Caregiver Community

  • Caregiver Community
    2313 member(s)

    A place where Caregivers come together to share common experiences, challenges,and resources. 

    Caregivers are truly experts in patient management and can help each other because of their intensive experience in patient care at home. Caregivers can ask questions to others on this forum going through a similar caregiving experiences. They can start topics and discuss things like ways to manage daily tasks, where to find doctors, nurses, and other health services, how they manage stress, and any other topics related to caring for their loved one and for themselves. It is a great place for Caregivers to come and chat about the issues that affect them on a day to day basis and take time to focus on their own needs and health.

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  • घर में बुजुर्गों के गिरने से बचाव के लिए बदलाव करें
    बुजुर्गों में चोट लगने का प्रमुख कारण शायद उनका गिरना है। गिरने की वजह से चिकित्सा के और रीहैब (पुनर्वास) के खर्च भी बहुत ऊंचे होते हैं। इस लेख में  पोरसेलवी ए.पी., एक संज्ञानात्मक और मनोसामाजिक हस्तक्षेप विशेषज्ञ, साझा करती हैं कि घर में बुजुर्गों के गिरने से बचाव (फॉल प्रिवेंशन) के लिए कैसे बदलाव संभव हैं - जैसे कि हैण्ड-रेल लगवाना, एंटीस्किड (फिसलन विरोधी) मैट का इस्तेमाल, घर में अत्याधिक और अव्यवस्थित सामान को हटा कर घर व्यवस्थित करना, संतुलित रखने वाले मजबूत जूते पहनना, इत्यादि।…
  • Packing a bag for the hospital
    25 चीज़ें जो अस्पताल जाते समय आप अपने बैग में पैक कर सकते हैं
    पुरानी (दीर्घकालिक) बीमारी से पीड़ित लोगों को अकसर इलाज के लिए अस्पताल में कुछ दिन रहने की जरूरत पड़ती रहती है। अगर वे घर से कुछ सुविधा और आराम देने वाली वस्तुएं अपने साथ अस्पताल ले आयें तो अस्पताल में उनके दिन अधिक आराम से गुजर सकते हैं। आपात स्थिति में अगर उन्हें जल्दी में अस्पताल जाना पड़े, तो वे इन उपयोगी वस्तुओं की सूची अपने प्रियजनों को दे सकते हैं ताकि वे उन्हें घर से ला सकें। निम्नलिखित देखें मरीजों के अनुभव से संकलित ऐसी वस्तुओं की सूची जो अस्पताल में रहते समय मरीजों के लिए उपयोगी रहीं…
  • I Fear Losing Them To Covid-19 Or SMA
    Zeba Gufran has two children with Spinal Muscular Atrophy, a rare disease. She shares her fears of dealing with the challenges of SMA compounded during the Covid-19 pandemic and the safety measures the family employs.   I have two kids Erhan and Affan. Erhan is 1yr10 months old and has from SMA type1 and Affan who is nearly 4 years old and has Type 2 SMA. SMA is Spinal Muscular Atrophy. Affan was diagnosed when he 18 months old. Until 14 months he used to sit independently, crawl,…
  • Do I need to call an ambulance?
    एंबुलेंस कब बुलाएं?
    क्या आप जानते हैं कि संकट होने पर एम्बुलेंस बुलाना कब उचित होगा, और कब आप टैक्सी से या अपनी गाडी ड्राइव करके अपने लिए या प्रियजन के लिए अस्पताल जा सकते हैं? इस लेख में डॉ शीतल रावल बताती हैं कि सही विकल्प चुनने के लिए किन पहलु ओं पर ध्यान देना होगा। जब कोई मेडिकल संकट होता है, तब तुरंत उचित सहायता प्राप्त करना अत्यंत आवश्यक है! कभी-कभी लगता है कि आपात स्थिति में एम्बुलेंस बुलाने के बजाए खुद ही क्यों न तेजी से गाड़ी चला कर अस्पताल चले जाएँ?। हालाँकि यह कुछ स्थिति में बेहतर हो सकता है, पर अन्य…
  • Myths and Facts on Elder Abuse
    June 15 is World Elder Abuse Awareness Day. Today we talk about some of the common misconceptions on what constitutes abuse. According to the UN, elder abuse can be defined as “a single, or repeated act, or lack of appropriate action, occurring within any relationship where there is an expectation of trust which causes harm or distress to an older person”. It is a global social issue which affects the Health and Human Rights of millions of older persons around the world including India. Myths…
  • How To Deal With Comorbidities And Be Prepared To Re-open With Covid-19
    A handy list of resources for living with the coronavirus and managing your chronic conditions. Just look for your condition below. If you don't find what you are looking for, please leave a comment and we will get back to you.     We must live with Covid-19 pandemic for a while. For people with chronic conditions like diabetes, hypertension, chronic kidney disease, rheumatic conditions, pulmonary conditions, it is even more essential to manage these conditions better. For e.g. a…
  • Brain Health Exercises for Seniors
    Amrita Patil Pimpale, dementia care consultant, gives some valuable tips and exercises for senior citizens to stimulate the brain and sharpen mental capacities. Older adults were considered to be vulnerable to Covid-19 infection. That is why they needed to follow stricter rule of physical distancing. These unusual changes in the lifestyle of a senior citizen means that they need more deliberate, disciplined activities to strengthen their physical and mental capacities. Use it or lose it - a…
