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  • Cancer

    This Community will address questions and discussions on all forms of Cancer. We will support each other - patients and caregivers in their journey  

  • I Am Scared To Go Down the Path of Illness
    Author and writer Usha Jesudasan illustrates, with a parable of Chicken Little who believes the world is coming to an end, how illness related anxiety can get difficult. Here she offers some tried and tested tips that have worked for her to come out of this way of thinking. A visiting friend sneezed and coughed around me.  No, he wasn’t wearing a mask.  I was a bit cross.  I had kept myself safe through the two Covid waves and strictly followed safety measures. I live alone, and…
  • Webinar: Staying Strong With Stage 4 Lung Cancer
    Lung Cancer is often diagnosed at an advanced stage. This has a significant impact on the patient and their family. ALK+ Lung Cancer Survivor Shiba Suresh from Kochi, Kerala joins us on 14th August 3pm IST to talk about her journey of diagnosis and navigating metastatic lung cancer, the challenges she faces and what helps her stay strong. Co-moderated by Urvi Sabnis, cancer survivor and caregiver and Aparna Mittal, founder PatientsEngage On Zoom Webinar ID: 814 7175 5331 Passcode: 458173 Or you…
  • Esophageal Cancer Made Swallowing Of Even Ice Cream Hard
    When Mr. Sudhir Waghmare, 58, PhD, entrepreneur and innovator, was diagnosed with esophageal cancer he took it in his stride quite stolidly. What broke him down was the loss during chemotherapy of his luscious hair which he dearly cherished. He shares his personal narrative. My background I am an entrepreneur and innovator of a company engaged in manufacturing new born life saving devices since the last 31 years. I have a PhD degree in Neonatal Intensive care equipment. I am married to…
  • मैं कैंसर से नहीं मरूंगी
    मुंबई की 56 वर्षीय रश्मि सचदे को 15 साल पहले गैस्ट्रोइंटेस्टाइनल स्ट्रोमल ट्यूमर (जीआईएसटी) का निदान मिला था। वे कैंसर को एक पेइंग गेस्ट की तरह मानती हैं और अपनी कैंसर यात्रा को अपनी आस्था और हँसते रहने की प्रवृत्ति के सहारे संभालती हैं। 2004 की बात है।, मैंने देखा कि मेरा पेट फूलने लगा था और जब मैं सोने के लिए लेटती तो विशेष रूप से एक तरफ बहुत सख्त लगता। मुझे उस समय फूले हुए पेट के अलावा कोई अन्य स्वास्थ्य संबंधी शिकायत नहीं थी – पर पेट इतना फूला रहता कि लोग पूछने लगे कि क्या मैं गर्भवती हूं।…
  • Profile picture of Uday Kerwar Bladder cancer survivor and Ostomy India Chairperson framed in a blue background with the bladder cancer tricolour ribbon
    You Adapt To The Bladder Bag Like You Do To Eye-Glasses
    Uday Kerwar, survivor of stage 4 bladder cancer and currently Chairman of Ostomy Association of India (OAI) talks about his journey with bladder cancer, urostomy bags, its many challenges and plenty of adjustments before it becomes a part of you. Please tell us a little about yourself.  I am 62 and retired. Since 2016 I am continuously associated with Ostomy Association of India (OAI), a Charitable Trust providing rehabilitative support to people who have undergone Ostomy (life-saving…
  • Ewing Sarcoma survivor Gauri in a pink dress in the foreground and some buildings in the background
    कैंसर के बाद जिंदगी और भी खूबसूरत है
    गौरी सिंह 25 वर्ष की थीं  जब उन्हें इविंग सरकोमा का निदान मिला। अब वे 9 साल से कैंसर मुक्त हैं और इस लेख में अपनी कैंसर की यात्रा साझा करती हैं, इस उद्देश्य से कि हम जान पायें कि हँसते रहने से और परिवार के समर्थन के साथ आप कैंसर होने के बाद भी फल-फूल सकते हैं। हमें अपने बारे में कुछ बताएं। और अपने कैंसर के इतिहास के बारे में बताएं - प्रारंभिक लक्षण, निदान, उपचार। मैं आगरा में एक संयुक्त परिवार में पली-बढ़ी। इंजीनियरिंग करी, फिर एक सॉफ्टवेयर कंपनी में काम शुरू करा। करीब डेढ़ साल तक अमेरिका…
  • Webinar: Lung Cancer, Challenges and Hopes
    Lung Cancer is often diagnosed at an advanced stage. This has significant impact on the patient and their family. Journalist Ravi Prakash from Ranchi, Jharkhand talks about his journey navigating stage 4 lung cancer, the challenges he faces and how he stays positive. Mr. Ravi Prakash was diagnosed with stage-4 lung cancer, with EGFR mutation Mr Ravi Prakash speaks with Aparna Mittal, founder PatientsEngage on his journey, dealing with the side effects, navigating the difficult choices of…
