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  • Cancer

    This Community will address questions and discussions on all forms of Cancer. We will support each other - patients and caregivers in their journey  

  • Thumbnail based on world cancer day theme United by Unique and the text How Cancer Shapes Lives and Perspectives
    Cancer Turned My Life Upside Down
    On World Cancer Day, our contributors shared how cancer has changed their perspective and outlook towards life, irrespective of whether it turned their lives upside down or not.  You can also read their detailed cancer journeys by clicking on their names.  Sai Narayana Karanam, Lung Cancer How has cancer turned your life upside down? Cancer didn’t just challenge my health—it changed the way I see every single day. One moment I was living normally, and the next I was facing scans,…
  • Profile picture of a woman in a black jacket and orange shirt and the text overhead Cancer Turned My World Upside Down
    Cancer Disrupted Everything But Taught Me Power of Hope
    World Cancer Day announced the Upside Down Challenge. Anita Nanda reflects on how cancer has changed her forever. And what gives her hope and keeps her resilient. How has cancer turned your life upside down? Cancer diagnosis is a life changing event in anyone’s life. Life is totally turned upside down. The treatment is long…what’s more it is not predictable. Everyday is a new day with different experiences. Cancer turned my life upside down in ways I never imagined. Before it entered my world,…
  • Stock pic of an Indian woman and an inset of a stoma bag and text overlay Living well with a stoma bag
    A Stoma Bag Should Not Stop You From Living Well
    Binny*, a 57 year old woman from Mumbai shares her experience of living with a stoma bag after a diagnosis of Colorectal Cancer and the lifestyle changes she has to make to live life to the fullest. And practical and useful tips on travel, diet and clothing when living with a stoma.  Please tell us a bit about your condition. Can you describe it? I am a colorectal cancer survivor. I have had colostomy surgery (called Abdominoperineal Resection) in which a part of my large intestine (colon…
  • Pic of the podcast episode Unpacking Geriatric Cancer Care with the host Aparna Mittal and the guest Dr Vanita Noronha
    बुजुर्गों में कैंसर उपचार के लिए वृद्धावस्था संबंधी विशेष मूल्यांकन का महत्व
    प्रमुख मेडिकल ऑन्कोलॉजिस्ट और शोधकर्ता डॉ. वनिता नोरोन्हा ने पेशेंट्सएंगेज पॉडकास्ट पर बुजुर्गों में कैंसर देखभाल के लिए आवश्यक विशेष वृद्धावस्था संबंधी मूल्यांकन के बारे में चर्चा की, और बताया कि ऐसे मूल्यांकन से उपचार को व्यक्तिगत बनाने में कैसे मदद मिल सकती है। जानकारी के लिए पढ़ें पॉडकास्ट पर आधारित यह लेख: जेरीऐट्रिक ऑन्कोलॉजी या जेरीऐट्रिक कैंसर केयर (बुजुर्गों के कैंसर उपचार और देखभाल के क्षेत्र) क्या हैं? जेरीऐट्रिक ऑन्कोलॉजी या जेरीऐट्रिक कैंसर केयर (बुजुर्गों के कैंसर उपचार और देखभाल…
  • Pic of the podcast episode Unpacking Geriatric Cancer Care with the host Aparna Mittal and the guest Dr Vanita Noronha
    Unpacking Geriatric Cancer Treatment in India
    Dr Vanita Noronha, a leading medical oncologist and researcher spoke on the PatientsEngage Podcast on the value of Geriatric Cancer Care and how Geriatric Assessment can help personalize treatment for older persons. What is Geriatric Oncology or Geriatric Cancer Care? Given that cancer is predominantly considered a disease of aging, why do we need a special focus on geriatric cancer care?  Geriatric means older and Geriatric oncology means Cancer in older people. There is a greater chance…
  • Poster announcing PARC Cohort 2025
    Announcing the PARC 2025 cohort!
    Are you passionate about improving access to research, fostering better care and creating a positive impact on clinical trials and guidelines for cancer? Apply to PARC (Patient Advocate Research and Clinical Guidelines) Training Program) 2025 now. What is the PARC (Patient Advocate Research and Clinical Guidelines) Training Program The National Cancer Grid and PatientsEngage are collaborating to build a team of Patient Advocates to work towards advancing patient and public involvement in…
  • A young woman, rare sarcoma rhabdomyosarcoma survivor in an outdoor setting and the text overlay I now support lung cancer patients
    A Rare Cancer Survivor Now Supports Lung Cancer Patients
    Suchismita Das was an Engineering undergraduate when the diagnosis of a rare soft tissue sarcoma (rhabdomyosarcoma, a rare cancer) in the lung, hit her like a bolt from the blue and turned her world upside down. She fought it out bravely and now she is helping others who going through lung cancer. I am Suchismita Das, 28 years old, and a rare soft tissue sarcoma survivor. My life was just like any other girl studying engineering till I started facing health issues. What were your early symptoms…