  • Mother's Day Reflections On Covid-19 Challenges
    Parul Kala handles her home, children and a changed scenario under Covid-19 with as much positivity as one can muster. She talks about what Mother’s Day 2020 means for her. The year 2020 shall be a very special year as Mother’s Days go in our memories, for a number of reasons, the most important one being of course that the entire world is experiencing an unprecedented lockdown because of the Covid 19 pandemic. I’m blessed with two children - son Dev with Down’s Syndrome is14 years old and…
  • An elderly woman in a purple dress in a green outdoor setting holding her stomach
    How Age Impacts Gut Health and Digestive Issues
    We often hear elderly people struggling with digestive issues like constipation, acid reflux, difficulty in swallowing, ulcers and more. Dr. Devendra Desai, Consultant in Gastroenterology at Hinduja Hospital, Khar explains how aging impacts gut health. An elderly person is defined as age of 65 years or above. The predicted global population above the age of 80 years is expected to be 17% by 2050. How does ageing affect our gut? Aging affects most of the gastrointestinal tract. Starting with…
  • शय्याग्रस्त रोगी के लिए 7 सामान्य स्वास्थ्य सम्बन्धी जोखिम
    शय्याग्रस्त रोगी लम्बे समय तक कोई गतिविधि नहीं कर पाते हैं। इस कारण उन्हें अनेक स्वास्थ्य जटिलताओं हो सकती हैं, जैसे कि दर्दनाक शय्या व्रण (बेडसोर), रक्त संचार  और सांस-संबंधी समस्याएँ, अवसाद और अवकुंचन (कॉनट्रैक्चर)। इसं लेख में उषा रवि ने आपके शैय्याग्रस्त प्रियजन की उचित नर्सिंग और देखभाल के लिए कुछ सुझाव दिए हैं: अगर कोई व्यक्ति बीमारी, विकलांगता या बड़ी उम्र की वजह से बिस्तर-बद्ध है तो इससे कई चुनौतियां उत्पन्न हो सकती हैं। यह बोझ पीड़ित के साथ-साथ देखभालकर्ताओं को भी महसूस होता है।…
Patient not discharged from ICU despite repeated requests
In the last couple of weeks, I have heard of two different cases in India where the hospital kept a patient in ICU on life support for weeks on end. In one case, even after the family asked for the patient to be transferred to a normal room, the…
Counsellor in Ahmedabad
Query from a caregiver Does anyone know a counsellor in Ahmedabad who can go to a patient's home. Patient has had a couple of strokes and even though there is no paralysis believes he is paralysed and does not use his limbs and keeps falling.…
Walking with quad cane assistance
Here is a question from one of our members: My father is 89. He used to walk regularly twice a day and used a simple walking cane. But now he has had a few falls. Doctor says he must use a cane with 4 legs(quad cane) but he refuses to do that. Now…
A family torn apart by illness
When treatment started failing 66 year old Siew Ching, the family became divided into different camps. Some wanted her to stay in hospital so that she could receive maximal supportive care. Others wanted her to be discharged so she could go…
My 95 year old father
My 95 year old father lives with my sister. She takes very good care of him. Normally he is fine. Can manage most daily activities with some help. But he is sometimes very paranoid about domestic helpers coming into his room and trying to harm him…
Tips for Caregivers
We found a great list of tips (in the link below) to help ease the challenges of being a caregiver and help caregivers with self-care - take a look at this list and share with us if you have ever used any of these and how! The tips include:…
Sleep - A big challenge for Caregivers
A lack of sleep or feeling tired is one of the biggest challenges that Caregivers face. Often times we have to wake up at night to check on our loved one, or we have trouble falling asleep because our mind is preoccupied. What are some of your…
How do you ask for help?
As Caregivers we often take on a lot and can get exhausted. It is important to learn how to ask for help - maybe other family members, friends, or neighbors can help take on some tasks and make life a little easier for the Caregiver. For many of us…
Restlessness in semi mobile senior
My MIL is a little bit over weight @ 94, and is able to walk only with a walker very slowly.She is addicted to watching TV whether she understands anything or not, but cannot sit for a long time. WE give her TV time, once a day for 2 hours. For…
Sharing Caregiving Duties Among Siblings or Family
I recently came across a great article that spoke about the importance of sharing caregiving duties among family or siblings. Often, the caregving duties falls upon one sibling or family member, and  this can cause resentment or…

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