Skip to main content
Submitted by PatientsEngage on 30 October 2018

Nothing could be better than receiving valuable tips and strategies from cancer victors themselves to lead a meaningful and fulfilling life after breast cancer. We share key highlights and take-aways from the recently conducted webinar by PatientsEngage on Living Better After Breast Cancer.

Diagnosis and treatment of breast cancer can be harsh physically and emotionally. But it is not the end. You can bounce back and restore a normal life again. There are many ways to move forward, stay positive and healthy post-surgery and chemotherapy.

PatientsEngage hosted the second of its webinar series on 22 October. The topic discussed was ‘Living Better After Breast Cancer’, a crucial and valuable area to delve into considering the high occurrence of breast cancer in India. A host of valuable tips and strategies were shared by the panellists - 2 strong women, who have successfully won over cancer, and an eminent doctor - on how best to put the past behind and move ahead wisely with new hope and optimism.

The essence of the hour-long discussion focussed on moving from being just a cancer survivor to a becoming a victor, to making life more meaningful and fulfilling after cancer. The featured panellists were articulate, candid and full of information and inspiration which livened the webinar and made it engaging.

Key Takeaways

  • Breast cancer survivorship improving
  • Lymphedema can be prevented
  • Support groups help exchange energy
  • All women eligible for breast reconstruction
  • Use of prosthetics
  • Pursue hobbies to relax
  • Positive attitude important for healthy recovery

Nandita Muralidhar, a resident of Chennai, who was diagnosed with breast cancer twice, the first one eight years ago, said what saw her through on both occasions was ‘her funnybone’. “I tend to see the lighter side of every situation. It helps me be positive”, while Urvi Sabnis, from Ahmedabad, who survived cancer four years ago, was helped by her support group and fun loving attitude and busy lifestyle.

Throwing light on the rate of survivorship of breast cancer patients, Dr D G Vijay, director and breast cancer specialist, HCG Cancer Centre, Ahmedabad, said that the trend has been encouraging. Globally survivorship rates in all cancers, particularly breast cancer have been improving especially over the last couple of decades. This was due to various factors, namely increased awareness about lumps in the breast, larger presence of mammography and diagnostic centres across the country, improvement in treatment and better patient outcomes and debunking of many myths surrounding breast cancer that are helping women come out of the closet.

He also pointed out some of the short and long term effects of cancer treatment. Besides hair loss, some patients also undergo changes in the skin. Or there could be issues of related to lymphedema or fluid collection and swelling of the arm, change in menopausal status or cardiac issues.

For Nandita, her positive attitude kept her in good spirits and health post treatment. “You have to constantly tell yourself that the worst is over. That you are alive and becoming better every day.” She was fortunate to get an excellent physiotherapist, post-surgery who put her through vigorous, energetic exercises that kept her arm supple and mobile and saved from developing lymphedema. (Lymphedema is most commonly caused by the removal of or damage to your lymph nodes as a part of cancer treatment.) Also, she maintained that support groups play an important role in getting back on your feet. “Support groups help exchange energy, more than thoughts,” she felt.

Urvi, an avid yoga practitioner, was spared many of the side effects. Many people in her support group, had complained of memory loss after chemotherapy, but fortunately she was not affected by it. “I did the sirsha-asana or the head stand very regularly. That helped me.” According to her the best way to minimize side effects is to lead a healthy lifestyle, do appropriate exercises and maintain a positive outlook.

 

One of the topics touched upon at length was breast reconstruction after mastectomy. According to Dr Vijay, all women irrespective of the stage are eligible for breast reconstruction. “Our own philosophy has been to recommend breast reconstruction,” he said. But it is not very high on the priority amongst Indian women. The emphasis is on freeing oneself of the disease first. “Probably the best time to offer breast reconstruction is at the same time the patient undergoes mastectomy. We plan the incision accordingly, we have the plastic surgeon ready, we have discussed the options for breast reconstruction with these patients.”

While Urvi opted for breast reconstruction, Nandita preferred to use prosthetics. “I was a bit overweight and to maintain balance, aesthetics and quality of life, I preferred breast reconstruction,” said Urvi. Nandita on the other hand had a strong family history of cancer, and feared a reoccurrence. “As luck would have had it, I had a reoccurrence 2 years back.” I use a prosthetic. I have no issues with it. There are special bras available where there are pockets for the prosthetics. Initially you are a bit conscious, but over the years I have become comfortable with myself.”

In India, unlike in the West, a lot of patients are young below the age of 50 who are developing breast cancer. Fortunately, nearly 50 % of patients come in early stages who do not need mastectomy. We do breast conservation surgery; we remove the lump and lymph nodes if they are involved. In case of mastectomy, we recommend breast reconstruction, especially if the women are young.

At the end, both Nandita and Urvi happily share their philosophy and outlook on how to be healthy and happy cancer warriors and victors. “Take one day at a time; take one step at a time. Do not overthink and go too far ahead,” says Nandita. Urvi finds rest and relaxation in pursuing activities and hobbies that she likes like yoga, singing.

