Hemophilia or Haemophilia is a rare genetic blood disorder in which blood does not clot properly. It affects males more but there are females who also have hemophilia. It affects 1 in 5000 male births. Since it is an inherited condition, the best way to prevent this condition is to ensure that those with history of hemophilia go through pre-conception screening.
Hemophilia management requires a team approach. Make sure you put together the right team to support hemophilia related care.
For managing chronic pain and bleeding episodes in Hemophilia, collaboration between Hematologists, Pain specialists, Physical therapists and Mental health professionals for proper care with holistic approach. Managing joint health, preventing long term damage and addressing pain associated with bleeding episodes is crucial in this condition.
- Use of joint braces or tape to provide support and stability to painful joints, particularly during physical activity or periods of increased stress on the joint.
- Painkillers are used for pain management. However, caution is required due to the risk of bleeding.
- Brushing, flossing and regular visits to your dentist will reduce the risk that you will need dental treatment that may cause bleeding.
- Regular Physiotherapy for muscle and joint strengthening
- Emotional support and psychological support to manage Hemophilia related challenges and complications
- RICE (Rest, Ice, Compression, and Elevation) principles can be applied to reduce joint pain and swelling.
- Yoga, deep breathing exercises and meditation can be helpful in reducing stress and alleviating pain.
Changed
05/May/2024
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