Jyotsna Kumar talks about her caregiving roles - as a mother of daughter with Cerebral Palsy and as a daughter. With a timely reminder on the importance to look after oneself to avoid burnout and also to increase the quality of caregiving…
Sandeep, 25 was diagnosed with Ewing Sarcoma at 12 years of age. He saw his father cry quietly in the bathroom. Nobody told him what to expect. His experience motivated him to work with cancer patients as a Patient Navigator at Cankids.…
Aditi’s Corner in Navi Mumbai is run by Aditi Verma, who has Down’s Syndrome. This is the story of how Aditi started a cafe and how she wants to expand it. The picture above is Aditi with chef Vikas Khanna.
Parent Talk: ( Aditi’s father, Amit Verma…
Pankaj Sethi, 31, a thalassemia major patient and founder member of a support group, Youth Thalassemic Alliance (YTA), shares some of the psychosocial issues that surface during puberty for a young teen with thalassemia.
That people with thalassemia…
Sunil Dutta, a writer and a poet has found that accepting death, being curious rather than fearful helps in dealing with the diagnosis and treatment of lung cancer. He finds solace in Ghalib and Zauk.
Sunil Dutta stared at a scan of his lungs.…
Urmila Prabhu, who developed vitiligo in her forties, has launched the Voice of Vitiligo, the first vitiligo support group in Mumbai, to spread awareness, build an active vitiligo community and combat the huge stigma attached to the disease.
My…
Dr. Divya Parashar, head of the Department of Rehabilitation Psychology at the Indian Spinal Injuries Centre, New Delhi, weaves in her personal experience with that of a patient to emphasise the need to talk about quality of life choices and why…
Smriti, 50 from Mumbai was diagnosed with cancer for the second time. The hospital nurse referred to her as the most cheerful patient in the ward. PatientsEngage spoke to her to find out her mantra for a positive attitude.
Please tell us a bit about…
An autism dad’s honest story of managing adoloescence and puberty with a positive attitude. Journalist Bhanu Pande shares his experience of pro-actively preparing himself and his son for growth spurts and physical urges to raise him into a…
