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  • Upcoming Webinar: Navigating Childhood Cancer Care For Better Outcomes
    Navigating childhood cancer care is challenging for the patient and the family. It can get even more challenging when multiple disciplines are involved as in the case of Osteo Sarcoma and Bone and Soft Tissue Sarcoma. Join us as we discuss a collaborative model that facilitates timely and affordable access to treatment and improves outcomes for patients. Our panelists are: Dr. Ramandeep Arora, Senior Consultant, Pediatric Oncology, Max Super Speciality Hospital, Delhi Poonam Bagai, Founder,…
  • What Persons With Rare Diseases And Their Families Want
    There are more than 7000 rare diseases. Most of them are genetic disorders and affect children from a young age. Diagnosis takes very long. Treatments are very expensive and often don't even exist. There is no proper rare disease policy in place.  Rare is Many, Rare is Strong, Rare is Proud #RareDiseaseDay #RareDisease #CareForRare  These diseases affect not just the lives of children but also their families. Listen to voices of patients with rare disease and their families…
  • Collage of the book cover and author pic
    Bound by Humour, Adventure, Pandemic And Loss
    Jane De Suza’s latest book ‘When the World Went Dark’ weaves a charming story amidst the backdrop of the pandemic with death and loss understood from the consciousness of a nine-year-old child. Our editor Shivani Maheshwari reviews it.  Here is a sweet little book that will make an interesting read for children, as well as adults. It has Covid 19, loss, bereavement, as the framework, and the foreboding title ‘When the World Went Dark’. But it far from a depressing, dry pandemic chronicle.…
  • Webinar: Epilepsy Is More Than Seizures
    8th February was International Epilepsy Day and this year since the theme is "More than seizures", we focus on how it affects children, schooling, adolescence, learning, marriage, pregnancy and more Our panelists were Dr. Pradnya Gadgil - Consultant Pediatric Neurologist, Kokilaben Dhirubhai Ambani Hospital Yashoda Wakankar - Neuro counsellor and person with Epilepsy We covered a wide range of topics  02:20 What is epilepsy 04:40 Not all seizures are epilepsy 06:35 Onset of epilepsy…
  • Autistic young man in black and his sister in red
    His Magic and Madness Holds the Family Together
    Shreya Jain, neurodiversity advocate and founder of Reservoir, talks about her brother on the autism spectrum and how she provides financial and legal security solutions to the special needs community. Could you tell us a bit about your brother? How has autism shaped your relationship with him? My brother, Suvrat, was diagnosed with autism at the age of two and a half years. I was about 7 at the time. I remember my mom running across the country with this little baby boy because she thought he…
  • World Cancer Day - Together, Our Actions Matter
    This World Cancer Day, lets come together to do what we can for a healthier, brighter world without cancer. Here are some simple and useful suggestions by our recent webinar panelists Urvi Sabnis - Dave, Shilpa Aneja, Babita Shivnani, Mehul and Darshini Shah, Hemal and Kashyap Dalal, Pranab Basu, Dr. Vinay Deshmane, Dr. Gauravi Mishra, Dr. Meghana Maruthi, Dr. Rohini Patil Share, Comment, Message to contribute and join a wish for a healthier world  
  • 6 Most Important Documents Needed For A Child With Special Needs!
    Chitra lyer, a Special Needs Parent and a Trustee at Forum for Autism on the documents required to ensure that the child with special needs is well looked after.   The first step is to know exactly which documents are essential, the legal actions needed to protect your child and the correct steps to secure your child’s financial future. Without these, you will always wonder if your Child’s future is secure and whether you will be able to protect him/her legally and financially,…
  • Image desription: A pair of hands on an older persons hands. Text on the image - We Will All Be Stronger If We Support Each Other
    Happy Republic Day India
    Every person is fighting some kind of battle in life. Those who live with chronic conditions and still believe in the spirit of living, deserve a special mention. This Republic Day, we salute our patients and survivors for being true heroes and inspiring us to live life to the fullest. #HappyRepublicDay #heroesoflifebattle #inspiration    
  • My Mother Had Breast Cancer - Did You Miss Our Webinar
    We know that cancer affects the patient. But do we know how it affects daughters of women who have #breastcancer? Especially when the daughters are in their teens or even younger. We speak to three young women who will share the experience from their perspective and how they coped with it and their suggestions for others in the same situation.  Watch our panelists share their feelings and their learnings in this conversation.  Anjali Sabnis Aswathy Mariam Varghese Krina Majithiya…