Shalini Kedia, founder of Fragile X India shares her journey of learning from her own experience as a mother of child with Fragile X Syndrome, creating an organisation that builds awareness and supports many families so they do not navigate this…
Hemant, 28 from Betul, Madhya Pradesh describes his journey living with Sickle Cell Disease and how it has affected his study, his work, and his relationships. He also shares tips on managing day to day issues and seasonal changes.
When were you…
Most people never expect to hear the words "you have cancer" even once. For Vaishnavi, 51, it hit four organs! Each diagnosis affecting a different part of the body, each bringing fresh uncertainty. Yet through every surgery, treatment, and recovery…
Murlee Arya, 33, a school teacher from Sendhwa, Barwani in Madhya Pradesh has been handling his own Sickle Cell condition to the best of his abilities. He shares tips on how to stay healthy.
Please tell us about your present condition. Can you…
Shubhda Chaube recalls her journey from the early symptoms which were diagnosed as Raynaud’s phenomenon to the eventual diagnosis of Limited Systemic Sclerosis at age 47. Find out how she gained the knowledge and courage to handle this condition.…
Aishwarya Nitin Bhalerao, 26 from Mumbai was diagnosed with Sickle Cell Thalassemia at the age of 2, and has learnt to live with it, the hard way. An achiever, she is positive in spirit and fights the condition on a daily basis.
When were you…
Uma*, 73 from Delhi, is an Endometrial Cancer survivor for almost 7 years. She believes in the need to follow treatment protocols but also to stay informed through credible sources. She wishes she was given proper advice to prevent long term…
Meera Balaji, 58 from Chennai was diagnosed with polio at 7. She talks of her challenges navigating breast cancer and uterine cancer as a person with disability.
My polio background prior to cancer
At the age of seven, I got afflicted by…
Shefali*, 55 from Mumbai has lived with Relapsing-Remitting Multiple Sclerosis for 17 years. She shares her journey from diagnosis of MS to treatment and management, how she re-learnt basic skills in order to function effectively.
Please tell us a…
