Vinay Jani, from Delhi has been living with epilepsy for over 15 years and was recently declared drug resistant by his neurologist. As a result, he was advised to go for surgery. He has been living a seizure-free life for over a year now post-…
Aqsa, a 17 year old from Mumbai, shares her journey of navigating Juvenile Lupus as a young teenager, including understanding the disease and seeking the right treatment. Key learnings are accepting the side effects of medications and the importance…
Thanusree, 27 years old from Chennai has lived with a Juvenile Lupus diagnosis since 2010. She shares her experience of the challenges of getting a diagnosis and managing the emotional ups and downs of SLE.
Symptoms and Diagnosis
In 2010, during my…
Vinay Jani, 37 from Delhi has been battling epilepsy from a young age of 21. He talks of how he has tackled the condition with fortitude, specially in the face of large scale ignorance.
I have focal seizures (complex partial) in which I lose my…
Priya, an HR professional, based in Thiruvanathapuram, Kerala and mother to Divya (names changed to maintain anonymity), 9 year old with a diagnosis of Juvenile Lupus shares their experience of the complexities of this condition in a young child and…
Gulshan Pruthi, 56 from Delhi took 24 years to get a diagnosis of Vascular Parkinsonism after consulting various doctors, doing multiple tests, trying different therapies. She narrates her experience and how she copes with this rare condition.
When…
Shreya Shukla, 26 years, runs her own Digital Marketing Agency, based in Kanpur, UP and lives with a diagnosis of Juvenile Lupus. She shares her experience of the complexities of Lupus at such a young age, from delayed and wrong diagnosis to…
Hrishita Gupta, 23 years old is a teacher in Siliguri and has lived with a Juvenile Lupus diagnosis since 2014. She shares her experience of managing this complicated condition and how she copes with Systemic Lupus Erythematosus (SLE).
Diagnosis
I…
A. Alphonse Prabhu Roy, 60, was diagnosed at a young age with two chronic autoimmune disorders, Lupus and Sjogren’s Syndrome, with multiple complex symptoms, the most challenging being dry mouth and brain fog. Narrating his experience, he said both…
