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Submitted by PatientsEngage on 8 June 2020

A handy list of resources for living with the coronavirus and managing your chronic conditions. Just look for your condition below. If you don't find what you are looking for, please leave a comment and we will get back to you.    

We must live with Covid-19 pandemic for a while. For people with chronic conditions like diabetes, hypertension, chronic kidney disease, rheumatic conditions, pulmonary conditions, it is even more essential to manage these conditions better. For e.g. a person whose blood sugars are under control is better equipped to deal with the coronavirus infection. 

As we prepare for the easing of restrictions, we must be aware of the risks of infection associated with it and mitigate these risks by practicing safety guidelines viz. mask hygiene, regular washing and sanitisation of hands, and maintaining safe distance at all times. 

We must also recognise that we cannot delay seeking help and treatment of our chronic conditions, and seek out the doctor. The process of these has changed in some places. While some places have started OPDs, most still require that you first connect and consult with the doctor through telemedicine. If the doctor advises you to go for tests or go see the doctor in person, please go ahead and not delay diagnosis and treatment. Do not let your fear of Covid-19 risk overtake your need for timely care.

We have also compiled resources for various conditions. Click on the topics you are interested in to get a detailed understanding of your specific condition. If you have specific questions, you can ask in our discussion forums or contact us at  https://www.patientsengage.com/contact

Cancer

1. How to manage cancer treatment during Covid-19 by Dr. Vinay Deshmane, Consultant in Surgical Oncology & Breast Diseases and Medical Director and Jnt. Hon secretary of the Indian Cancer Society. Link to the webinar recording.

2.Also, here is the link to the key notes from the recording of the above webinar    

Diabetes 

1. How to live well with Diabetes during Covid-19 by Dr. Debashis Basu, Diabetes Awareness and You

2. How to manage diabetes during Covid-19 lockdown by Dr. Piya Balani Thakkar. Summary of her webinar recording

2a. How to manage diabetes during Covid-19 lockdown by Dr. Piya Balani Thakkar. Link to the webinar recording

Dementia

1. Dementia Home Care, the COVID-19 infection risk, and Lockdown/ Unlock challenges

This is a good resource to track the impact of the changes due to lockdowns and re-opening of cities and areas and how it impacts dementia care and even elder care. Useful tips for family caregivers of persons with dementia.   

 

 

 

 

 

 

 

 

 

 

      

 

