A rare disease is any disease that affects a small percentage of the population. Most rare diseases are genetic and are present throughout the person's entire life, even if symptoms do not immediately appear. Many rare diseases appear early in life. This community is to allow persons with rare disease to get access to lived experiences and other resources and to connect with each other
Nishka Hosangady’s parents have been running from pillar to post to identify and treat their daughter’s crippling cognitive and physical disability. Finally, after visiting a legion of doctors, therapists and healers, she was diagnosed with Benign Hereditary Chorea, a rare autosomal disorder. Read about the Hosangady’s agonizing and persistent battle to save their daughter. When Nishka Hosangady started school at 3 years, she seemed perfectly normal. But, as she went into the…
What are the risk factors for developing epilepsy? Epilepsy is the 4th most common neurological disorder affecting 1% of population. 1 in 26 people will develop epilepsy during their lifetime. It can begin at any age. Men are most commonly affected when compared with women. Risk factors include Premature babies Babies who have seizures in the first month of life Abnormal blood vessels in brain Brain tumors Cerebral palsy Family history of epilepsy or fever related (febrile) seizures. Alzheimer…
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