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Submitted by PatientsEngage on 8 June 2020

A handy list of resources for living with the coronavirus and managing your chronic conditions. Just look for your condition below. If you don't find what you are looking for, please leave a comment and we will get back to you.    

We must live with Covid-19 pandemic for a while. For people with chronic conditions like diabetes, hypertension, chronic kidney disease, rheumatic conditions, pulmonary conditions, it is even more essential to manage these conditions better. For e.g. a person whose blood sugars are under control is better equipped to deal with the coronavirus infection. 

As we prepare for the easing of restrictions, we must be aware of the risks of infection associated with it and mitigate these risks by practicing safety guidelines viz. mask hygiene, regular washing and sanitisation of hands, and maintaining safe distance at all times. 

We must also recognise that we cannot delay seeking help and treatment of our chronic conditions, and seek out the doctor. The process of these has changed in some places. While some places have started OPDs, most still require that you first connect and consult with the doctor through telemedicine. If the doctor advises you to go for tests or go see the doctor in person, please go ahead and not delay diagnosis and treatment. Do not let your fear of Covid-19 risk overtake your need for timely care.

We have also compiled resources for various conditions. Click on the topics you are interested in to get a detailed understanding of your specific condition. If you have specific questions, you can ask in our discussion forums or contact us at  https://www.patientsengage.com/contact

Cancer

1. How to manage cancer treatment during Covid-19 by Dr. Vinay Deshmane, Consultant in Surgical Oncology & Breast Diseases and Medical Director and Jnt. Hon secretary of the Indian Cancer Society. Link to the webinar recording.

2.Also, here is the link to the key notes from the recording of the above webinar    

Diabetes 

1. How to live well with Diabetes during Covid-19 by Dr. Debashis Basu, Diabetes Awareness and You

2. How to manage diabetes during Covid-19 lockdown by Dr. Piya Balani Thakkar. Summary of her webinar recording

2a. How to manage diabetes during Covid-19 lockdown by Dr. Piya Balani Thakkar. Link to the webinar recording

Dementia

1. Dementia Home Care, the COVID-19 infection risk, and Lockdown/ Unlock challenges

This is a good resource to track the impact of the changes due to lockdowns and re-opening of cities and areas and how it impacts dementia care and even elder care. Useful tips for family caregivers of persons with dementia.   

 

 

 

 

 

 

 

 

 

 

      

 

