Anushree Risbood, 41 from Pune was diagnosed with Relapsing Remitting Multiple Sclerosis, and her life has not been the same since. She shares the details of her journey and how it has changed her perspective.
Please tell us about your present…
A root canal that would not stop bleeding, led to a diagnosis of Acute Myeloid Leukemia (AML). Amit Arvind Shenoy narrates his experience of navigating treatment of AML, the long term side effects and why he chose to be a patient advocate.
The…
Preeti Phad’s journey with cancer began long before she truly understood what it meant. She was diagnosed almost 30 years ago with Retinoblastoma, a form of eye cancer, at 9 years of age. The condition eventually led to the removal of one eye and…
For World Book Day, we asked parents of children with difficult illnesses if they found reading to their children helpful or if they themselves found solace in books.
Suchismita Halder, mother of Ethan who has a rare condition Alagille Syndrome and…
Rachana Vijan is a 66 year old breast cancer and heart failure survivor who chose to smile through it all. Here she shares her journey starting from early symptoms to the shocking diagnosis of heart failure and learning to proactively manage the…
Living with a rare disease presents itself with many challenges. Some are common across the rare diseases, but others are unique. Read on to find out what some of our contributors who are persons with lived experience of rare disease had to say on…
When Pritisudha’s daughter Rudranshi was born with CHD (Congenital Heart Disease), a condition with the heart’s structure which is present at birth and which can affect the normal flow of blood through the heart, her world naturally crumbled. Two…
Vibha Dhoot, 39 from Jaipur shares the journey of her son who was born with major and multiple congenital heart defects and how the family overcame the many challenges, worked through multiple surgeries and complicated treatment protocols to give…
On World Cancer Day, our contributors shared how cancer has changed their perspective and outlook towards life, irrespective of whether it turned their lives upside down or not. You can also read their detailed cancer journeys by clicking on…