What is important to remember is that breast cancer and the ensuing treatment is a transient phase, and quickly passes with time. There is no need to get despondent. As Urvi beautifully expressed it - If life is like a book, the breast cancer phase can be viewed as just a few paragraphs.

So, chin up!!

Community
Condition

Stories

  • Sugary drinks linked to earlier onset of menstrual periods and higher risk of breast cancer
    Girls who frequently consume sugary drinks tend to start their menstrual periods earlier than girls who do not, according to new research published online Jan 28 in Human Reproduction. This effect was independent of the girls' body mass index (BMI), height, total food intake and other lifestyle factors such as physical activity. The findings are important not only because of the growing problem of childhood obesity in a number of developed countries, but also because starting periods earlier is…
  • Cambridge University finds gene behind killer disease - Triple negative breast cancer
    Triple-negative breast cancer is one of the most deadly forms of the disease, does not respond to hormonal therapies such as tamoxifen, or targeted drugs like Herceptin and nearly one quarter of patients diagnosed will not survive for more than five years. Now researchers at Cambridge University and the Wellcome Trust’s Sanger Institute have found that the BCL11A gene is overactive in eight out of ten patients. The study opens the door for therapies which suppress the gene and…
  • Goodbye Year of Cancer. Hello Hope!
    Death stared at me up close this year, says cancer survivor Minakshi Ray. What did that teach her about life? As I sit back and take stock of how 2014 treated me, I would say, it was a mixed bag. There have been losses and gains. I don't mean material losses or gains, rather I will remember the year in terms of the emotional journey. Following my battle of survival against breast cancer, my perspective on life has changed completely. The biggest realisation that has dawned…
  • Foods that fight cancer
    By nutritionist Kohila Govindaraju Being overweight has been linked with the increased risk of breast cancer, endometrial (uterus), and colorectal cancer. So keep your BMI at 25 or less with these foods that reduce your waist and your cancer risk: Fruits, vegetables, wholegrains and pulses are rich in vitamins and minerals, boosting your immune system. Go for dark coloured beans (rajma, brown beans, green beans, black-eyed beans) and brightly coloured vegetables and…
  • The “Spa” effect of chemotherapy
    Minakshi Ray talks about her experience – the weird and the wonderful - while being treated for breast cancer.  I was scheduled for my first chemotherapy session on April 17, 2013. Even though I believe “ignorance is bliss” sometimes, and I dared not search for information on side effects on the all-pervasive Google, it was difficult to shield myself from information overload on the matter from sources primary, secondary and tertiary! Full of apprehension, I checked…
  • Why Meditation and Yoga Are Recommended for Breast Cancer
    Non-invasive alternative therapies can clear an anxious mind Up to 80% of American patients with breast cancer will undergo complementary therapies to manage anxiety and stress after they receive a diagnosis. Though there’s no clear consensus on which integrative and alternative therapies work and which are ineffective, more and more medical practices have incorporated practices like mindfulness and acupuncture into their offerings. But a new study published in the Journal of the…
  • 3 As for Breast Cancer Recovery
    Plus other tips that got me through. A breast cancer survivor from Delhi shares. Diet 3As - Apple, Anar (pomegranate), Amla (gooseberry) Wheatgrass (if you can manage) Broccoli Do not eat fried and fatty food  If you go out once in a while, eat without making a fuss - so you don't get isolated Eat even if you don't feel like it Mental wellbeing Read The Secret by Rhonda Byrne Make a list of things you want to do - think forward into the future (even a child's wedding) Physical…
  • Red meat consumption in young women increases breast cancer risk
    In conclusion, higher consumption of red meat during adolescence was associated with premenopausal breast cancer. Substituting other dietary protein sources for red meat in adolescent diet may decrease premenopausal breast cancer risk. The breast is particularly vulnerable to carcinogenic influences during adolescence due to rapid proliferation of mammary cells and lack of terminal differentiation. We investigated consumption of adolescent red meat and other protein sources in relation to…
  • Mind over body...
    Minakshi Ray on her battle with breast cancer and what it took to win.  “Life is like a game in the boxing ring. Defeat is not declared till you refuse to get up” The line pretty much defines me – I am generally known as a very positive person among my friends and family and staunchly believe that the Almighty helps those who decide to help themselves! On a cold January morning last year, the doctor handed over the biopsy report of the breast lump to my husband with a little…
  • Breast cancer drug Perjeta appears to extend patients lives
    According to reports from clinical trials, Roche’s breast cancer drug Perjeta displays “unprecedented” life-extending effects, helping patients live an average of 15.7 months longer than they would on chemotherapy and an older drug. 15.7 months is a significant amount of time for metastatic breast cancer patients, who are, on average, given two to three years to live after their diagnosis. Perjeta, then, has the capacity to increase that time by 50 to 75 percent.  http://www…