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Submitted by PatientsEngage on 8 June 2020

A handy list of resources for living with the coronavirus and managing your chronic conditions. Just look for your condition below. If you don't find what you are looking for, please leave a comment and we will get back to you.    

We must live with Covid-19 pandemic for a while. For people with chronic conditions like diabetes, hypertension, chronic kidney disease, rheumatic conditions, pulmonary conditions, it is even more essential to manage these conditions better. For e.g. a person whose blood sugars are under control is better equipped to deal with the coronavirus infection. 

As we prepare for the easing of restrictions, we must be aware of the risks of infection associated with it and mitigate these risks by practicing safety guidelines viz. mask hygiene, regular washing and sanitisation of hands, and maintaining safe distance at all times. 

We must also recognise that we cannot delay seeking help and treatment of our chronic conditions, and seek out the doctor. The process of these has changed in some places. While some places have started OPDs, most still require that you first connect and consult with the doctor through telemedicine. If the doctor advises you to go for tests or go see the doctor in person, please go ahead and not delay diagnosis and treatment. Do not let your fear of Covid-19 risk overtake your need for timely care.

We have also compiled resources for various conditions. Click on the topics you are interested in to get a detailed understanding of your specific condition. If you have specific questions, you can ask in our discussion forums or contact us at  https://www.patientsengage.com/contact

Cancer

1. How to manage cancer treatment during Covid-19 by Dr. Vinay Deshmane, Consultant in Surgical Oncology & Breast Diseases and Medical Director and Jnt. Hon secretary of the Indian Cancer Society. Link to the webinar recording.

2.Also, here is the link to the key notes from the recording of the above webinar    

Diabetes 

1. How to live well with Diabetes during Covid-19 by Dr. Debashis Basu, Diabetes Awareness and You

2. How to manage diabetes during Covid-19 lockdown by Dr. Piya Balani Thakkar. Summary of her webinar recording

2a. How to manage diabetes during Covid-19 lockdown by Dr. Piya Balani Thakkar. Link to the webinar recording

Dementia

1. Dementia Home Care, the COVID-19 infection risk, and Lockdown/ Unlock challenges

This is a good resource to track the impact of the changes due to lockdowns and re-opening of cities and areas and how it impacts dementia care and even elder care. Useful tips for family caregivers of persons with dementia.   

 

 

 

 

 

 

 

 

 

 

      

 

