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Usha Jesudasan in a white kurta standing in front of her door with an assistive device that helps her stay mobile. PatientsEngage logo on top left and Text overlay on blue band - Making Each Day Count
Focusing On Quality Of Life Now
Usha Jesudasan, a prolific writer of deeply motivational books and articles, affected by polio, diabetes and breast cancer, started using a wheelchair recently after a very active life. On her eighth breast cancer anniversary, she builds hope from…
A woman in a fuchsia pyjama suit and text overlay of My Guillian-Barre Syndrome Recovery
A Rare Nerve Disorder Suddenly Paralysed My Legs And My Life!
Anita Mody, an active grandmother and housewife wakes up one day with suspicious pain in her legs. A week later, she is unable to walk, move or feel her legs. A rare and progressive nerve disorder called Guillian-Barre Syndrome changes her life with…
World Down Syndrome Day 2023 With us not for us with names and profile pictures of the 5 contributors
People With Down Syndrome Want More Opportunities, Inclusion
We speak to a few young adults with Down Syndrome who voice their opinion on World Down Syndrome Day 2023. The theme for 2023 ‘With Us Not For Us’ champions that people with disabilities have the right to be treated fairly and have the same…
A woman in a white shirt and black skirt standing in a wine store and text overlay Lets talk of menopause on a blue strip
Coping With Early Onset Menopause
Monica Patel, 52 from San Jose, California talks about her ordeal with early onset menopause, a history of cysts and fibroids and how she handles the complications of menopause I would like to talk about all three phases perimenopause, menopause and…
Srinivas donating blood plasma and text overlay that says Helping save lives
A Century With My Blood Plasma Donation
Srishailam Srinivas, 67, a resident of Australia, has completed 100 donations of blood plasma, donating continuously every fortnight for the last six years. He maintains that it is an endeavor to give something back to the community because plasma…
 Alpa in a pale yellow kurta and pink dupatta against a yellow and red backdrop and the overlay text of Stay Calm, Think Positive
A Positive Environment Helps In Ovarian Cancer Recovery
Alpa Amish Chedda, 45, was diagnosed with stage 3C ovarian cancer in 2019 with a relapse three years later. Here she recounts her experiences with radical surgery, new chemotherapy drugs and the importance of staying positive and hopeful. It all…
Two young sisters ALS caregives standing together with the text overlay Applied Kaizen to Caregiving
Enabling An ALS Journey Surrounded By Loved Ones
Satvinder Kaur and Sukhvinder Kaur are two sisters who took care of their mother who was diagnosed with ALS (Amyotrophic lateral sclerosis), a rare neurodegenerative disease for 11 years of which 8 long years were on a ventilator and ICU setup at…
Rushabh, a person with GNE Myopathy on a wheelchair in an outdoor setting with text overlay of Cherishing the gift of life with GNE Myopathy
Persons with disability should be considered an asset, not a liability
Says Rushabh Desai, 34, an investment adviser, who has been living with rare genetic disorder GNE Myopathy for the last 16 years. Here he shares his thoughts on the importance of being financially and emotionally independent and empowering oneself…
A family of parents holding a young child with overlay text on blue background that says My Child Has Alagille Syndrome and Congenital Heart Defect
Accept The Rare Disease Diagnosis And Educate yourself
Suchismita Haldar is a full time caregiving mom to her 3 year old son who was diagnosed with Alagille Syndrome at birth. She talks about her journey as well as the awareness campaign she conducts. At what age was your son diagnosed with Alagille…