says RS Anand, parent of a child with Duchenne Muscular Dystrophy on the FDA approval of Emflaza (deflazacort).
The U.S. Food and Drug Administration approved Emflaza (deflazacort) tablets and oral suspension to treat patients age 5 years and older with Duchenne muscular dystrophy (DMD), a rare genetic disorder that causes progressive muscle deterioration and weakness. Emflaza is a corticosteroid that works by decreasing inflammation and reducing the activity of the immune system.…
Worldwide, medical hypnosis is being increasingly accepted to ease acute and chronic pain arising from burns, cancer, and rheumatoid arthritis and reduction of anxiety associated with surgery. What is hypnosis? Hypnosis is a state of increased suggestibility with constriction of peripheral awareness and increased focal concentration on task at hand. Heightened suggestibility is an essential characteristic in hypnosis. Hypnosis is like a meditative technique that encourages inner search and the…
Did you know White Print is a lifestyle magazine in Braille? It was launched by Upasana Makati exclusively for the visually impaired to help them get a taste of life and experiences they are otherwise deprived of. Four years down the line, Upasana feels it was one of the best decisions of her life to launch this magazine. Why do you think Braille Literacy is important? Just as reading and writing are crucial to most aspects of a sighted person's life, knowing Braille is a symbol of empowerment…
Without a proper plan, your child with autism may face an uncertain future after you are gone. Chitra Iyer, Treasurer and Trustee, Forum for Autism, spells out reasons why it is absolutely necessary for parents to prepare a Will. While this may apply to various disabilities, the focus for this article is mainly on children with autism and keeps in mind the legal requirements in India. What if something were to happen to me tomorrow, how can I ensure that my child with Autism who is now an…
This pertinent question, that troubles many of us also, is forcefully raised by Dr Kamal Kumar Mahawar in his recently published book The Ethical Doctor, a critique of the health care system in India. He offers 10 reformatory guidelines that could salvage our medical institutions. Shivani Maheshwari reviews: There is an urgent need for more books like The Ethical Doctor by Dr Kamal Kumar Mahawar in the market. Especially in a country like India where a population of billion plus has to run…
We invite you to 'Living with Parkinson's' an event for people with Parkinson's and their caregivers. Dance & Movement Therapy followed by tips on living with Parkinson's by eminent Neurologist Dr. Manoj Hunnur Date: 27th December, Tuesday Address: Prabodhankar thackeray multipurpose hall, A wing, 2nd floor, Borivali west Timing: 10.30am to 1.30pm
The need to integrate inclusive design at our homes, schools, workplaces, malls, hospitals, parks, etc, especially to improve accessibility and mobility for the disabled, needs to be given urgent priority for the wellbeing of society, writes Daniel Wong, Access Consultant design professional. The world is experiencing a population boom never before seen in history. Birth rate is increasing while deathrate is slowing. People are living longer because of improved healthcare science particularly…
Inclov is a match making app which is not only inclusive in its approach, but actually has successfully managed to bring together a number of people with disabilities. Shankar Srinivasan, one of the founders of the app, talks about this initiative which is growing from strength to strength. Inclov is an interesting concept. How did it come about? The original idea came from my co-founder, Kalyani. We liked the concept of match making per se. In 2014 we started the venture as a match making…
Tamahar not only tries to develop the children with various activities, it also brings the family, the primary caregivers, into its fold to help them grow and learn with the children. Vaishali Pai is a visionary and an experienced occupational therapist who set up the Tamahar Trust in 2009 to help children with special needs find their own little spaces in this world. She shares how she would like Tamahar to reach out to more children in future. Tell us briefly the thoughts behind forming…