Changed
13/Apr/2021

Stories

  • Webinar Series: How Can Kidney Patients Stay Safe And Well During Covid-19
    A series of webinars in 10 languages in collaboration with Kidney Warriors Foundation. We will speak with Nephrologists and Transplant Surgeons and share experiences of empowered kidney patients Sessions planned are 15th April 4pm IST - English Dr. Ashish Sharma, Head, Dept of Renal Transplant Surgery , PGI Chandigarh and Dr. Dinesh Khullar, Chairman, Nephrology and Renal Transplant Medicine , Max Super Speciality Hospital, Saket For the session in English on 15th April 4pm Please click…
  • 9 Tips For Pregnant Women To Ensure Good Sugar Control During Covid-19 Lockdown
    Dr. Uma Ram, Director and OBGYN Seethapathy clinic and Hospital, Chennai shares tips for pregnant women to follow to ensure good sugar control, especially in times of Covid-19 lockdown which has restricted movement and is stressful. One in five pregnant women we see have gestational diabetes or high sugars in pregnancy. A lock down can cause problems for them because they may not be able to exercise, get enough veggies or access blood tests. Here are a few tips to ensure good sugar control…
  • 10 Tips on Coping Effectively with Kidney Disease
    An interesting and informative Webinar in collaboration with Kidney Warriors Foundation on ‘Living Better with Kidney Disease’ covered an entire gamut of issues ranging from best dietary choices to overcoming anxiety during dialysis. We bring you excerpts in an easy Q&A format gathered from responses of panelists. What are the main diet restrictions for a patient with kidney disease? Diet accounts for 50 per cent of any kidney failure patient, whether it is a dialysis or kidney transplant…
  • "I Will Not Let Stroke Disable Me"
    Two years back, Andrew Hyde suffered a massive stroke and was completely paralysed on one side. But, with phenomenal will power and determination, he got back on his feet and returned to a demanding job. Read his inspirational and life-altering recovery. Looking back, I should have seen it coming. I used to work in the oil rig in Kakinada(Andhra Pradesh). The job involved a great deal of physical labour and mental challenges. Sometimes we had to work for 48 hours without a break. My lifestyle…
  • 12 Tips On Handling Home Quarantine and Lockdown
    As we move into varying degrees of home quarantine, stay home setting and lockdown, Shital Raval compiles a list of tips for handling this situation. As psychotherapist H'vovi Bhagwagar said in the webinar (video link below), its important to start with Acceptance of the situation.  The word “quarantine” first came into place during the Plague epidemic in Italy. But to be clear, quarantine and isolation are two different and separate things. Quarantine means confinement of individuals who…
  • Rare Kidney Disease Primary Hyperoxaluria
    My Journey With Kidney Disease Has Been Life Changing
    Shruti Mukundan is a patient of end stage kidney disease. Here, she chronicles her journey from age 7 to now - dealing with kidney stones, kidney transplant and a more permanent, needle-free dialysis. And shares her dream.  I was just 7 years when I was first detected with the kidney problem. I used to get a burning sensation in my urine. Like all children of that age, I just wanted to play with my friends and not be bothered about anything. When an x-ray was done, it showed some stones in…
  • A young woman Shweta Chawre in a black sweater and jeans looking back at the camera as she walks away
    बचपन में हुए कैंसर से निपटने की ताकत मुझे प्यार, साहस और कार्टून बनाने से मिली!
    एनिमेटर और ग्राफिक डिजाइनर श्वेता चावड़े को किशोरावस्था में ओस्टियोसारकोमा कैंसर स्टेज 2 का निदान मिला। यह एक ख़तरनाक आक्रामक किस्म का हड्डी का कैंसर है। श्वेता अपने जीवन के उस दौर को याद करते हुए दस साल से कैंसर मुक्त होने का कृतज्ञता और आशावादी भाव से जश्न मना रहीं हैं। सन् 2008 की गर्मियों के दिनों की बात है। मैं 15 साल की थी और मैंने अभी-अभी एसएससी बोर्ड की परीक्षाएं पूरी की थीं। एक दिन मेरे घुटने में मामूली सा दर्द होने लगा -- ऐसा कुछ नहीं था जिससे मुझे लगे कि यह किसी भी तरह की बड़ी बीमारी…
  • When Should We Start Stroke Rehabilitation and Other Common Questions
    Rehabilitation is essential and critical to improved quality of life and recovery for a stroke patient. Experienced Physiotherapists Nicole D’souza and  Kshitija Ghole from the Neurology Foundation address some of the common questions on stroke rehabilitation. 1.   What is the aim of stroke rehabilitation? The aim of Stroke rehabilitation is to help those affected to relearn essential skills lost due to damage to the brain. These could range from re-learning how to walk…
  • Dealing With The Emotional Aspect Of Diabetes Is The Most Difficult
    Vedashree, a 23 year old from India was diagnosed with Type 2 Diabetes at the age of 15. It changed her life completely and it took her time and effort to deal with the emotional aspects, the guilt and self pity. Read her journey of acceptance and moving forward. How would you like to introduce yourself? I am a 23 early jobber living with my parents and my grandmother with dreams and aspirations to study far away from home! Please tell us a bit about your condition - when were you diagnosed,…
  • कार्डियाक रिहैब से मुझे फिर से अपना जीवन जीने में मदद मिली
    ह्रदय की गति का रुक जाना, वॉल्व का रिप्लेसमेंट या हृदय की सर्जरी के बाद हृद्य को सुदृढ़ करने के लिए कार्डियाक रिहैबिलीटेशन अत्यंत लाभकारी और जीवन को बदल देने वाली प्रकिया है। 71 वर्षीय श्रीकांत शाह अपने कार्डियाक रिहैबिलीटेशन कार्यक्रम के अनुभव को याद करते हैं कि कैसे वे अब सीढ़ियां चढ़ जाते हैं और उनकी सांस भी नहीं फूलती है। मैं कई सालों से हृदय रोगी हूं और मेरे परिवार में हृदयरोग पहले से चलता आ रहा है। हाल ही में दिल का दौरा पड़ने के बाद मेरी बाईपास सर्जरी हुई और एऑर्टिक वॉल्व बदलना पड़ा।…