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Shital Bhatkar with Aarya Bhatkar, with LSD Neimann Pick Storage Disorder
You are Left out in the Cold with Rare Diseases
When a child is diagnosed with a rare disease, it is most agonising and traumatic for parents, especially because they are left alone and helpless. Shital Bhatkar, whose son Aarya succumbed to Niemann-Pick Disease, narrates her long, harrowing time…
Omkar who has Congenital Adrenal Hyperplasia (CAH) climbing a tree
He Thinks Blood Tests, Medications and Restrictions Are A Way Of Life
Deepa Kannan, who has an 8-year-old son suffering from a rare condition called Congenital Adrenal Hyperplasia (CAH), bares her heart and mind about all her family has been through in trying to cope with the disorder and also about how she is…
Divya Parashar as she looks today
It Takes A Lot Of Hard Work To Keep The Kilos Away
Dr Divya Parashar, Head of Rehabilitation Psychology, Indian Spinal Injuries Centre, New Delhi, shares about her own battle with weight issues and how her loss of the extra kilos also invited flak. This is me, 12 years ago, when we were packing to…
Pic shows Aditi sitting confidently with her vitiligo patches
Vitiligo is Nothing to be Ashamed About
Aditi Goel, 30, a budding food entrepreneur, recounts how the tough upbringing of her parents helped her come to terms with her vitiligo and how she is ready to pull the punches when faced personally or professionally with discrimination because of…
Daily Exercise and Yoga Help Me Control The Difficulties of Parkinson’s Disease
Raju PK,60 from Ernakulam, Kerala deals with Parkinson’s Disease in his own way, sticking to proper medication and exercises. He shares his hacks and tips to facilitate movement in the house. Please tell us a bit about your condition. I am suffering…
stock pic that says Behcet Syndrome and shows medical supplies
Each Appearance Of An Oral Ulcer Gives Me A Panic Attack
MHR, as she prefers to be referred to as, has been battling Behcet’s Syndrome, a rare auto-immune disease for the last 17 years. Having been through various stages of pain, depression and hopelessness, body image issues she has tried ayurveda and…
A child with cancer with his parents
Seeing Our Child Suffer Is Never Easy
Javed Khan and his wife describe their 14 year old son, Tavish’s journey with cancer - from diagnosis to treatment and the support they received from Accesslife. 5 months ago, Tavish started complaining of knee pain in his left leg. He was an avid…
a woman holding her head due to a migraine attack
I Have Made Many Sacrifices Because Of My Migraine
Migraines can disrupt your life severely, but the best way to keep them in check is to identify and eliminate the triggers, suggests Abha, 40, who has been having chronic migraines for the last 20 years and maintains a trigger diary to reduce…
The Best Tips Come From Cancer Patients and Survivors
The Best Tips Come From People Who Have Beaten Cancer
This World Cancer Day, cancer survivors and PatientsEngage contributors share advice based on their lives experience on how best to deal with a cancer diagnosis. #WeCanICan #WorldCancerDay #WCD2018 What would you tell a person who just learned of…