Navigating diagnosis and care for Rare Eye Disease is complicated and complex. It can take many years and the burden of care on the family is huge. Families also deal with many socio-economic challenges apart from the lack of effective treatment…
Sangeeta, 59, shares her experience on how integrating dance and a balanced diet effectively helped her manage blood sugar levels. She also highlights that it is important to consider which treatment suits your body, hence changing doctors should be…
After struggling for 7 years with various vague ailments, Nilesh, 32 from Degloor, Maharashtra was relieved when the diagnosis of Scleroderma came through. Through the ups and downs of this condition, he tries to navigates both personal and work…
SP shares his frustrations in trying to get palliative and empathetic care for his mother, 59 who has been diagnosed with Restless Leg Syndrome. He questions why his mother should not have access to pain management.
Back in March 2019, my father…
Rajesh Chaudhary, aged 33, is a husband and father who works as a Deputy Mamlatdar in Gujarat. He is a sickle cell warrior and does not allow his condition to limit him from achieving his goals. Diagnosed with sickle cell anemia at the age of 8, he…
31-year-old Shourabh Vittalmurthy was diagnosed with fibromatosis in 2016, and subsequently spindle cell sarcoma in 2022 and 2023. He shares his journey as a cancer survivor to show how adopting a positive mindset and staying resilient has been his…
The health of an individual goes beyond the journey of symptoms, diagnosis, treatment and recovery phase. The support and information provided by healthcare professionals and hospital/ clinics is key to helping patients and their families navigate…
Mr. Hemant Shroff, a blood donor for the last four decades has been working to create awareness about the lesser-known but crucial need for platelet donation and skin donation. He spoke to us about his journey and his efforts to bring these…
Amina Fatima Mehdi underwent a heart and double lung transplant at the age of 30. She became aware of her ASD (Atrial Septal Defect), a congenital heart defect, at the age of 3, and received her diagnosis of PAH (Pulmonary Arterial Hypertension) at…
