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Submitted by PatientsEngage on 3 May 2017

10 Myths and Facts about Epilepsy and Seizures dispelled by leading neurologist Dr Nirmal Surya, who has been working for over two decades to control epilepsy. Dr. Nirmal Surya emphasizes that with timely diagnosis and treatment about two-thirds of people with epilepsy can completely control their seizures.

  1. MYTH: Epilepsy is contagious disease and spreads through touching and coughing.
    FACT:  Epilepsy is a disease of the brain. It occurs due to the abnormal hyperactivity or sudden surge of electrical activity in the brain. It is not a contagious disease and cannot be transmitted through touching, coughing or sharing a meal.
     
  2. MYTH: Sniffing an onion or a metal, etc., helps terminate an ongoing epileptic attack.
    FACT: No. Since the patient is unconscious during an epileptic attack, putting onion or shoe on the nose or metal in the hand will not make any difference as the patient is unconscious or unaware. These are irrational beliefs. Such activities will not help at all.
     
  3. MYTH: You should force something into the mouth of someone having a seizure.
    FACT: Absolutely not! You are bound to damage someone’s teeth or dislocate the jaw. Or you could injure your fingers as patient is clenching his/her teeth. If the mouth is open, place a soft cotton object, like a handkerchief, between the side teeth.  Do not try putting anything like water or any other liquid as it may go into the lungs and the patient may suffocate and die.
     
  4. MYTH: You can swallow your tongue during a seizure.
    FACT: It's physically impossible to swallow your tongue.
     
  5. MYTH: People with epilepsy are mentally ill or emotionally unstable.
    FACT: As already mentioned, epilepsy is a disease of the brain. It is NOT a mental or psychiatric illness. Different parts of the brain control different human behaviours, emotions and memory. If a fit arises in any of these areas, the patient may behave abnormally during the seizures for a few seconds to a few minutes. However, they become absolutely normal once the electrical activity settles down. That means such abnormal behaviour are episodic, periodic or transient, and the patient has no memory of these attacks.
     
  6. MYTH: People with epilepsy can’t work, excel at school, have children or lead normal lives.
    FACT: The answer comes from great people like Alfred Nobel, Newton, Alexander the Great – all of whom had epilepsy, yet excelled in their fields. In modern times, I can think of cricket legend Jonty Rhodes. So where is the question that epilepsy patients cannot do well? Epilepsy is a medical condition that can be managed. Hence people with epilepsy can lead full, normal lives. There have been many people with epilepsy who have achieved great things in all fields. Here are the names of only a few legends with epilepsy -  Napolean, Alexander the Great, Lord Byron, Vincent Van Gogh, Theodore Roosevelt, Lewis Carroll, Charles Dickens. This amply proves that nothing should stop a person with epilepsy aim high.

    Read Ishira's personal account with epilepsy
     

  7. MYTH: Epilepsy makes people unfit for marriage.
    FACT:
    This is one of the biggest and most disturbing myths in India. There is a huge stigma surrounding people, especially women, with epilepsy. They are rejected, humiliated and ostracized at the time of marriage, often forcing women to conceal their epilepsy. The truth is epilepsy patients can lead a normal life, can get married and have children. 98 per cent of patients with epilepsy have no genetic background and therefore getting married is not an issue.
     
  8. MYTH: Epilepsy is a form of spiritual possession.
    FACT:  Since ancient times, epilepsy has been associated with religion and believed to be caused by spirits. This is totally untrue, unsound and misleading. Epilepsy organizations are working hard to educate people that epilepsy is a medical condition, a disorder of the brain that causes sufferers to have recurrent seizures. There is absolutely no religion, spirits or black magic involved. The myth of spiritual possession has come because in ancient times epilepsy was not diagnosed to be a disorder of the brain. And it was confused with hysteria or psychological problem. The fact is that this myth has not place in epilepsy. Epilepsy is a disease of the brain and it is treatable.
     
