease Circle

Deepthi Nair, who was diagnosed with Myasthenia Gravis (MG), a rare, neuromuscular autoimmune condition that leads to varying degrees of muscle weakness, finds the ‘invisible symptoms’ of the disease causes misunderstanding among people and pain and frustration to the patient. December 3 is celebrated as International Day for Persons with Disabilities. Last year, somewhere during this time, I had been to the Disabilities Commission to attend to a legal matter. I remember having witnessed a…

Nishka Hosangady’s parents have been running from pillar to post to identify and treat their daughter’s crippling cognitive and physical disability. Finally, after visiting a legion of doctors, therapists and healers, she was diagnosed with Benign Hereditary Chorea, a rare autosomal disorder. Read about the Hosangady’s agonizing and persistent battle to save their daughter. When Nishka Hosangady started school at 3 years, she seemed perfectly normal. But, as she went into the…

What are the risk factors for developing epilepsy? Epilepsy is the 4th most common neurological disorder affecting 1% of population. 1 in 26 people will develop epilepsy during their lifetime. It can begin at any age. Men are most commonly affected when compared with women. Risk factors include Premature babies Babies who have seizures in the first month of life Abnormal blood vessels in brain Brain tumors Cerebral palsy Family history of epilepsy or fever related (febrile) seizures. Alzheimer…