  • Stock pic of a woman's silhouette and the text Positive in the face of Gastro Intestinal Stromal Tumour
    Remaining Positive In The Face Of GIST
    Anita Sharma*, 41, is a regular, busy professional in Delhi, who was suddenly diagnosed with GIST (Gastrointestinal Stromal Tumor). She shares her experience with us. Please tell us about the condition you are dealing with I was diagnosed with GIST (Gastrointestinal Stromal Tumor). I also underwent surgery. But I’m better now after regular checkups.   GIST is a rare cancer that develops in the digestive system. GISTs arise from special cells in the GI tract wall called interstitial cells…
  • Picture of Mehul Vyas with dark glasses iin an outdoor setting and a pet on the table in the foreground. Text overlay My Tobacco Habit Had Left Me Speechless
    My Tobacco Habit Left Me Speechless
    Mehul Vyas, 51, a stage 4 throat cancer survivor, talks about his regrets of consuming cigarettes and gutka which ultimately led to throat cancer and destroyed one of his vocal cords. He and his wife Anagha share their experience of dealing with cancer in a new country. He is now a passionate anti-tobacco advocate who talks to children in schools on the ills and dangers of tobacco consumption. Please tell us a bit about your condition. Stage 4 laryngeal cancer in my right vocal cord. What were…
  • Picture of a man in front of trees with the text Living 26 years with Medullary Thyroid Cancer on a blue strip
    Living 26 Years With Recurrent Medullary Thyroid Carcinoma (MTC)
    The Japanese art of Kintsugi is not only about repairing valuable broken ceramics with lacquer and gold, it celebrates the history of the breakage and repair which increases the value of the piece manifold. Nilanjan Bandyopadhyay, a great admirer of Japanese culture, celebrates the greatest accident of his life – Thyroid Cancer, the challenges of which he has endured over 26 years and counting. A special officer of Rabindra-Bhavana, Visva Bharati, Nilanjan is a respected scholar, writer, and…
Hello, My name is Hiba Siddiqui and I am currently working as a Senior Psycho-oncologist at Max Institute of Cancer Care at Max Healthcare (Delhi-NCR, India). I have been practicing as a psychologist, with a specialization in Psycho-oncology for 12…
My name is Sanjeev k & requesting you to review & suggest the Biospy report of my Mother who has lung cancer Your expertise would be a great benefit for us to get the best suitable treatment for my mother. 1. Chemotharapy 2. Immuniotherapy 3…
Hello! My name is Sarayu Narayan, and I am a student of Master's of Applied Psychology (Clinical and Counselling Practice) at the Tata Institute of Social Sciences, Mumbai. As part of my curriculum, I am conducting a study on Resilience, Body image…
Losing a mother is the deepest sorrows a heart can know. Nothing on this earth can ever replace the love and care of a parent. It was that fateful day 8th Nov,2020 that within minutes our lives were shattered and everything changed forever. Mom was…
  82 year old elderly woman diagnosed with advanced lung cancer. Lives with elderly husband in Bangalore. Need for good nurse and home set up for palliative care. Looking for options other than Portea.  Resources suggested by Pallium India…
Background: Although advancements in systemic therapy have improved the outlook for pancreatic adenocarcinoma, it is not known if patients get access to these therapies. We aimed to examine the patterns and factors associated with access to…
Here are a few things wrong with a mainstream media article like this  https://health.economictimes.indiatimes.com/news/diagnostics/can-neem-h… It confuses prevention with cure It mentions various studies with no link to any study Is neem a…
What can the doctor, a friend or a family member say to help the cancer patient feel better? What would you like to hear?    
This blog on the cancer research UK site addresses the concern around sugar and cancer.  Does sugar cause cancer? Does sugar feed cancer cells, making them grow more aggressively? The origins of this linkage and the role of a scientist called…
An extremely heart warming story on two childhood cancer survivors falling in love and getting married https://www.nytimes.com/2018/09/07/fashion/weddings/love-not-lost-two-c…    

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