  9. MYTH: People with epilepsy should be treated by faith healers and sorcerers.
    FACT:  Epilepsy is a disease of the brain. Hence, epilepsy should be treated by neurologists, epileptologists, physicians and paediatricians.
     
  10. MYTH: Epilepsy treatments rarely work.
    FACT: Treatment of epilepsy can be either medical or surgical. With the right medication at the right dose, about two-thirds of people with epilepsy can completely control their seizures. About 70 per cent of patients can be treated if they take single medical drug properly from early time. Another 15 per cent cases can be treated effectively with epilepsy surgery, special diets, nerve stimulation or other treatment. 10-15 per cent patients can be refractory (when medicine isn't bringing your seizures under control) and may require other forms or multiple forms of treatment. But it is important to remember that 85 per cent of patients with epilepsy can be treated today at a proper epilepsy centre.
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Stories

  • Epilepsy Tests and Diagnosis
    How is Epilepsy Diagnosed?   Medical History A complete physical examination.   Neurological examination Complete neurological examination to rule out  behavioral modifications, change in mental function, motor abilities etc.   Laboratory tests for Epilepsy Blood tests : Blood sample will be collected to check for signs of infection, genetic conditions etc. Electroencephalogram (EEG) : Routinely used diagnostic test which measures electrical impulses in the brain. This…
  • Symptoms of Epilepsy and Complications
    What are the signs and symptoms of Epilepsy? Temporary confusion Uncontrollable jerking movements of arms and legs (commonly referred to as seizures) Loss of consciousness Staring spell What are the complications of Epilepsy? Falling: which causes injury to your head or break a bone Drowning : if you have epilepsy you are 15 to 19 times more likely to drown while swimming or bathing than rest of the population Accidents : A seizure that causes either loss of awareness or control can be…
  • Prevention of Epilepsy
    There are some ways of preventing epilepsy if you can prevent some of the causes.   Head trauma Prevent head trauma by riding safely - being careful and avoiding road accidents. Prevent falls among the elderly by following some of these tips on fall prevention. Infectious Diseases Reduce chances of cysticercosis, the most common cause of epilepsy worldwide. Be careful and prevent infectious diseases through good hygeine and safe food cooking practices.  Stroke Stroke is one of…
  • Management of Epilepsy
    Epilepsy often needs to be managed for life. While drugs do not cure epilepsy they can help control seizures. Make sure you know whom to consult as you manage the condition. Also know first aid, safety measures and post seizure care First Aid: Move the sizing person away from any obstacles like furniture, electrical outputs etc. Clear the area of any harmful or sharp objects.  Place a blanket or cushions near the person. Place a pillow below their head if possible. Turn the person on their…
  • Epilepsy Overview
    What is Epilepsy? Epilepsy is a group of disorders marked by recurrent seizures over a prolonged period of time. The activity of nerve cells in brain becomes disrupted causing seizures or periods of unusual behavior, sensations and sometimes loss of consciousness.  People can have different types of seizures and they may have other neurological problems as well.   
  • Causes Of Epilepsy and Risk Factors
    What are the risk factors for developing epilepsy? Epilepsy is the 4th most common neurological disorder affecting 1% of population. 1 in 26 people will develop epilepsy during their lifetime. It can begin at any age. Men are most commonly affected when compared with women. Risk factors include Premature babies Babies who have seizures in the first month of life Abnormal blood vessels in brain Brain tumors Cerebral palsy Family history of epilepsy or fever related (febrile) seizures. Alzheimer…
  • Me and my epilepsy
    Do not let epilepsy scare your dreams away. This spunky advice comes from 25-year-old Ishira Bubber as she recounts her struggle with epilepsy, unpredictable seizures, loss of childhood and dependence on dozen tablets. Have you ever wondered what it would feel like, being alive, but not living for a few seconds? Trying to remember what happened, but just cannot. How many of you have experienced this? I have. Not once, not twice, but many times; sometimes 100 times a day. …