Personal Voices|PatientsEngage

Personal Voices

Choosing a Life of Independence Over A Cure For Disability

Prof Anita Ghai, a leading disability rights activist and academic reflects on her own life, her life with polio,...
Mona Balani, a young Indian woman wearing a bright red kurta and a colourful dupatta set against a colourful market background

A Strong Will And Positive Attitude to Battle Stigma of TB and HIV

Mona Balani, 43 from Delhi has had multiple rounds of TB and HIV. Motivated by her own experience of limited support...

When Going Gluten Free Is a Necessity

When Jeeva Anna George was diagnosed with Celiac disease, an uncommon digestive disorder causing inflammation of the...
Tips for Caregivers of Alzheimer's Patients

Our Best Tips From Caregivers of Persons with Alzheimer's and Dementia

World Alzheimer's Day 2018 Alzheimer’s is hard, but as we care for our loved ones, we gain experience that can help...
Mausumi, a dark haired woman on the right with her mother, a person with dementia on the left. Mother is wearing specs and  a bindi on her forehead and you can see the blue and white sari draped around her shoulders

Patience And Innovation Are The Most Important Attributes Of A Caregiver For Persons With Dementia

Mausumi Ghosh from Mumbai talks about the travails of taking care of her mother, 77 who suffers from dementia in...

"People Said My Behaviour Was Manipulative"

When R had suicidal thoughts and a feeling of hopelessness, she finally sought help and was diagnosed with severe...
Picture has Pranay a Lymphoma survivor with his sister on the left. Picture is a little blurry

Failing Is Never An Option

Pranay Rangra, 34 from Mumbai was diagnosed with Stage 2 Non Hodgkin’s Lymphoma. He shares his journey of dealing with...
Rishi Chowhan a young child with Duchenne Muscular Dystrophy and Autism on a wheelchair with his family standing behind him from Left to Right- his mother, his sister and his father. Picture shows Singapore's Merlion in the background

A Wish For A Magic Wand to Shoo Away My Son's Duchenne Muscular Dystrophy

Hitesh Chowhan, 52 from Bengaluru, shares the challenges of bringing up his son Rishi diagnosed with Autism and...
A young woman, spectacled, shoulder length hair in a red dress in the foreground and holding a glass of wine. In the background are a few tables and blurred images of 2 people in blue shirt and green tshirt pulling chairs

My Relationship with an Invisible Illness

Suzanne Sangi is a 22-year-old who was recently diagnosed with Lupus, a chronic illness, which damages many parts of...
Kabir Kumtha, a young man with autism wearing a red tshirt standing in front of a table and working with yellow and orange marigold or jhendu, his favourite flower to make torans or garlands

Torans Indicate Good Times Ahead ...And A Cuppa Tea

A chance order by a staff at his vocational centre became a business venture for Kabir Kumtha, a young man with autism...

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