Caregiver Community

  • Caregiver Community
    2318 member(s)

    A place where Caregivers come together to share common experiences, challenges,and resources. 

    Caregivers are truly experts in patient management and can help each other because of their intensive experience in patient care at home. Caregivers can ask questions to others on this forum going through a similar caregiving experiences. They can start topics and discuss things like ways to manage daily tasks, where to find doctors, nurses, and other health services, how they manage stress, and any other topics related to caring for their loved one and for themselves. It is a great place for Caregivers to come and chat about the issues that affect them on a day to day basis and take time to focus on their own needs and health.

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  • A nurse assisting a female bed ridden patient
    7 Common Health Risks of a Bedridden Patient
    A bedridden patient becomes vulnerable to various health complications like painful bed sores, circulation and respiratory problems, depression and contractures, due to lack of activity for long periods. Usha Ravi suggests steps to ensure proper nursing and caring for your loved one confined to the bed. There are a host of challenges which arise if one is confined to bed because of sickness, disability or frail age. The burden is felt not only by the individual but also by the carers.  It…
  • Palliative Care Centre in Memory of her Daughter
    The Romila Palliative Care Centre was started by Dr Armida Fernandez, after she lost her daughter to cancer. While the best medical care was provided to her, she felt the softer aspects of patient care were missing. Here, she talks about her desire to fill this vacuum. When and how did you start Romila Palliative Care? Romila Palliative Care started in February 2017. I lost my daughter to cancer in 2013 and at that time we felt that although the best of medical care was available, the softer…
  • Handling Agitation in Dementia
    Neha Sinha, a clinical psychologist by training and dementia specialist, is the co-founder and CEO of Epoch Eldercare.  She shares her knowledge on agitiation in Dementia, the triggers of agitation and how best to handle it. What is Dementia in everyday life? Visualise a situation where you suddenly open your eyes and can’t make any sense of where you are or what you are doing there? Your surroundings seem unfamiliar to you...and there is a person in your room, giving you all sorts of…
  • 24 or more hours with the Autism Community in Delhi
    Madhusudan Srinivas, parent of a 24 year old autistic boy, Abhimanyu, shares the surprises a day throws up for families of people with autism. His life's vision is to ensure enjoyable evenings for all people with special needs, especially the community of young adults with autism.  Blips on a screen, jumble of words for you, but way beyond reality bites for me, and for us in the autism community.  Hi all, this is Madhusudan Srinivas, father of Abhimanyu  24 and autistic, and…
  • Try Group Drumming for a Healthy Lifestyle
    The Rhythm Wellness initiative of Global ArtsCare in Singapore conducts group drumming session for the elderly to reduce loneliness, increase energy levels and morale and provide recreational and wellness activities. Tell us about Global ArtsCare and the work it does? At GlobalArtsCare we aim to transform lives-in-care through creative arts engagement. Our activities aim to make creative arts engagement accessible to as many people in care facilities. In the process, residents, care-givers, and…
  • The Lonely Walk to Meet Mortality
    A heart-stirring account by Kunal Mahajan as he watches his mother-in-law, Rohini Waikar, 52, affected by Multiple Sclerosis, gradually lose her ability to walk, talk, read, remember and a bit of her life every day. Every morning, she loses her life, one ounce at a time. She has already lost her ability to walk, talk and read. In the next two years, she will lose her ability to eat, taste, and see. Eventually, time will peel away every layer of life, reducing her living to a mere existence.…
  • What do Siblings of Children with a Condition Struggle With?
    Dr Roma Kumar, Clinical Psychologist and Senior Consultant at the Institute of Child Health at Sir Ganga Ram Hospital, New Delhi, talks about how siblings of a child with a condition also need care and empathy and what may be the emotional turmoil for such a sibling, as a child and often even as an adult. What is the positive and negative impact of a child with disability or a serious health condition on the brothers and sisters? The quality of the life of family members, as well as of the…
  • Know Your Mental HealthCare Act
    In March this year, in a landmark move, the Indian Lok Sabha passed a resolution in favour of those with mental illness. Mr.Amrit Bakhshy, President of Schizophrenia Awareness Association and a caregiver himself lists down some salient points. The Indian Mental Healthcare Act 2017 strives to rectify years of wrongdoing against those who have a mental illness hallenged and also overturns, in the process, the archaic Section 309 of the Indian Penal Code (which criminalises attempted suicide).…
  • Physical Activity and Exercise Can Help Keep Mental Illness in Control
    Exercise and yoga can improve quality of life for people with mental illness and reduce risks of strokes, diabetes, auditory hallucinations and other health problems, informs Dr R Padmavati, Additional Director, Schizophrenia Research Foundation. World Health Organisation defines physical activity as any bodily movement produced by skeletal muscles that requires energy expenditure. Physical activity is not just "exercise". Exercise, is a subcategory of physical activity that is planned,…
  • Son, Your Smile Means the World to Me
    Chitra Iyer, mother of 18-year-old Shravan with autism, feels all her challenges and hardships melt away and every moment of life becomes worth living when a beautiful smile radiates across her son’s face. Here she shares Shravan’s childhood and preparing a life plan for him for the next 20 years. When Shravan came into our lives we were overjoyed. The fact that he survived the NICU (neonatal intensive care unit) for 26 days and came home with us was itself a huge victory. When he would cry…
Patient not discharged from ICU despite repeated requests
In the last couple of weeks, I have heard of two different cases in India where the hospital kept a patient in ICU on life support for weeks on end. In one case, even after the family asked for the patient to be transferred to a normal room, the…
Counsellor in Ahmedabad
Query from a caregiver Does anyone know a counsellor in Ahmedabad who can go to a patient's home. Patient has had a couple of strokes and even though there is no paralysis believes he is paralysed and does not use his limbs and keeps falling.…
Walking with quad cane assistance
Here is a question from one of our members: My father is 89. He used to walk regularly twice a day and used a simple walking cane. But now he has had a few falls. Doctor says he must use a cane with 4 legs(quad cane) but he refuses to do that. Now…
A family torn apart by illness
When treatment started failing 66 year old Siew Ching, the family became divided into different camps. Some wanted her to stay in hospital so that she could receive maximal supportive care. Others wanted her to be discharged so she could go…
My 95 year old father
My 95 year old father lives with my sister. She takes very good care of him. Normally he is fine. Can manage most daily activities with some help. But he is sometimes very paranoid about domestic helpers coming into his room and trying to harm him…
Tips for Caregivers
We found a great list of tips (in the link below) to help ease the challenges of being a caregiver and help caregivers with self-care - take a look at this list and share with us if you have ever used any of these and how! The tips include:…
Sleep - A big challenge for Caregivers
A lack of sleep or feeling tired is one of the biggest challenges that Caregivers face. Often times we have to wake up at night to check on our loved one, or we have trouble falling asleep because our mind is preoccupied. What are some of your…
How do you ask for help?
As Caregivers we often take on a lot and can get exhausted. It is important to learn how to ask for help - maybe other family members, friends, or neighbors can help take on some tasks and make life a little easier for the Caregiver. For many of us…
Restlessness in semi mobile senior
My MIL is a little bit over weight @ 94, and is able to walk only with a walker very slowly.She is addicted to watching TV whether she understands anything or not, but cannot sit for a long time. WE give her TV time, once a day for 2 hours. For…
Sharing Caregiving Duties Among Siblings or Family
I recently came across a great article that spoke about the importance of sharing caregiving duties among family or siblings. Often, the caregving duties falls upon one sibling or family member, and  this can cause resentment or…

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