Hemophilia or Haemophilia is a rare genetic blood disorder in which blood does not clot properly. It affects males more but there are females who also have hemophilia. It affects 1 in 5000 male births. Since it is an inherited condition, the best way to prevent this condition is to ensure that those with history of hemophilia go through pre-conception screening.
While Hemophilia can’t be prevented, as it is a genetic disease. However, pre-conception screening in families with history of hemophilia, early diagnosis and appropriate management can significantly improve outcomes. Here are some preventive steps to limit the frequency and severity of bleeding in Hemophilia.
- Avoid exercises, sports or activities that place excessive strain on the joints to protect joints, as any minor trauma can lead to bleeding in patients.
- Regular medical checkups and tests for monitoring health status and follow-up of prophylactic treatment are very important to avoid complications.
- Low impact exercises like swimming or cycling to improve joint flexibility without risk of bleeding.
- Use protective devices to avoid injuries such as helmets during physical activities or driving to minimize the risk of traumatic injuries.
- Consume a balanced diet with vitamin K inclusion to support overall health and clotting function in the body.
- Maintain diary or record of bleeding episodes for further precautions during travelling or in emergency to seek medical care. It will be helpful for doctor to decide treatment plan.
- Prenatal testing and carrier screening to identify disease in the fetus
- Raise awareness about the disease in society to reduce stigma and improve access to care in the community.
References
- https://www.cdc.gov/ncbddd/Hemophilia/facts.html
- https://hemaware.org/bleeding-disorders-z/royal-disease
- Image 1 source - https://www.cdc.gov/ncbddd/Hemophilia/inheritance-pattern.html
- https://my.clevelandclinic.org/health/diseases/14083-hemophilia
- https://www.hopkinsmedicine.org/health/conditions-and-diseases/hemophilia-in-children
- https://www.ihtc.org/types-of-Hemophilia
- https://www.nurseregistry.com/blog/hemophilia/
- https://www.nhs.uk/conditions/haemophilia/symptoms/
- https://www.mayoclinic.org/diseases-conditions/hemophilia/diagnosis-tre…
- https://www.rocheindia.com/solutions/focus-areas/haematology#:~:text=He….
- https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4304051/
- https://www.medlink.com/articles/hemophilia-and-other-coagulation-disorders-neurologic-aspects#:~:text=Neurologic%20complications%20in%20patients%20with,physical%20and%20psychoneurologic%20impairments%2Fdeficits.
- Image 2 source - https://activebeat.com/your-health/children/10-signs-and-symptoms-of-he…
Changed
05/May/2024
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