Changed
13/Apr/2021

Stories

  • Stock image of a woman in blue scarf in the foreground and a group of people in the background pointing to her
    "Its Time For Film Characters That Survive Cancer!"
    Cancer stigmas are often barriers for seeking diagnosis, as well as treatment and rehabilitation. Shubha Maudgal and Susmitra Mitra of Cancer Patients Aid Association (CPAA), Mumbai give us an insight into the current taboos surrounding cancer and the challenges such stigmas pose for patients and society. 1. What does cancer stigma entail? There are two kinds of stigma involved with cancer. One is Self which is in the mind of patients themselves, stemming from guilt or shame.  The other is…
  • Pushpa Garde who controlled her diabetes with medication, discipline and lifestyle changes
    I Decided To Fight This Lifestyle Disease With Changes In Lifestyle
    Delhi-based Pushpa Garde is 75 years old and has been ably handling diabetes for the last 25 years, mainly with lifestyle changes and a proper diet, which she has maintained meticulously. About 30 years ago I had a boil on my breast which was not healing. Out of fear, I went to a Cancer specialist. My blood test was done and the fasting sugar came out to be 196. I was asked to cut down my sugar consumption. So the first casualty was the sweet tea. I stopped taking sugar in my tea. In Mahabharat…
  • Stock pic of a woman in blue top and grey slacks applying a nicotine replacement patch
    Try Nicotine Patch to Help You Quit Smoking
    Dr Rajam Iyer, pulmonologist and palliative care physician, gives us an overview of Nicotine Replacement Therapy, a treatment to help people quit smoking, and strongly recommends its promotion among smokers and the need to test it for smokeless tobacco (bidi) users. What is Nicotine Replacement Therapy? Nicotine replacement therapy is a treatment that smokers can benefit from. As smokers are addicted to the nicotine in cigarettes, that causes physical dependence, NRT helps in controlling the…
  • Stock image of a woman in a white shirt celebrating in a green field with a new look with a scarf to address hair loss during chemotherapy
    Coping with Hair Loss during Chemotherapy
    Rebecca D'Souza, clinical psychologist with Nag Foundation, an NGO in Pune working for the welfare of cancer patients, says losing hair due to chemotherapy is one of the biggest fears for women, and suggests ways of dealing with the stress and emotions. Cancer is a much maligned and dreaded disease partly because of the lack of awareness and partly because of our understanding of the disease and its treatment. Lack of awareness is one of the main reasons for late diagnosis and a lack of…
  • Defeated Cancer, One Push At A Time
    Shilpa Aneja, 34 is a Stage 3 breast cancer survivor from Jaipur and credits her recovery to proper maintenance of a physical exercise routine and an unbeatable attitude and positive mindset. Here, she shares her gutsy life principles, strong commitment to mental and physical health, and immeasurable love for her daughter that helped her combat cancer. Shilpa, please tell us a bit about your diagnosis and the treatment I was diagnosed with stage 3 metastatic breast cancer in November 2016. My…
  • Canshala - Bringing School and Normalcy To Children with Childhood Cancer
    Children who are out of town patients often miss school for months on end. This affects the child socially and psychologically and often makes reintegration back to school difficult. Dr. Shital Raval visits Canshala which helps bridge that gap by providing continuity of education and normalcy to a child’s life. Set in a Municipal Marathi school in Parel, Canshala is a school for children with cancer, run in collaboration with the Mumbai MCGM. In contrast to the drab exterior, Canshala is a…
  • An elderly and spectacled couple Mr Pranab Basu in a blue striped shirt with his wife in an orange blouse and a cream sari
    Palliative Treatment Ensures Good Quality of Life
    Mr Pranab Kumar Basu shares his experience of being the sole caregiver of his wife, who had metastastic colon cancer, and how he succeeded in keeping her mentally strong and cheerful till the end. I have been the sole caregiver for my wife who was suffering from cancer. My wife was under the treatment at the Tata Memorial Hospital, Mumbai, from July, 2015. She battled for nearly 2 years and 6 months. She finally succumbed to it in October 2017. She was a victim of metastatic colon cancer. The…
  • What is Metastasis?
    You may have heard people refer to a ‘metastatic cancer' or  say that ‘cancer has metastasized’ or is ‘in Stage 4’. But what does that really mean. Dr. Shital Raval explains.  What is Metastasis? Metastasis is a term for when cancer has spread to a different part of a body from where it first originated. Because metastatic cancer is more difficult to control and treat, it is categorized as the last stage or Stage IV. How does Metastasis happen? This happens when cancer cells break…
  • Smriti wearing a black dress relaxing on a chair and looking at the camera as she talks about her abdominal cancer
    I Had No Fear And Was Ready To Face What Came
    Smriti, 50 from Mumbai was diagnosed with cancer for the second time. The hospital nurse referred to her as the most cheerful patient in the ward. PatientsEngage spoke to her to find out her mantra for a positive attitude. Please tell us a bit about your condition  A. I was recently diagnosed with abdominal cancer. When were you diagnosed? A. My diagnoses came in January 2018. What were the early symptoms? What made you go see a doctor? A. It all started in August 2017…
  • Tanmay is a young adult on the autism spectrum and is wearing a black tshirt and a hat  and sunglasses and sitting outdoors on a green chair
    Managing the Double A - Autism and Adolescence
    An autism dad’s honest story of managing adoloescence and puberty with a positive attitude. Journalist Bhanu Pande shares his experience of pro-actively preparing himself and his son for growth spurts and physical urges to raise him into a responsible and independent person.  #FathersDay It’s hard to be an autism dad. And there’s no getting around it. I had turned reclusive during our early days as a newbie, in autism land. Let alone my interaction with my friends going through…