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Submitted by PatientsEngage on 8 June 2020

A handy list of resources for living with the coronavirus and managing your chronic conditions. Just look for your condition below. If you don't find what you are looking for, please leave a comment and we will get back to you.    

We must live with Covid-19 pandemic for a while. For people with chronic conditions like diabetes, hypertension, chronic kidney disease, rheumatic conditions, pulmonary conditions, it is even more essential to manage these conditions better. For e.g. a person whose blood sugars are under control is better equipped to deal with the coronavirus infection. 

As we prepare for the easing of restrictions, we must be aware of the risks of infection associated with it and mitigate these risks by practicing safety guidelines viz. mask hygiene, regular washing and sanitisation of hands, and maintaining safe distance at all times. 

We must also recognise that we cannot delay seeking help and treatment of our chronic conditions, and seek out the doctor. The process of these has changed in some places. While some places have started OPDs, most still require that you first connect and consult with the doctor through telemedicine. If the doctor advises you to go for tests or go see the doctor in person, please go ahead and not delay diagnosis and treatment. Do not let your fear of Covid-19 risk overtake your need for timely care.

We have also compiled resources for various conditions. Click on the topics you are interested in to get a detailed understanding of your specific condition. If you have specific questions, you can ask in our discussion forums or contact us at  https://www.patientsengage.com/contact

Cancer

1. How to manage cancer treatment during Covid-19 by Dr. Vinay Deshmane, Consultant in Surgical Oncology & Breast Diseases and Medical Director and Jnt. Hon secretary of the Indian Cancer Society. Link to the webinar recording.

2.Also, here is the link to the key notes from the recording of the above webinar    

Diabetes 

1. How to live well with Diabetes during Covid-19 by Dr. Debashis Basu, Diabetes Awareness and You

2. How to manage diabetes during Covid-19 lockdown by Dr. Piya Balani Thakkar. Summary of her webinar recording

2a. How to manage diabetes during Covid-19 lockdown by Dr. Piya Balani Thakkar. Link to the webinar recording

Dementia

1. Dementia Home Care, the COVID-19 infection risk, and Lockdown/ Unlock challenges

This is a good resource to track the impact of the changes due to lockdowns and re-opening of cities and areas and how it impacts dementia care and even elder care. Useful tips for family caregivers of persons with dementia.   

 

 

 

 

 

 

 

 

 

 

      

 

