Caregiver Community

  • Caregiver Community
    2313 member(s)

    A place where Caregivers come together to share common experiences, challenges,and resources. 

    Caregivers are truly experts in patient management and can help each other because of their intensive experience in patient care at home. Caregivers can ask questions to others on this forum going through a similar caregiving experiences. They can start topics and discuss things like ways to manage daily tasks, where to find doctors, nurses, and other health services, how they manage stress, and any other topics related to caring for their loved one and for themselves. It is a great place for Caregivers to come and chat about the issues that affect them on a day to day basis and take time to focus on their own needs and health.

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  • Are Dads Of Special Needs Children Getting More Involved in Parenting?
    Gopinath Ramakrishnan, Co-Founder and Managing Trustee of Special Child Assistance Network (SCAN), a support group for families of special needs children, reflects on the involvement of Dads in parenting.  When we started the parent support group Special Child Assistance Network (SCAN) in Chennai back in 2015, it was mostly a women and children group. Yes, there were a couple of us dads hanging around, but it was by and large comprised of, and driven by the moms. In fact, the WhatsApp…
  • A woman in a red dress with her elderly father on the right at a laid out table with a green checked tablecloth
    Life Comes Full Circle As I Turn My Dad's Caregiver
    Jyotsna Kumar who lives with Sensiro Neural Deafness reflects on her father, his loves and interests and how her relationship with him has evolved and come full circle as she now cares for him. For my father, on Father’s Day: He cracked open walnuts on door hinges for me. He was the only one in the house who was fearless with lizards and insects. When it rained, he got the car and brought it around to the door. When I was sick he would take me to the doctor and get me my medicines. He would cut…
  • An image which has a vector image of a child on the father's back with the heading - A father child relationship is special
    A Father's Support Truly Matters
    Happy Father's Day This Father's Day we share heartfelt messages from our contributors on their fathers and the significance of the support of their fathers in their journey with chronic conditions and disabilities. If you have a thought to share, do write in to us and we will publish it. Or leave us a comment below. Preethi Srinivasan - He (My father, Srinivasan Narasimhan) was my best friend.  Swati Agrawal - He (Sanjeev Agrawal) helped me through the gloomiest of days  Vijay…
  • A mom in a printed top and black skirt flanked by her adult sons, the one on the left with a dark t-shirt and the one on the right with a blue t-shirt. In the background is a red car parked in front of a building on the right and a fence and trees on the left
    I Am Here Because Of Your Love, Maa
    Vineet Saraiwala, Inclusion Lead, Future Retail Limited, pays an emotional tribute to his mother, a mother of two sons with Retinitis Pigmentosa. A Mother's Day Special. It was my mother’s destiny to have two sons, both with retinitis pigmentosa (RP), a degenerative disease in which vision deteriorates as age progresses. We, my brother and I, are glad that we are not alone in this journey as our mother is equally there in our struggles for the past 25 years. But we never noticed it. My mother’s…
  • A collage of pictures of Nikita with autism mom Anupama Bakhshi and her brother Pranav
    Thank You Mom, For Being The Wind Beneath My Wings
    Not all superheroes wear capes! Nikita Bakhshi appreciates her mother Anupama, not only for all that she has done for her brother, Pranav who is on the autism spectrum but also for the unconditional love she shares with her daughter. A Mother’s Day special! Mother’s Day, or let me say ‘I will post a picture with a long caption day’ – Hold your horses. I’m not saying that’s wrong, I very often post pictures with my mom on my instagram too and shower her with instagram PDA, nobody deserved it…
  • Walking With A Loved One With Bipolar Disorder: Rewarding Yet Taxing
    Hvovi Bhagwagar, a clinical psychologist who works a lot of persons with Bipolar Disorder and their families, puts the spotlight on challenges faced by the family caregivers and what they can do to help the persons with Bipolar Disorder as well as themselves.  Arman is a 32-year-old social activist. He is well-respected for his many welfare activities. Diagnosed with Bipolar II disorder in his teens, his life has been a constant internal struggle. His parents, one of whom was diagnosed…
  • Stock pic of a woman and man holding hands in support
    Support Those Who Have Lost a Loved one to Suicide
    Losing someone to suicide can be traumatic. Nyana Sabharwal, who lost her mother to suicide, co-founded We Hear You, a support group for those bereaved by suicide loss, as an important way to heal, cope and overcome grief. You have set up a unique and distinct peer support group for those bereaved by suicide loss. Could you tell us a little about it? ‘We Hear You’ was set up a year ago to help people who are experiencing bereavement by suicide loss to have a safe space to talk about their…
  • What Is Diabetes Distress And How to Handle It
    Managing your diabetes can seem like a never ending task that leaves you emotionally drained. Dr. Indu Elizabeth Mathew, Consultant, Department of Endocrinology, Ernakulam Medical Centre talks of the concept of Diabetes Distress and how it affects Type 1 and Type 2 patients and their family members and what they can do about it. Updated on 24 March 2019 with the Diabetes Distress Study Details What is Diabetes Distress? Are there different types of distress and worry that affect people with…
  • Patient And Parent Have To Live Through Life With A Lysosomal Storage Disorder
    Mr Manjit Singh, President Lysosomal Storage Disorders Support Society, shares some salient points about the rare disease and about the activities of the organisation, LSDSS. The LSDSS is a national level society with more than 400 patients as members who are represented by elected parents as office bearers, across India. The sole motive of the organisation is to spread awareness about this rare disease as also to help each other in availing of the best facilities available. What are Lysosomal…
  • Are You A Tired And Stressed Caregiver?
    It is extremely important for caregivers to maintain their own emotional and physical health and wellbeing to be able to effectively help others, writes Usha Ravi. Also, take the simple self-test below to find out if you are a satisfied or fatigued caregiver. The art of being kind, caring, loving and understanding - all of which will be ineffective if one loses oneself in this process of caring. Hence, to preserve oneself, self-care is crucial. Self-care is considered as simply giving the same…
How can I download your ebook The Art of Caregiving
Adult night diapers overflowing
Question received from a caregiver: My mother in law is 69 yrs old. Just started using adult diapers (L/XL Premium pullups by Dignity). She is also going through treatment for kidney disease (not on dialysis) and have many health complications. She…
RESEARCH ON MALE CAREGIVING EXPERIENCES
Hello everyone! My name is Chandrima Das, and I am currently pursuing my masters in Applied Psychology from Tata Institute of Social Sciences, Mumbai. This message concerns my dissertation which is an essential part of my coursework. For my…
Home needed for 78 year old with schizophrenia in Mumbai
Request received. Any inputs welcome: I need to find a suitable home for caregiving to my uncle. He is 78 yrs old and a schizophrenic. He is in #Mumbai. We have tried to keep him in old age homes, but due to his behavioural problems it didn't work…
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hello friends
AIIMS to provide End of Life Care to terminally ill non cancer patients too
Delhi: AIIMS has decided to provide to end-of-life care (EOLC) that attempts to reduce the suffering of terminally ill patients and to ensure dignified death for non-cancer patients. They are currently working on the details. This is a welcome move…
Destined to Hell- Caregivers of violent Schizophrenics
My 79 yrs old father is a patient of schizophrenia for ages now and had stopped taking treatment after 2013. he claims he is absolutely sane and everybody around if conspiring against him and gets physically aggressive. Even though a senior citizen…
Query regarding a patient
Haii,My name is Godwin staff nurse currently am looking aft one patient who was affected with brain stroke before 2 years and comparing to past year he improved lot but he is having trecostomy so quit offen he affected by infection can you suggest…
weight loss
i want to loose weight to feel healthy
how one can take of old persons ?
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