Rekha (name changed on request), 24 and a medical student has been living with dysautonomia since childhood and was also diagnosed with Sjogren’s Disease at the age of 21. She shares the challenges she has faced and how she advocates for herself…
Hemant Mehta, 60 from Mumbai had a heart attack in 2006 and then back to back two brain strokes in 2024. Here he details how his experience has taught him to listen to his body and be vigilant about symptoms. And how that has helped him get to the…
Madhavi Kumar pens the traumatic experience of her husband Ramendra’s sepsis soon after he was diagnosed with cancer and undergone surgery for it. Ramendra’s ileostomy procedure which was expected to be a “much, much simpler operation” but turned…
Vandana Mahajan, a palliative care counselor, was diagnosed with thyroid cancer 15 years ago. She lost both her thyroid and parathyroid glands after cancer surgeries. In discussion with PatientsEngage, she reflects on her challenging journey and how…
Kavitha*, 59 from Mumbai reiterates how appreciative she is that she went for a timely check-up. This is her story of how early detection of breast cancer through proactive screening prevented her from undergoing taxing treatment and an arduous…
Navigating diagnosis and care for Rare Eye Disease is complicated and complex. It can take many years and the burden of care on the family is huge. Families also deal with many socio-economic challenges apart from the lack of effective treatment…
Sangeeta, 59, shares her experience on how integrating dance and a balanced diet effectively helped her manage blood sugar levels. She also highlights that it is important to consider which treatment suits your body, hence changing doctors should be…
After struggling for 7 years with various vague ailments, Nilesh, 32 from Degloor, Maharashtra was relieved when the diagnosis of Scleroderma came through. Through the ups and downs of this condition, he tries to navigates both personal and work…
SP shares his frustrations in trying to get palliative and empathetic care for his mother, 59 who has been diagnosed with Restless Leg Syndrome. He questions why his mother should not have access to pain management.
Back in March 2019, my father…