Changed
13/Apr/2021

Stories

  • How A Family of 8 Got Through Covid-19
    When the lockdown was announced,  Pradnya and her family of 8 people made elaborate plans to limit movement, adopt safety measures to protect the two elderly people in the family. But despite their best efforts, one by one they started developing symptoms. Read about their ordeal and how they coped and survived Covd-19 in Mumbai.       Covid-19 has really taken over our lives, hasn’t it? It doesn’t need to though. These are really difficult times on us, and the very…
  • A woman a bladder cancer survivor in a grey hoodie sitting on a wooden swing
    My Biggest Challenge Was Getting Used to A Urinary Pouch and Stoma Bag
    When Shraddha Shah, 63 from Ahmedabad was diagnosed with bladder cancer, she was single mindedly focussed on getting through the treatment and getting better.  But the biggest challenge was yet to come. Read on to appreciate her journey and challenges.    The Diagnosis The year was 2014. I work from home as an Aromatherapist but I had started feeling listless and didn’t want to do any work. I would shrug to get out of bed every morning and generally had low mood all day. In…
  • I Had Kidney Failure, Kidney Transplant And Then Cancer
    Rahul Supekar, 42 first had a kidney failure and then cancer of the intestine. He shares his travails, the lifestyle changes he has made and his advice to other patients struggling to cope with their conditions.   I was diagnosed with chronic kidney disease in 2005 which resulted into kidney failure in 2011. I did hemodialysis for a couple of years before I was allotted a cadaver kidney in January 2013. I thought this is end of my problems but that was the beginning. One of the anti-…
  • How To Deal With Comorbidities And Be Prepared To Re-open With Covid-19
    A handy list of resources for living with the coronavirus and managing your chronic conditions. Just look for your condition below. If you don't find what you are looking for, please leave a comment and we will get back to you.     We must live with Covid-19 pandemic for a while. For people with chronic conditions like diabetes, hypertension, chronic kidney disease, rheumatic conditions, pulmonary conditions, it is even more essential to manage these conditions better. For e.g. a…
  • कैंसर का सामना कर रहे बच्चों की मदद करना
    कैंसर रोगी और उनकी देखभाल करने वालों की भावनात्मक और मनोवैज्ञानिक पीड़ा को कम करने में साइको-ऑन्कोलॉजी ने बहुत मदद की है। इस लेख में टाटा मेमोरियल अस्पताल में साइकोऑन्कोलॉजिस्ट सविता गोस्वामी ने कैंसरग्रस्त बच्चों की देखभाल में इस्तेमाल होने वाली कई तकनीकों के बारे में बात कर रही हैं। हाल ही के वर्षों में कैंसर संबंधी बाल चिकित्सा में मनोसामाजिक प्रयासों को जोड़ने पर ध्यान दिया जा रहा है।इन प्रयासों में क्या-क्या शामिल है? पिछले  दो दशकों से कैंसर से पीड़ित बच्चों, उनके परिवार वालों और…
  • How To Manage Chronic Kidney Conditions during Covid-19 Pandemic and Lockdown Extensions
    As we near the two month mark of this lockdown in India, the issues that dialysis and transplant patients face continue. Dr Rahul Kohli, Nephrologist, SPS Hospitals, Chandigarh answers patient’s questions in a live webinar held on 30th of May. To listen to the entire webinar in Hindi and English, click on the video link below. 1.   Can dialysis patients reduce their dialysis frequency? Many patients have asked if they can reduce their dialysis from 3 times a week to twice or just once…
  • Diabetes Is 24x7 Even During Covid-19
    Dr Debasis Basu, Specialist in Diabetes and Preventive Cardiology, President of DAY (Diabetes Awareness and You) and a Senior Consultant with Apollo Gleneagles Hospital, Kolkata, talks about how the ongoing Covid-19 pandemic is affecting lives of people with Diabetes and how DAY is trying to alleviate the situation. How are you helping people with Chronic diabetes during this COVID-19 crisis? By providing regular OPD services if patients can commute to our clinics. We have diligently pursued…
  • Javed Ameer a stroke survivor who talks of his rehab journey
    सेरिब्रल स्ट्रोक के बाद पुनर्वास के लिए मेरे 3 टिप्स
    जावेद अमीर बताते हैं कि कैसे सेरिब्रल स्ट्रोक के बाद सफल पुनर्वसन के तीन मंत्रों के जरिए उन्होंने खुद को संभाला। Trigger warning: Includes suicide ideation  सेरिब्रल स्ट्रोक के आप पर तत्काल प्रभाव क्या थे? मैं लकवाग्रस्त अवस्था में अपनी बेटियों के सहारे घर लौटा था और लगभग 80 प्रतिशत अंधा था -केवल छाया-आकृति देख पा रहा था! चमत्कारिक ढंग से, एक दिन जब मैं बालकनी में खड़ा था, तभी अचानक मेरी पूरी दृष्टि लौट आई। पूरी दृष्टि बस अचानक आ गई जैसे किसी ने विंड स्क्रीन को बिल्कुल साफ कर दिया हो।…
  • टीयर 2 शहरों में भी स्तन कैंसर का सही उपचार उपलब्ध है
    लखनऊ के किंग जॉर्ज मेडिकल विश्वविद्यालय के एंडोक्राइन सर्जरी विभाग के प्रमुखएवं प्रोफेसर डॉ. आनंद मिश्राने लखनऊ में स्तन कैंसर के बारे में जागरूकता फैलाने के लिए स्तन कैंसर के सरवाइवर के लिए एक रैंप वॉक का आयोजन किया था जिसमें पुरूष भी शामिल थे। इस इंटरव्यू में पढ़ें इस रैंप वॉक के बारे में और भविष्य की योजनाओं के बारे में उनके विचार। कृपया स्तन कैंसर के मरीजों के संदर्भ में अपनी यात्रा के बारे में बताएं। स्तन कैंसर पर मैं बहुत सालों से काम कर रहा हूं। यह सफ़र तब शुरू हुआ जब मैं लखनऊ के संजय…
  • Managing stroke dementia parkinsons migraine and other neuro conditions - interview with neurologist Dr Wadia
    Webinar: How To Manage Neurological Conditions During Covid-19 Pandemic
    Dr Wadia helps patients with Neurological Conditions and their primary family caregivers navigate this Covid-19 lockdown period with expert advice on managing emergencies and complications. Click on the video link below to view the webinar recording.  Let’s discuss the major challenges patients may face during this COVID pandemic: Identification and management of neurological emergencies, so you know when to avoid unnecessary trips to the hospital. Emergency scenarios will include Stroke…