  • मैं अपने मल्टीप्ल मायलोमा के बारे में चिंतित नहीं हूं
    56 साल के सुधीर सालियान को अब 5 साल से मल्टीपल मायलोमा है, और अक्टूबर 2021 में उन्हें इस का रिलैप्स हो गया था और अब वे स्टेम सेल ट्रांसप्लांट की तैयारी कर रहे हैं। इस लेख में पढ़ें कि वे भविष्य के लिए उत्साहित रहने के लिए सकारात्मक सोच, व्यायाम और अनुशासन की शक्ति का इस्तेमाल कैसे करते हैं। 2017, गर्मी का मौसम। मैं 51 साल का था। एक सुबह जब मैं अपनी रोज की दौड़ के लिए निकला, तो मुझे असाधारण रूप से थकान और सांस लेने में तकलीफ होने लगी। मुझे आधे रास्ते  रुकना पड़ा। मैं सोचने लगा कि यह क्या है…
  • Profile pic of cervical cancer survivor in a teal, white and blue frame with the logo of PatientsEngage
    We Must Alert Others About Prevention of Cervical Cancer
    Poonam Kamdar, a counseling psychologist, had stage 2 cervical cancer. Because of her traumatic journey, she now fiercely advocates for the human papillomavirus (HPV) vaccine which can help protect against cervical cancer and encourages women to speak openly about their experience. Diagnosis Which year and at what age were you diagnosed with cervical cancer? I was diagnosed with cervical cancer in the year 2015, at age 45. What were the early warning signs and symptoms that made you sense…
  • Head shot of a bespectacled woman wearing a black and red dress and red necklace
    मेरे ब्रेन ट्यूमर के निदान ने मुझे बोल्ड बना दिया
    जब बेंगलुरु की 38 वर्षीया ए चित्रा को सीज़र होने लगे, तो शुरू में उनका एपिलेप्सी (मिर्गी) के लिए इलाज किया गया, लेकिन अंततः उन्हें मैलिग्नेंट ग्लियोमा (एक प्रकार का ब्रेन ट्यूमर) का निदान मिला। वे बताती हैं कि कैसे उन्होंने डॉक्टरों, परिवार, दोस्तों और अपनी कंपनी की टीम के समर्थन से अपनी बीमारी के उपचार और भावनात्मक पीड़ा को संभाला। कृपया हमें अपनी स्थिति के बारे में कुछ बताएं मुझे एनाप्लास्टिक एस्ट्रोसाइटोमा ग्रेड 3 नामक ब्रेन ट्यूमर का निदान मिला था। यह एक दुर्लभ, मैलिग्नेंट ट्यूमर है जिसे…
Hello, My name is Hiba Siddiqui and I am currently working as a Senior Psycho-oncologist at Max Institute of Cancer Care at Max Healthcare (Delhi-NCR, India). I have been practicing as a psychologist, with a specialization in Psycho-oncology for 12…
My name is Sanjeev k & requesting you to review & suggest the Biospy report of my Mother who has lung cancer Your expertise would be a great benefit for us to get the best suitable treatment for my mother. 1. Chemotharapy 2. Immuniotherapy 3…
Hello! My name is Sarayu Narayan, and I am a student of Master's of Applied Psychology (Clinical and Counselling Practice) at the Tata Institute of Social Sciences, Mumbai. As part of my curriculum, I am conducting a study on Resilience, Body image…
Losing a mother is the deepest sorrows a heart can know. Nothing on this earth can ever replace the love and care of a parent. It was that fateful day 8th Nov,2020 that within minutes our lives were shattered and everything changed forever. Mom was…
  82 year old elderly woman diagnosed with advanced lung cancer. Lives with elderly husband in Bangalore. Need for good nurse and home set up for palliative care. Looking for options other than Portea.  Resources suggested by Pallium India…
Background: Although advancements in systemic therapy have improved the outlook for pancreatic adenocarcinoma, it is not known if patients get access to these therapies. We aimed to examine the patterns and factors associated with access to…
Here are a few things wrong with a mainstream media article like this  https://health.economictimes.indiatimes.com/news/diagnostics/can-neem-h… It confuses prevention with cure It mentions various studies with no link to any study Is neem a…
What can the doctor, a friend or a family member say to help the cancer patient feel better? What would you like to hear?    
This blog on the cancer research UK site addresses the concern around sugar and cancer.  Does sugar cause cancer? Does sugar feed cancer cells, making them grow more aggressively? The origins of this linkage and the role of a scientist called…
An extremely heart warming story on two childhood cancer survivors falling in love and getting married https://www.nytimes.com/2018/09/07/fashion/weddings/love-not-lost-two-c…    

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