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Submitted by PatientsEngage on 8 June 2020

A handy list of resources for living with the coronavirus and managing your chronic conditions. Just look for your condition below. If you don't find what you are looking for, please leave a comment and we will get back to you.    

We must live with Covid-19 pandemic for a while. For people with chronic conditions like diabetes, hypertension, chronic kidney disease, rheumatic conditions, pulmonary conditions, it is even more essential to manage these conditions better. For e.g. a person whose blood sugars are under control is better equipped to deal with the coronavirus infection. 

As we prepare for the easing of restrictions, we must be aware of the risks of infection associated with it and mitigate these risks by practicing safety guidelines viz. mask hygiene, regular washing and sanitisation of hands, and maintaining safe distance at all times. 

We must also recognise that we cannot delay seeking help and treatment of our chronic conditions, and seek out the doctor. The process of these has changed in some places. While some places have started OPDs, most still require that you first connect and consult with the doctor through telemedicine. If the doctor advises you to go for tests or go see the doctor in person, please go ahead and not delay diagnosis and treatment. Do not let your fear of Covid-19 risk overtake your need for timely care.

We have also compiled resources for various conditions. Click on the topics you are interested in to get a detailed understanding of your specific condition. If you have specific questions, you can ask in our discussion forums or contact us at  https://www.patientsengage.com/contact

Cancer

1. How to manage cancer treatment during Covid-19 by Dr. Vinay Deshmane, Consultant in Surgical Oncology & Breast Diseases and Medical Director and Jnt. Hon secretary of the Indian Cancer Society. Link to the webinar recording.

2.Also, here is the link to the key notes from the recording of the above webinar    

Diabetes 

1. How to live well with Diabetes during Covid-19 by Dr. Debashis Basu, Diabetes Awareness and You

2. How to manage diabetes during Covid-19 lockdown by Dr. Piya Balani Thakkar. Summary of her webinar recording

2a. How to manage diabetes during Covid-19 lockdown by Dr. Piya Balani Thakkar. Link to the webinar recording

Dementia

1. Dementia Home Care, the COVID-19 infection risk, and Lockdown/ Unlock challenges

This is a good resource to track the impact of the changes due to lockdowns and re-opening of cities and areas and how it impacts dementia care and even elder care. Useful tips for family caregivers of persons with dementia.   

 

 

 

 

 

 

 

 

 

 

      

 

Changed
13/Apr/2021

Stories

  • Cancer Is A Blessing In Disguise
    Shrenik Shah, 67 from Ahmedabad, India was diagnosed with Larynx (Vocal Folds) cancer, stage IV A 22 years ago. He now speaks with an Electrolarynx to motivate and inspire others. What were the early symptoms? What made you go see a doctor? I started getting hoarseness in my voice in late 1996. It was followed by breathlessness at night time and weight loss. I also would get so drowsy that I would sleep while standing. I am a non-smoker and have never had alcohol, tobacco, gutka, masala etc.…
  • Payal in a brown dress holding her mother in a yellow kurta and white dupatta from behind
    How Our Entire Family Rallies Around My Mother, My Dad's Primary Caregiver
    Payal talks about how she has seen her father deteriorate physically and mentally over the years due to stroke. She and her mother play an active role in his daily care which has become tougher over time. Payal, tell us about your father’s condition? My father had a brain stroke 15 years back and he has been slowly deteriorating day by day. He has lost most of his memory and struggles to even remember his children’s names. He often wanders off if left alone, so he needs to be monitored 24 hours…
  • Living Better After Breast Cancer - Live Q&A/Webinar
    Nothing could be better than receiving valuable tips and strategies from cancer victors themselves to lead a meaningful and fulfilling life after breast cancer. We share key highlights and take-aways from the recently conducted webinar by PatientsEngage on Living Better After Breast Cancer. Diagnosis and treatment of breast cancer can be harsh physically and emotionally. But it is not the end. You can bounce back and restore a normal life again. There are many ways to move forward, stay…
  • Stroke Is One Of The Leading Disabling Conditions In The World
    On World Stroke Day, Prof Dr Dipes Kumar Mandal, Founder-President - Stroke Foundation of Bengal talks about how a condition like Stroke, which has far reaching consequences, needs to be taken more seriously. Do you think stroke is one of the most debilitating conditions? Why? Stroke is one of the leading causes of death and disabilities globally. While in USA, heart disease is the leading cause of death, in China, Stroke (Brain Attack) is the leading cause of death as well as disabilities…
  • Stroke Rehabiliation and Recovery Tips
    Stroke Rehabilitation and Recovery is a long drawn out process which can be exhausting and de-motivating for both the survivors and their family members. We have compiled some of the best tips from patients, family caregivers and professionals. Stroke survivor Javed Ameer's 3 most important tips for rehabilitation for a cerebral stroke patient are: Be ‘physical’. Cycle, walk, jog, run, exercise……… Accept your fate and state. Mentally. Faster you do it, better for your peace of mind! Reading…
  • What Foods to Eat with Kidney Disease
    And 7 Renal Diet Tips. Every year millions are affected by kidney disease. Dr Anup Chaudhary, Nephrologist, and Dietician Ushakiran Sisodia, both from Nanavati Hospital, identify the right foods to help us maintain healthy kidneys and slow down progression of a kidney disease. Dr Anup Chaudhary Why is good nutrition important for people with kidney disease? Good nutrition is important for people with kidney disease because malnutrition is the predominant cause of morbidity and mortality in…
  • Living Better After Breast Cancer - A Webinar/Live Q&A Series
    Cancer is not a death sentence. And many people continue to live fulfilling lives after cancer. In our Live Discussion sessions we talk to eminent doctors and brave survivors for tips, vital information and motivation. In the first of the series on Living Better After Breast Cancer we have with us Director and Breast Cancer Specialist Dr. D.G. Vijay, HCG Cancer Centre, Ahmedabad  Breast Cancer Survivor Nandita Muralidhar, Chennai   Breast Cancer Survivor Urvi Sabnis - Dave,…
  • Head shot of Urvi Sabnis, a breast cancer survivor smiling at the camera
    If I Can Overcome Cancer, I Can Overcome Anything!
    Urvi Sabnis, 47 from Ahmedabad, India was diagnosed with 2nd stage breast cancer through a routine screening. However, she stayed focussed through the treatment and has emerged a more compassionate, grateful and fearless woman. Tell us about about yourself and your cancer history  The beginning of my story is rather mundane. A small town girl with big dreams. I made a name for myself as the rare female in the male dominated sphere of the corporate world. To round it off, I had a…
  • The Role of Counselling in Palliative Care
    Pranab Basu has been a hands on caregiver for his wife, and has now devoted himself to helping and counselling people suffering from Cancer. He talks about the importance of counselling in Palliative Care. What is the role of Palliative Care? World Health Organization defines Palliative Care as "to prevent and relieve suffering by means of early identification and impeccable assessment and treatment of pain and other related problems, physical, psychosocial and spiritual". The intrinsic value…
  • Rita Banik on the left in a red dress and beige jacket with her husband on the right with a blue shirt and black jacket standing by the gate of a building and a garden in the background
    I Have Actually Forgotten My Pre-cancer Life
    Rita Banik, founder of RACE to Rein in Cancer has been living with cancer for more than 12 years. She reflects on her journey, the ups and downs and what keeps her going as the fear of relapse stays in the mind forever. The milestones and key incidents that come to mind Detected the breast lump in March 2006 Going for FNAC test was the hardest First reaction of relatives was that I was going to die The trauma of losing a breast came almost after a year of surgery First realization of what I…