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  • Event Poster with pictures of the 3 Persons with Parkinsons and title of event Transforming With Parkinsons Disease
    Transforming With Parkinsons Disease [Webinar Video Link]
    Your life does change after you are diagnosed with a condition like Parkinson's Disease. It affects your day to day activities, your social engagements, your mental health. But what if you change your approach to life after Parkinson's Disease?    Dr. Shanthipriya was diagnosed with Parkinson's Disease at age 36; Rajeev Gupta at 51 and Pramesh Ratnakar at 54. Each of them has developed a unique approach to living life as they deal with the effects of the condition.Apart from…
  • Upcoming Webinar - Dealing with Changed Appearances in Head and Neck Cancers
    When people have head and neck cancers, especially oral or lip, their facial appearances are often affected due to surgery and other treatment. What are the surgical options available to them for reconstruction? What are the psycho-social challenges they face due to altered appearances? How can they accept this change and face their family and the broader circle? To get some background of these issues, listen to a recording of our webinar with caregivers of head and neck cancer patients. Link…
  • Understanding Male and Female Infertility
    Dr. Kalyani Nityanandan, 85-year-old cardiologist, has extensive knowledge and deep understanding of a gamut of health issues. Here, she delves into issues of infertility and childlessness and potential medical treatment in her breezy style. A couple who have been married for a year or two go to a family function. Till a couple of decades ago, some elderly female relative was bound to ask the wife: What, no news? Irritating, but perhaps inevitable. Today, the question hangs in the air, unvoiced…
  • Myths vs Facts About COVID 19 Vaccinations
    Dr Swati Jha, Director, Community Health & Research at Aga Khan Health Services India, addresses some misconceptions and myths that people are raising about vaccinations. MYTH : The vaccines aren’t safe because they were developed very quickly FACT : –While vaccines developed previously have taken years and even decades to be approved for use, the COVID-19 vaccines needed to be developed and approved in a fast-track manner, because of how far and wide the disease has spread. However,…
  • Kidney Disease - Parent talk Event Header
    Upcoming Webinar: When Your Child Has Kidney Disease
    A kidney disease diagnosis impacts the person with kidney disease as well as the rest of the family as well. On #WorldKidneyDay, we speak to our panel of parents on how they handled the diagnosis and the journey of their child How does a parent deal with the diagnosis? How do they feel about it? How do they equip themselves? How do they support their child? When: 11th March 2021, 6:30pm IST Our panelists are: Usha Uthup Vasundhara Raghavan Satyendra Rathore Join us on Zoom Webinar ID: 860…
  • Upcoming Webinar: Navigating Childhood Cancer Care For Better Outcomes
    Navigating childhood cancer care is challenging for the patient and the family. It can get even more challenging when multiple disciplines are involved as in the case of Osteo Sarcoma and Bone and Soft Tissue Sarcoma. Join us as we discuss a collaborative model that facilitates timely and affordable access to treatment and improves outcomes for patients. Our panelists are: Dr. Ramandeep Arora, Senior Consultant, Pediatric Oncology, Max Super Speciality Hospital, Delhi Poonam Bagai, Founder,…
  • What Persons With Rare Diseases And Their Families Want
    There are more than 7000 rare diseases. Most of them are genetic disorders and affect children from a young age. Diagnosis takes very long. Treatments are very expensive and often don't even exist. There is no proper rare disease policy in place.  Rare is Many, Rare is Strong, Rare is Proud #RareDiseaseDay #RareDisease #CareForRare  These diseases affect not just the lives of children but also their families. Listen to voices of patients with rare disease and their families…
  • Collage of the book cover and author pic
    Bound by Humour, Adventure, Pandemic And Loss
    Jane De Suza’s latest book ‘When the World Went Dark’ weaves a charming story amidst the backdrop of the pandemic with death and loss understood from the consciousness of a nine-year-old child. Our editor Shivani Maheshwari reviews it.  Here is a sweet little book that will make an interesting read for children, as well as adults. It has Covid 19, loss, bereavement, as the framework, and the foreboding title ‘When the World Went Dark’. But it far from a depressing, dry pandemic chronicle.…
  • Webinar: Epilepsy Is More Than Seizures
    8th February was International Epilepsy Day and this year since the theme is "More than seizures", we focus on how it affects children, schooling, adolescence, learning, marriage, pregnancy and more Our panelists were Dr. Pradnya Gadgil - Consultant Pediatric Neurologist, Kokilaben Dhirubhai Ambani Hospital Yashoda Wakankar - Neuro counsellor and person with Epilepsy We covered a wide range of topics  02:20 What is epilepsy 04:40 Not all seizures are epilepsy 06:35 Onset of epilepsy…