Jason Foo, the CEO of ADA (Alzheimer’s Disease Association), Singapore, shares his views on the rising levels of the disease, how personalised treatment can help and also how spreading awareness can remove the existing stigma.
What are the possible reasons for increase in Young onset dementia? (Is there a difference between Young onset dementia and early onset dementia?)
Young Onset Dementia (YOD) and Early Onset Dementia (EOD) refer to the same condition which is dementia affecting people…
Dr. Sridhar Vaitheswaran explains how supporting a person with dementia effectively in a dementia friendly community can improve not only their wellbeing but also improve caregiver satisfaction, decrease burden and contribute to the society’s progress. The story of Mr Arun Mr Arun is a seventy-year old retired government employee. He lives with his wife, son, daughter-in-law and two grandchildren in Chennai. He helps with the chores such as shopping and paying bills. He also visits a…
Every three seconds one person in the world develops dementia. Dr Amit Dias, an epidemiologist and geriatrician who is one of the leaders of the dementia awareness movement in India, throws light on ADI’s ‘Remember Me’ campaign as the World observes the Alzheimer’s Awareness month in September. What does the ‘Remember Me’ campaign mean to you? ‘Remember Me’ is a global campaign initiated by Alzheimer’s Disease International (ADI), UK that reminds me that I need to step up my efforts…
World Lymphoma Awareness Day 2016 Vandana Gupta, a Lymphoma cancer survivor, decided to put her difficult phase in life to bring help and support to good use when she founded V Care, a support group for Cancer patients in Mumbai. Here, for Lymphoma Awareness Day she addresses questions by PatientsEngage: What are the barriers to receiving the right treatment for lymphoma? A lack of awareness of the symptoms for Lymphoma often gets it confused with TB. On top of that, there are not too…
Bangalore based Dr. Namitha A. Kumar, a person with Thalassaemia, reports on the acute shortage across the country of Desferal, a survival drug for patients with thalassemia. On behalf of the patient community, she implores the Union Government to intervene to address uncertainty and ensure clear communication on continued supply of the drug to patients. Thalassemia major patients in India are more than 100,000(1 lakh) in number. We depend on monthly or bi-monthly blood transfusions to survive…
At a recently held meet at National Institute of Mental Health and Neurosurgery (NIMHANS), Bangalore, the key issues deliberated were employment possibilities for Persons with Disability due to Mental Illness. Mr Amrit Bakhshy, President, Schizophrenia Awareness Association (SAA) who attended the session generously shares the proceedings of the meet. Last month, National Institute of Mental Health and Neurosurgery (NIMHANS) and Indian Psychiatric Society (IPS) organized a National Level Expert…
By Lakshmi Gopalakrishnan, a Special Educator and Rehabilitation Specialist Vaccess, a two day Expo, represents Vidya Sagar, a Chennai centre for the disabled, and its constant and persistent efforts towards Accessibility for people with disabilities. As the founder Poonam Natarajan put it so crisply, “In the past, this was understood only as the need for physical access. It meant building ramps, railings and pathways for people with visual impairments, special features in toilets,…
The Mental Health Care Bill, 2013 passed by Rajya Sabha recently has triggered an avalanche of reactions and opinions. While some have hailed it as a ‘landmark’ Bill with many progressive clauses, others have lambasted it fiercely and dubbed it ‘Politics of Health’ that has nothing to do with care. We bring you four key perspectives of Government, Caregiver, Medical profession and Patient to help you deduce fair evaluation and assessment. 1) Government The Mental Health…
By Dr. Mangala of Schizophrenia Research Foundation (SCARF) When a mentally ill person requiring help and treatment is discriminated against and is made to feel like an outcaste exactly when he needs maximum support, it is not only harmful for the individual but for society at large. Any community or society which is not inclusive and gives credence to stigmas and myths can never prosper and even advanced treatment gets defeated in the process. Advances in scientific research have brought…
