Sudhir Salian, 56, now living with multiple myeloma for 5 years, had a relapse in October 2021 and is now preparing for a stem cell transplant. Read how he strongly believes in the power of positive thinking, exercise and discipline to stay buoyant…
She went through abuse, gaslighting and more but she could not walk out. Kavita (name changed on request) shares her experience, her thought process and the various approaches she tried over the years and what appears to finally be working.…
On World Lupus Day, we ask Lupus patient advocates about their experience in Lupus management and what they think of the theme this year which focusses on "Let's make Lupus visible"
Vachasamrita
1. What has been the last year like…
Anal Shah has experienced extreme pain when she lost her son to a sudden attack of fever. Living with that grief and agony has been an uphill task for her. But after five years she seems to have found some semblance of peace.
Losing your child is…
Namitha A Kumar, living with thalassemia intermedia, points out that thalassemia is more burdensome for girls and women because of additional hormonal disruptions, chronic pain and issues like amenorrhea, hypogonadism, osteopenia and osteoporosis.…
An inspiring and heart rending account of a 58-year-old man's ongoing fitness journey, despite experiencing monumental setbacks such as a near fatal accident and the loss of his teenage son in successive years. GB Dutt, former research scientist…
Annie Verghese, 53 has been fighting Sjogren’s Syndrome for 10 years now, along with a host of other issues. She talks about her difficult health journey, being a patient and a caregiver and the effect of her health on her life.
EARLY HISTORY
I was…
Head and Neck Cancer survivors often have a multitude of issues even after the treatment of cancer is over and they are in remission. We speak with Mr. Sunil Issar on dealing with facial disfigurement and strict dietary restrictions, on giving…
Devika Phukan, currently a professor in Guwahati, not only battled Sjogren’s but also the trauma caused due to lack of understanding of her condition by medical practitioners (in far flung areas) and the social taboos and ostracization by loved ones…
