Skip to main content
Submitted by PatientsEngage on 25 April 2017

The best way to help a person with dementia is to ensure that they maintain control over as many areas of their life as possible and encourage them to maximise their remaining abilities, recommends Amrita Patil–Pimpale, a dementia care consultant.

During my recent home visit to Mr. Dsouza (name changed) who is living with Dementia, I noticed a bottle of floor cleaner kept on his dining table. Usually this isn’t matter of concern. However in Mr. Dsouza’s case, he is in mid-stage of dementia, has poor judgement and struggles with decision making. He could mistake the floor cleaner for a beverage as it was on the dining table.

There can be many instances where people with dementia can be at risk. The disease not only affects cognition, it also affects perception of place, position; slows timing and reflexes; worsens coordination; and limits the abilities to plan ahead and solve problems. Once diagnosed with dementia, it is advisable the person discontinue driving, travelling alone, cooking, and handling bank transactions for his/her own safety.

Safety at Home

Over time, as the disease progresses, the person with dementia becomes less capable of managing things independently. It becomes the carer’s responsibility to ascertain the safety of the individual. It is important that person is offered safe environment that facilitates independence, still provides a life with sense of purpose and quality. At home, one can take the following measures for safety of the person with dementia -

  • Keep hazardous items such knife, scissors, stove etc. out of reach
  • Lock the doors to ensure the person does not wander out of the house
  • Keep the house free of clutter to facilitate unhindered movement
  • Provide grab bars in the bathroom and corridors to help easy movement
  • Provide adequate lighting
  • Put warning signs on harmful areas or objects

Medication

Medications should always be kept away from person and should be given as per prescription by family members/caregivers. Medicine boxes with day wise sorting should be avoided as person might be confused with today’s day, time of the day which may lead to either skipping the dose or overconsumption of medicine.

Outside home

Person should always be accompanied while going out of house. It is preferable that they are given a mobile phone that is easy to operate. However mobile phones can be misplaced or can be confusing to use in panic situations. It is also useful to keep ID card, address in person’s wallet, in case they forget the way back home. A steel bracelet with engraved name and address can be worn by the person.

Handling money and valuables

Large sums of money, valuables should not be kept with person with dementia. One of my service users with dementia routinely went to his bank, withdrew large sum of money from bank and when he returned home he had no money in hand, he could not recall where the money went even when the bank was only a short distance from home.

Ideally bank related transactions, bill payments should be avoided by person with dementia, as they may find these tasks confusing. They may fail to understand what needs to be paid, overpay for some things, or leave money unaccounted for. A joint accountee or power of attorney should be added to handle necessary bank transactions for person with dementia.

Keeping safe vs. Quality of life

In any stage of dementia, the aim is to keep the person with dementia as active as possible, which includes activities related to their occupation/work, social engagements, physical activities like walking, exercises, yoga etc. However, many times due to safety concerns people with dementia are deprived of activities they once enjoyed like cooking, walking.

While setting up safety measures for person with dementia, it is important to remember that often we tend to focus on disease, instead of the person. The effort to safeguard the person should not get constrictive or interfere excessively with the person’s independence. As each one of us enjoys our freedom, a person living with dementia is no different and deserves the same respect and free will.

Trained, empathetic caregivers will understand needs of person with dementia and are able to provide a safe yet stimulating environment as well as activities for people with dementia. As we are seeing increased rate of dementia, we need to create dementia friendly communities, so that people affected by dementia feel understood and included, and that they can confidently contribute to community life.

Remember, it is crucial to help a person experiencing dementia to maintain control over as many areas of their life as possible and encourage them to maximise their remaining abilities.

(Amrita Patil –Pimpale is a Mumbai based Dementia care consultant. Her organisation Echoing Healthy Ageing, offers support and home based therapies to people with dementia, their families and caregivers.)

