Joseph Afreddy from Mumbai shares the challenges faced by his 10 year old son Neel who has the rare disease MPS II, also known as Hunter's syndrome, the benefits of an early diagnosis and what keeps him awake at night.
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In our next webinar in the #LivingBetter series, Swati Agrawal will talk about her experience of living with Fibromyalgia, an invisible illness. She will talk to us about how the chronic pain affects her emotional and psycho-social health, and the…
Neetu, 42 was a software consultant before the onset of Scleroderma transformed her life and identity. She describes her lived experience with Scleroderma, her challenges and the lifestyle changes that work for her. She is now co-founder…
In 2015, Ketaki Jani, was absolutely shattered when she developed alopecia and lost her hair. Being ill at ease with wigs and caps, she decided to get her bald scalp fully tattooed. Read her bold, unconventional battle.
*Trigger warning
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Pranay Rangra, 35 from Mumbai, is a Stage 2 Non Hodgkin’s Lymphoma survivor shares the psycho-social aspects of life after cancer, how cancer has changed his life. And his future plans, including making a documentary on South Africa.
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Nishi Pulugurtha writes about the challenges of being a caregiver to an Alzheimer’s patient, her mother, and the travails that came with it.
“Let us go home,” Amma said this often. There was nothing strange about this sentence, all of us would love…
Bharathi Shiva, 44 suffers from a rare condition called Interstitial Cystitis (IC) or a Painful Bladder Syndrome (PBS) and has lived without knowing about it for two decades. But joining an IC support group has brought her immense relief in terms of…
Iftikhar Zia, together with the rest of the family, has been Zoyeb’s main support system. Zoyeb suffers from a rare neurological condition called Ataxia. Iftikhar on the journey and the accomodations required in schools, colleges to support…
It is important for caregivers to seek help and advice of mental health professionals to ease their journey of caregiving and keep the relationship strong, says Abhimanyu Argal who looks after his wife with Borderline Personality Disorder.
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