Changed
13/Apr/2021

Stories

  • Need for Holistic Management of Cancer Pain
    Cancer pain can be treated and quality of life in a cancer patient can be enhanced by appropriate medications, emphasise Dr Mary Abraham, Pain & Palliative Care Physician, and Dr Vandana V Prakash, Clinical Psychologist. Despite increased attention to cancer pain, it still continues to be a major issue with cancer patients and survivors. Why is it so? There are many reasons why cancer pain is still a major issue with cancer patients and survivors. Firstly, there is a misconception and fear…
  • After Cancer I Started Concentrating on the NOW
    Pranay Rangra, 35 from Mumbai, is a Stage 2 Non Hodgkin’s Lymphoma survivor shares the psycho-social aspects of life after cancer, how cancer has changed his life. And his future plans, including making a documentary on South Africa.  We spoke to Pranay Rangra on a wide range of topics during the webinar Living Better After Cancer: Adapting to the New Reality. Here are some of the points we spoke about.  How did you deal with work colleagues and friends visiting I was very clear…
  • Diet Changes That Helped Them Manage Chronic Conditions
    Diet changes are an integral part of management of many chronic conditions. Here are real life experiences of eight women who incorporated diet and nutrition changes in their disease management regimen.  Celiac Disease When Jeeva Anna George was diagnosed with Celiac disease, an uncommon digestive disorder causing inflammation of the small intestine, her whole life began revolving around food. Here she talks at length about her personal journey and how she learnt the hard way to control…
  • A picture of a tree taken by a person with  visual impairment
    Photography For Therapy And Self Esteem
    On World Photography Day, we share how photography has provided therapeutic benefit to cancer patients of all ages, helped increased self esteem and self confidence and stimulated emotions and intellect of the visually impaired.  Geetha Paniker, a breast cancer survivor, shares her views on how various forms of creating art, and even photography, can heal both the mind and the body. I truly believe that photography is an incredibly powerful therapy to heal oneself. It is a passion that…
  • A selfie pic of a young woman in a black and red checked shirt and a camera bag strap visible around her neck
    "I Am Hopeful Of A Cure For This Rare Tumor"
    Rima Roy is a young woman of 22 and suffers from a rare condition of Giant Cell Tumors in the Sacram. She shares the emotional toll the diagnosis took on her and how she has come to terms with this rare condition. Describe yourself, Rima I am a warrior in the battlefield of rare disease since I was 19 When were you diagnosed? 19/04/2016. X-ray of the Lumbo- Sacral Spines AP/ LAT views revealed Transitional vertibrae: D12 having rudimentary ribs & L5 sacralized. Then on 14/03/2018 the…
  • "Stress And Hypertension Are The Biggest Enemies"
    Atul Garg*, 31 has been battling Type I Diabetes for last 8 years and has understood how important it is to lead a disciplined life to be able to keep the diabetes in check.  Please tell us a bit about your condition I am an insulin dependent Type 1 diabetic. I have been diagnosed with Type1 diabetes at the age of 23 What were the early symptoms? Feeling thirsty, frequent urination, weight loss, hunger, skin turning blackish, tiredness etc. Is there a history of diabetes (Type 1 or 2)…
  • Profile pic of a middle aged man in a partially visible grey and white striped shirt
    Faith And Support Are Important When A Family Member Is Affected By Cancer
    Dipanwita Mukherjee was a small girl when her father Bibhuti Bhusan Chakraverty was diagnosed with throat cancer. This is his story, how he overcame his condition and also how he reached out to many others to alleviate their pain. A recent Bengali film, Kontho, based on Mr Chakraverty’s life and struggles has also brought the story back in focus. When was your father diagnosed with throat cancer? My father, late Bibhuti Bhusan Chakraverty was detected with throat cancer in the year 1972. He was…
  • A woman in a pink t shirt stretching a green resistance band
    After Stroke, Many Survivors Report Vision Difficulties
    G Srinithya, Senior Occupational Therapist at NIMHANS, highlights the various specialised rehabilitation programs for different types of stroke related disabilities ranging from visual, cognitive to swallowing impairment. Which cognitive rehabilitation intervention is best for improvement of attention and memory problems in patients with stroke? Following stroke, many people experience difficulties in arousal, attention, concentration, memory, perception, problem solving, decision making,…
  • Robotic Hand therapy equipment for Stroke Patients
    Stroke Rehabilitation Helps Relearn Lost Skills
    Stroke rehabilitation is an important aspect of the management of stroke. It can help to maximize recovery and regain as much of the body functions that is lost after a stroke, emphasises G Srinithya, Senior Occupational Therapist at NIMHANS. What is Post Stroke Rehabilitation? Post stroke Rehabilitation is a patient-centred, goal driven process that attempts to maximise the functional independence of patients who suffer from variety of stroke related disabilities. The aim of rehabilitation is…
  • Profile pic of a man in a red tshirt smiling
    A Stroke Survivor’s Mantra to Live A Better Life
    Sharad Kumar Tekalkote, who lost his ability to speak after a severe stroke, had to undergo intense rehabilitation and speech therapy exercises, to resume normalcy. Today, he is a motivational speaker. Here, he shares ten tips on how to live a full life. I was diagnosed with a haemorrhagic stroke. I was given a 5% chance of making it through an operating table. While no one expects adversity or enjoys experiencing it, the fact is that challenges are a normal part of life. On 18 October, 2012,…