Understanding Dementia

Talking and writing about health related experiences is still not common in Asia.  This International Women’s Day, we reach out to three dynamic women who share their experience as patient or caregiver to understand their motivations. We kick off the first in a three-part series with Sangeeta Murthi Sahgal.  1)    Your father had Parkinson's Disease. Why did you choose to talk and share about your father's condition? When I took over my father's care-giving, I researched the…

Ms. Malavika M. Nair and Ms. Aakriti Vig under the guidance of DEMCARES, SCARF India write about the stressors that lead to challenging behaviours of Dementia and how to handle them.   Dementia is recognized as a global health concern. It is estimated that nearly 47.5 million of the global population is diagnosed with dementia (WHO, 2017). It is a neurocognitive disorder, which is primarily prevalent in the elderly population. The symptoms include significant memory loss with…

Brain exercises are among the most effective non-medical approaches to delay the onset of dementia and can be enjoyable for the patient and more likely to be complied, emphasises Sabah Thaver, senior physical therapist (neurorehabilitation) at Nanavati Hospital. Mark Twain once famously said, “Out of all the things I have lost, I miss my mind the most.” This line at first sounds humorous, but it turns out to be the bitter truth of the lives of those living with conditions like Dementia. People…

All dementia is not about memory loss. Neha Sinha, a clinical psychologist by training and dementia specialist, discusses the symptoms as well as ways of handling Fronto-temporal Dementia (FTD), a lesser known form of dementia. Fronto-temporal dementia (FTD) is one of the lesser-known types of dementia and equally or more challenging to handle than the others. It accounts for about 5-10% of cases of dementia (Source: ARDSI Dementia India report 2010) Named after the famous physician Arnold Pick…

Mala Sen had caregiving thrust upon her when her nonagenarian mother-in-law with full blown Alzheimer’s appeared in her life. She faced the challenges head on and says that she has emerged a stronger person in the process. A personal account: A caregiver, all of a sudden I became a care giver by default.... My husband's mother was developing Alzheimer’s which none of her 3 children were aware of .. A simple reason ..We have an insensitive approach to aging! When she would repeat anything…

Elly Park, Assistant Clinical Lecturer in Occupational Therapy, University of Alberta talks about the findings from a multi-site study into dementia and use of digital storytelling with memories I was sitting on the sofa across from Christine in her home. She offered me a cup of coffee. Each time I visited, she sat in the same spot — the place where she felt most comfortable and safe. She had shared stories from the past and decided to talk about the birth of her daughters, grandchildren…

Saadiya Hurzuk is a Centre Manager and Clinical Psychologist at ARDSI Hyderabad. She shares her views on why it is important to have an early diagnosis in dementia treatment. Over a period of time dementia has become one of the frightening epidemics in the global health scenario. With social stigma attached to the disorder, it is kept hidden. People find it difficult to accept and understand the problems they are facing with memory and cognition that is affecting them daily. Most of the time…

Vimal Balachander talks about the difficult days of caring for her mother-in-law during the latter’s steady decline with Alzheimer’s Disease. ‘Will I become like my mother?’ my mother-in-law asked me five years ago, in a shaking voice, ‘I don’t want that, I know what that is, sitting in a corner quietly’. This was in 2012. My mother-in-law, then 74, hither-to-independent business woman, had recently moved into our apartment, just fifty feet away from her beautiful seaside house. Savithri…

Neha Sinha, a clinical psychologist by profession talks about how emotional connect is very important for people with dementia. Even if they have loss of actual memory, they remain receptive to emotions as well as to the body language of people around them. Each individual is unique and so are his or her experiences, memories and feelings. There is a general apathy towards dementia especially when it comes to remembering the person they are, the rich history they hold. People with dementia…

Swapna Kishore sheds light on the rarely talked about challenges of home care for late stage dementia, especially due to low and infrequent communication and multiple medical problems.  She brings together her interviews with Dr. Soumya Hegde, a Bangalore-based Consultant Geriatric Psychiatrist who provides practical solutions. Most discussions around dementia are about memory problems, confusion, wandering, withdrawal, aggression, etc. We rarely talk about later stages, when the loved one…