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  • Dementia
    is a broad term for a range of conditions that involve loss of mental ability and so cause problems with memory, language, behaviour and emotions. Dementia is most common in the elderly. Around five percent of people over the age of 65 are affected to some extent.  According to Alzheimer’s Disease International with increasing life expectancy, this is expected to surge to 75.6 million in 2030. Disease awareness and understanding is a huge challenge  
Submitted by PatientsEngage on 19 September 2015

Managing the condition

Dementia generally gets worse with age but the development of symptoms can often be slowed with drugs or other treatments. Treatment of dementia usually aims to improve memory and concentration, reduce psychiatric problems, and improve the quality of life for both the patient and their family.

Read here for various treatment options: http://www.patientsengage.com/conditions/dementia/treatments

Improving quality of life: There are several psychological techniques to help people cope with dementia. These include reality orientation, which involves regularly reminding patients of information such as the day, date, season and where they are. Aromatherapy and art or music therapies are also thought to be beneficial.

Although people with mild dementia can usually cope with minimal support, they need more help looking after themselves as the disease progresses. 

Exercise programmes are beneficial with respect to activities of daily living and potentially improve dementia. 

In advanced cases of dementia, finding a place in a residential or nursing home may be the best option for both the patient and their carer.

Take charge: Notes for the caregiver

  • Caring for a dementia patient is challenging. Here are some tips to keep in mind:
  • Do everything you can to help the patient retain their sense of identity and self-worth
  • Always be calm and talk gently, no matter how the patient responds
  • If the patient seems distracted or absent-minded, draw their attention by touching or stroking them to communicate and show love 
  • Have a clock and calendar in the room to keep the patient in touch with the present
  • Monitor food and fluid intake and elimination — dehydration or constipation can exacerbate confusion
  • Make sure the house is well-lit and safe – so the patient does not fall or trip
  • If the patient is confused, consider labelling items or rooms, such as bathroom (in words or pictures)
  • Take all the help you can get from family members and friends to care for the patient or help with household chores while you look after the patient

Consider the following therapies:

  • Validation therapy: This validates the patient’s thoughts and feelings and also helps them work through them. It follows the patient’s reality, not yours. 
  • Music therapy: This is an effective way to gain communication with the patient.
  • Reminiscence therapy: Discuss past events that are positive that bring peace and happiness to the patient.

Activities for the patient:

  • If they are physically able, take them out to a park or flower show
  • Give them some simple responsibilities, like buttering the toast at the breakfast table or watering the plants
  • Have them listen to audiotapes
  • Have them spend time around children or pets
  • Give them hand, neck and foot massages
  • Brush their hair

Related reading: http://www.patientsengage.com/conditions/10-tips-communicating-patient-dementia

Remember:

  • Don’t argue with the patient
  • Avoid background noise
  • Don’t ask them a lot of questions

Know your support team:

  • Psychiatrist 
  • Neurosurgeon
  • Dietitian 
  • Physiotherapist 
  • Nursing care
  •  
Condition

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    "I feel angry at times that we did not receive good guidance from the doctors whom we first approached and sometimes I redirect the anger at myself for not doing enough of reading up when so much of information is available on the Internet."    A daughter talks about her mother's dementia and the challenges they faced due to lack of awareness to Swapna Kishore, who was herself a dementia caregiver for more than a decade.    http://dementiacarenotes.in/mala-interview
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    The most common form of dementia is Alzheimer's, accounting for about two thirds of cases, but it's currently impossible to detect what form of dementia someone has while they're alive. While we are not anywhere near a cure, the ability to deal it earlier would still be useful.  http://www.theguardian.com/science/head-quarters/2014/jul/21/detecting-dementia-dignity-alzheimers
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    Dementia
    is a broad term for a range of conditions that involve loss of mental ability and so cause problems with memory, language, behaviour and emotions. Dementia is most common in the elderly. Around five percent of people over the age of 65 are affected to some extent.  According to Alzheimer’s Disease International, in 2013, there were 44.4 million people with dementia. But with increasing life expectancy, this is expected to surge to 75.6 million in 2030. Some of the…
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    Mothering your mother with dementia
    Paro has been caring for her mother, 86, who has dementia, for the last six years. She is frequently found in doctor’s waiting rooms and has their numbers on speed dial. She tells us what she has learnt from the experience. • Above all else, patience • Flexibility: Every day is different and brings different challenges that require different responses. • When she hallucinates, I do not contradict her as that confuses and upsets her, leading to temper tantrums, even violence…