Announcing the next webinar in our ‘Living Better’ series and focus at the early stages of Parkinson's Disease. In partnership with PDMDS.
This session will cover how patients dealt with their diagnosis, the various activities they engage in, the challenges posed due to their symptoms, changes in lifestyle, how it affects relationships, and perspectives in life.
We speak with persons with Parkinsons and Head of therapy & research at the PDMDS on strategies and activities that help manage…
Diana Tholoor, a Movement and Theatre trainer and Director of Plays recently worked with a cast of 50 children and young adults on the autism spectrum to mount a production of Jungle Book on stage. She shares her perspective in the second part of this interview series. 1. Why theatre? How does theatre help children and adults on the autism spectrum? Theatre is an integrated art form that produces simultaneous results through a single production. Amongst the many alternate…
Losing someone to suicide can be traumatic. Nyana Sabharwal, who lost her mother to suicide, co-founded We Hear You, a support group for those bereaved by suicide loss, as an important way to heal, cope and overcome grief. You have set up a unique and distinct peer support group for those bereaved by suicide loss. Could you tell us a little about it? ‘We Hear You’ was set up a year ago to help people who are experiencing bereavement by suicide loss to have a safe space to talk about their…
Although the right to health care of any kind has become a legal provision for the first time in India, implementing the Mental Healthcare Act (MHCA) is still challenging to all stakeholders. Sign the petition to bridge the mental health care gap. Contributed by Mariwala Health Initiative What is the Mental Health Care Gap? If one goes by global statistics, then one in four of us will at some point be affected by a mental health issue in our lifetime. India’s National Mental Health Survey (…
The patient-led Lupus Trust India is creating a holistic support network for Lupus patients in India. As they prepare for awareness campaigns for World Lupus Day, watch this space for the resources they are putting together. Contributed by Suzanne Sangi Ask any Lupus patient in India how they felt right after their diagnosis, and you’re sure to hear them say “It’s the first time I heard about Lupus” or “It felt like I was the only one”. Why? Because in India, nobody talks about this…
Sarbani Mukherjee Mallick Founder & Executive Director at Bubbles Centre for Autism in a detailed interview on the experience and learnings of putting together a full fledged stage production of Jungle Book with a cast of 50 children and young adults on the autism spectrum. Part 1 of a 2 part series. Why theatre? How does theatre help children and adults on the autism spectrum? One of the major challenges for children on the autism spectrum disorder is social skills. I use to…
Dr. Surekha Ramachandran, mother of a young woman with Down Syndrome and Chairperson of the Down Syndrome Federation of India sheds light on the myths and misconceptions about persons with Down Syndrome . And a message to all parents on World Down Syndrome Day. PatientsEngage spoke with Dr. Surekha Ramachandran, founder of Down Syndrome Federation of India. Established in the year 1984, with 6 children, DSFI today serves innumerable children not only around India, but also the Middle East…
Mr Manjit Singh, President Lysosomal Storage Disorders Support Society, shares some salient points about the rare disease and about the activities of the organisation, LSDSS. The LSDSS is a national level society with more than 400 patients as members who are represented by elected parents as office bearers, across India. The sole motive of the organisation is to spread awareness about this rare disease as also to help each other in availing of the best facilities available. What are Lysosomal…
Vijay Nallawala who has been running a peer support group for persons with Bipolar Disorder and their caregivers, talks about the upcoming Bipolar disorder conference in Mumbai and the value of peer support communities. Bipolar Disorder, previously known as manic-depressive illness, is a brain disorder that causes unusual shifts in mood, energy, activity levels, and the ability to carry out tasks. Well, that definition does not adequately bring across what a person struggling with it has…