Changed
25/Apr/2017
Condition

Stories

  • How to Prevent Caregiver Burnout in Dementia Care
    Neha Sinha, a clinical psychologist by training shares her views on caregiving in Dementia, the effects of longtime caregiving on a person, how to keep his balance in tact and also avoid an early burnout.  ‘Caregiving often calls us to lean into love we didn’t know possible’ ~ Tia Walker Caregiving in Dementia Caring for people with dementia is in many ways more challenging than looking after somebody with a physical condition. This is because when you look after someone with dementia…
  • Handling Agitation in Dementia
    Neha Sinha, a clinical psychologist by training and dementia specialist, is the co-founder and CEO of Epoch Eldercare.  She shares her knowledge on agitiation in Dementia, the triggers of agitation and how best to handle it. What is Dementia in everyday life? Visualise a situation where you suddenly open your eyes and can’t make any sense of where you are or what you are doing there? Your surroundings seem unfamiliar to you...and there is a person in your room, giving you all sorts of…
  • Try Group Drumming for a Healthy Lifestyle
    The Rhythm Wellness initiative of Global ArtsCare in Singapore conducts group drumming session for the elderly to reduce loneliness, increase energy levels and morale and provide recreational and wellness activities. Tell us about Global ArtsCare and the work it does? At GlobalArtsCare we aim to transform lives-in-care through creative arts engagement. Our activities aim to make creative arts engagement accessible to as many people in care facilities. In the process, residents, care-givers, and…
  • How can Dementia Friends help?
    The Dementia Friends Program of SCARF (Schizophrenia Research Foundation) is a unique initiative aimed to create dementia friendly community in Chennai. Hear from the young volunteers themselves how it not only helps engage persons with dementia but also makes the youth aware and empathetic. Around 4.5 million people in India are suffering from dementia and the figure is likely to double by 2030, according to health experts. Despite the large numbers, only 1 out of 10 people with dementia in…
  • Life Flows on Through all the Tumult
    Vishaal Nityanand, a young filmmaker, ploughed his own money and full commitment to make Life Flows On, a movie on people with dementia and their caregivers, in order to raise awareness and understanding about the condition that he feels is callously neglected and overlooked in India. Read his interview. You have written and directed the film ‘Life Flows On’ that is dedicated to people with dementia and caregivers. Could you tell us a little about it? Life Flows On deals with three dementia…
  • Safety Measures For People With Dementia
    The best way to help a person with dementia is to ensure that they maintain control over as many areas of their life as possible and encourage them to maximise their remaining abilities, recommends Amrita Patil–Pimpale, a dementia care consultant. During my recent home visit to Mr. Dsouza (name changed) who is living with Dementia, I noticed a bottle of floor cleaner kept on his dining table. Usually this isn’t matter of concern. However in Mr. Dsouza’s case, he is in mid-stage of dementia, has…
  • ‘Caring for my wife is my only job’
    Dr (Prof) Nandi, 83 is a full time caregiver for his wife, Dr Gita Nandi, who has been diagnosed with Alzheimer’s. He shares his experience of a caregiver in this personal account. My wife is a doctor herself and she has been suffering from Alzheimer’s for the last six and a half years. The first symptoms were that she started having breathing trouble. I admitted her to the Railway Hospital. She used to be a senior doctor with the Railways and we also used to live in the Railway quarters in…
  • Tips on Staying Active & Complementary Therapies for people with Dementia
    There are a lot of things you can do especially in the early to middle stages to manage and delay the progression of dementia. Read on to find out more: Staying Active Finding activities that the person with AD can do and is interested in can be a challenge. Building on current skills generally works better than trying to teach something new.  Don't expect too much. Simple activities are best, especially when they use current abilities. Help the person get started on an activity. Break…
  • Caregiver Tips on Bathing, Dressing and Eating for a person with Dementia
    Sometimes the Daily activties like Bathing, Dressing and Eating can be a huge challenge for caregivers looking after a person with dementia. Here are a few useful tips. Let us know which one you find helpful. Tips for Bathing For some people bath time can be a frightening, confusing experience.  Plan the bath or shower for the time of day when the person is most calm and agreeable. Be consistent. Try to develop a routine. Tell the person what you are going to do, step by step, and allow…
  • Stanford Medicine: Arts and Humanities in Medicine
    The world of medicine is beginning to increasingly acknowledge the potential of expressive arts therapies such as art, music, drama, dance/movement, poetry/creative writing and play in the context of healing, treatment, psychotherapy, counselling and rehabilitation. Activities such as drawing, drumming, creative movement and play acting allow individuals of all ages to express deep-seated thoughts and feelings, improve physical, mental and emotional well-being and boost self-esteem and…