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  • Cancer

    This Community will address questions and discussions on all forms of Cancer. We will support each other - patients and caregivers in their journey  

  • Love and Support Are As Good as Medicines for Cancer
    Mrs Hsu*, age 47 has been a caregiver for 12 years to her husband Mr. Hsu, diagnosed with rare neuroendocrine cancer. Read how they both took control of his cancer journey and became a firm believer that with good knowledge and support, we can help a patient survive more than 4-6 months. I am caregiver to my husband Henry*. Some 12 years ago, he was diagnosed with a rare cancer, a pancreatic gastrinoma neuroendocrine tumour (NET).  He was 50 at that time. His symptoms started with severe…
  • A Journey Of Hope: New Directions in Cancer Care
    PatientsEngage supports a Journey of Hope, a seminar highlighting new directions in Cancer Care. Find out how new therapy areas like nuclear medicine therapy and targeted radiotherapy are useful for treating prostate, neuroendocrine and potentially other cancers. Also learn about the role of patient groups in supporting patient and caregiver journeys. Join us on Sat 5 Nov at Academia Bldg, Singapore General Hospital Campus, or via YouTube  Register here to get the links: https://…
  • After Breast Cancer: Navigating Special Needs Parenting and Financial Independence
    Breast Cancer Survivor of more than 25 years, Farida Rizwan talks about her journey of living beyond breast cancer. How she strove for financial independence and navigated the challenges of parenting of two young children including one with Cerebral Palsy and Intellectual Disability and what kept her going. "I wanted Quantity of Life rather than Quality. I had to be there for my children" Farida Rizwan is a senior curriculum developer for a Learning app, Founder & Administrator of a…
  • Colon Cancer Survivor Ramendra with family
    Positivity And Relationships Make Each Day Worth Living
    Ramendra Kumar has fought colon cancer with all its adversities, and continues to do so. His story, together with his daughter’s version, puts together the rollercoaster ride that he and family went through the last few months. He shares what keeps him going. Read the first part of his cancer journey here. Could you take us through the past few months which have been very difficult for you? I am a cancer warrior having battled 4 septic shocks, 4 major surgeries, 4 rounds of radiation, 4…
  • Stock pic of a magnifying glass over a dictionary focussing on cancer and the patientsengage logo and the purple ribbon for cancer
    Cancer Terms Explained
    When a patient is diagnosed with cancer, they and their family caregivers need to suddenly learn a new vocabulary of terms. It can be overwhelming to look at various reports and make sense of what it means. PatientsEngage has put together a glossary of various cancer related terms. Bookmark this for easy reference. If you don't find the term you are looking for leave a comment below or send us a note through contact us and we will update the content.       …
  • I Am Scared To Go Down the Path of Illness
    Author and writer Usha Jesudasan illustrates, with a parable of Chicken Little who believes the world is coming to an end, how illness related anxiety can get difficult. Here she offers some tried and tested tips that have worked for her to come out of this way of thinking. A visiting friend sneezed and coughed around me.  No, he wasn’t wearing a mask.  I was a bit cross.  I had kept myself safe through the two Covid waves and strictly followed safety measures. I live alone, and…
  • Webinar: Staying Strong With Stage 4 Lung Cancer
    Lung Cancer is often diagnosed at an advanced stage. This has a significant impact on the patient and their family. ALK+ Lung Cancer Survivor Shiba Suresh from Kochi, Kerala joins us on 14th August 3pm IST to talk about her journey of diagnosis and navigating metastatic lung cancer, the challenges she faces and what helps her stay strong. Co-moderated by Urvi Sabnis, cancer survivor and caregiver and Aparna Mittal, founder PatientsEngage On Zoom Webinar ID: 814 7175 5331 Passcode: 458173 Or you…
  • Esophageal Cancer Made Swallowing Of Even Ice Cream Hard
    When Mr. Sudhir Waghmare, 58, PhD, entrepreneur and innovator, was diagnosed with esophageal cancer he took it in his stride quite stolidly. What broke him down was the loss during chemotherapy of his luscious hair which he dearly cherished. He shares his personal narrative. My background I am an entrepreneur and innovator of a company engaged in manufacturing new born life saving devices since the last 31 years. I have a PhD degree in Neonatal Intensive care equipment. I am married to…
  • मैं कैंसर से नहीं मरूंगी
    मुंबई की 56 वर्षीय रश्मि सचदे को 15 साल पहले गैस्ट्रोइंटेस्टाइनल स्ट्रोमल ट्यूमर (जीआईएसटी) का निदान मिला था। वे कैंसर को एक पेइंग गेस्ट की तरह मानती हैं और अपनी कैंसर यात्रा को अपनी आस्था और हँसते रहने की प्रवृत्ति के सहारे संभालती हैं। 2004 की बात है।, मैंने देखा कि मेरा पेट फूलने लगा था और जब मैं सोने के लिए लेटती तो विशेष रूप से एक तरफ बहुत सख्त लगता। मुझे उस समय फूले हुए पेट के अलावा कोई अन्य स्वास्थ्य संबंधी शिकायत नहीं थी – पर पेट इतना फूला रहता कि लोग पूछने लगे कि क्या मैं गर्भवती हूं।…
  • Profile picture of Uday Kerwar Bladder cancer survivor and Ostomy India Chairperson framed in a blue background with the bladder cancer tricolour ribbon
    You Adapt To The Bladder Bag Like You Do To Eye-Glasses
    Uday Kerwar, survivor of stage 4 bladder cancer and currently Chairman of Ostomy Association of India (OAI) talks about his journey with bladder cancer, urostomy bags, its many challenges and plenty of adjustments before it becomes a part of you. Please tell us a little about yourself.  I am 62 and retired. Since 2016 I am continuously associated with Ostomy Association of India (OAI), a Charitable Trust providing rehabilitative support to people who have undergone Ostomy (life-saving…
This study compared the outcome of low-dose rate brachytherapy (LDR-BT) and image-guided intensity-modulated radiotherapy (IG-IMRT) for localized prostate cancer of different severities. With/ without External Beam RadioTherapy.  Five year…
While this is not definitive and it is a small sample size, its still a strong indicator. Its also worrying that those who chose alternatives tended to be younger women with more education and more money  https://www.nbcnews.com/health/health-…
Do you struggle to get accepted back at work? Do you struggle with little issues like going out with colleagues, work related travel, side effects of treatment, fatigue, anxiety? https://www.theguardian.com/commentisfree/2017/aug/14/dont-punish-…
My father aged 86 yrs is detected with AML. I find from net that lemon with baking soda prevents growth of cancer. Is that correct? At present he is undergoing chemo.  
Cancer brings in a lot of anxiety for the patient and for the family. What are some of the ways you coped with the anxiety?
I came upon these two articles and thought it is worth sharing them. What's been your experience? What would you recommend to people in this situation? It could be you, it could be your colleague. Do share your experience and thoughts
Whats been bothering you in the last week ? Did you have a happy event ? Would you like to share ?
This is such a difficult subject for so many mothers. Here is what Joan Lunden did ..What would you do ?  

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