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Submitted by PatientsEngage on 8 June 2020

A handy list of resources for living with the coronavirus and managing your chronic conditions. Just look for your condition below. If you don't find what you are looking for, please leave a comment and we will get back to you.    

We must live with Covid-19 pandemic for a while. For people with chronic conditions like diabetes, hypertension, chronic kidney disease, rheumatic conditions, pulmonary conditions, it is even more essential to manage these conditions better. For e.g. a person whose blood sugars are under control is better equipped to deal with the coronavirus infection. 

As we prepare for the easing of restrictions, we must be aware of the risks of infection associated with it and mitigate these risks by practicing safety guidelines viz. mask hygiene, regular washing and sanitisation of hands, and maintaining safe distance at all times. 

We must also recognise that we cannot delay seeking help and treatment of our chronic conditions, and seek out the doctor. The process of these has changed in some places. While some places have started OPDs, most still require that you first connect and consult with the doctor through telemedicine. If the doctor advises you to go for tests or go see the doctor in person, please go ahead and not delay diagnosis and treatment. Do not let your fear of Covid-19 risk overtake your need for timely care.

We have also compiled resources for various conditions. Click on the topics you are interested in to get a detailed understanding of your specific condition. If you have specific questions, you can ask in our discussion forums or contact us at  https://www.patientsengage.com/contact

Cancer

1. How to manage cancer treatment during Covid-19 by Dr. Vinay Deshmane, Consultant in Surgical Oncology & Breast Diseases and Medical Director and Jnt. Hon secretary of the Indian Cancer Society. Link to the webinar recording.

2.Also, here is the link to the key notes from the recording of the above webinar    

Diabetes 

1. How to live well with Diabetes during Covid-19 by Dr. Debashis Basu, Diabetes Awareness and You

2. How to manage diabetes during Covid-19 lockdown by Dr. Piya Balani Thakkar. Summary of her webinar recording

2a. How to manage diabetes during Covid-19 lockdown by Dr. Piya Balani Thakkar. Link to the webinar recording

Dementia

1. Dementia Home Care, the COVID-19 infection risk, and Lockdown/ Unlock challenges

This is a good resource to track the impact of the changes due to lockdowns and re-opening of cities and areas and how it impacts dementia care and even elder care. Useful tips for family caregivers of persons with dementia.   

 

 

 

 

 

 

 

 

 

 

      

 

Changed
13/Apr/2021

Stories

  • An elderly and spectacled couple Mr Pranab Basu in a blue striped shirt with his wife in an orange blouse and a cream sari
    Palliative Treatment Ensures Good Quality of Life
    Mr Pranab Kumar Basu shares his experience of being the sole caregiver of his wife, who had metastastic colon cancer, and how he succeeded in keeping her mentally strong and cheerful till the end. I have been the sole caregiver for my wife who was suffering from cancer. My wife was under the treatment at the Tata Memorial Hospital, Mumbai, from July, 2015. She battled for nearly 2 years and 6 months. She finally succumbed to it in October 2017. She was a victim of metastatic colon cancer. The…
  • Stock pic of a cancer patient and a doctor examining a X Ray film
    What is Metastatic Cancer?
    You may have heard people refer to a ‘metastatic cancer' or  say that ‘cancer has metastasized’ or is ‘in Stage 4’. But what does that really mean. Dr. Shital Patel explains.  What is Metastasis? Metastasis is a term for when cancer has spread to a different part of a body from where it first originated. Because metastatic cancer is more difficult to control and treat, it is categorized as the last stage or Stage IV. Related Reading: Cancer Terms Explained How does Metastasis happen?…
  • Smriti wearing a black dress relaxing on a chair and looking at the camera as she talks about her abdominal cancer
    I Had No Fear And Was Ready To Face What Came
    Smriti, 50 from Mumbai was diagnosed with cancer for the second time. The hospital nurse referred to her as the most cheerful patient in the ward. PatientsEngage spoke to her to find out her mantra for a positive attitude. Please tell us a bit about your condition  A. I was recently diagnosed with abdominal cancer. When were you diagnosed? A. My diagnoses came in January 2018. What were the early symptoms? What made you go see a doctor? A. It all started in August 2017…
  • Tanmay is a young adult on the autism spectrum and is wearing a black tshirt and a hat  and sunglasses and sitting outdoors on a green chair
    Managing the Double A - Autism and Adolescence
    An autism dad’s honest story of managing adoloescence and puberty with a positive attitude. Journalist Bhanu Pande shares his experience of pro-actively preparing himself and his son for growth spurts and physical urges to raise him into a responsible and independent person.  #FathersDay It’s hard to be an autism dad. And there’s no getting around it. I had turned reclusive during our early days as a newbie, in autism land. Let alone my interaction with my friends going through…
  • A couple, a woman on a wheel chair with a man standing attentively next to her, both looking into the woods with the sun streaming through
    We Lost the Soul of Our Family to Cancer
    It has been almost three years since his wife passed away, but the void is hard to reconcile. In an emotional piece, Mario recounts the day when his wife Cheryl was diagnosed with advanced pancreatic cancer, and how family and friends rallied together to make her comfortable and happy in her last days. I first met my wife around Oct 84 in a church in Lucknow and after wooing her to hell and back married her in Oct 85. As a family we had our ups and downs but I daresay we had a beautiful…
  • Image: Stock photo of colon over white t-shirt and dark jeans set against a pink background
    Why You Should Know About Lynch Syndrome
    Colorectal cancer is the 4th most common cause of deaths related to cancer worldwide. Lynch syndrome or HNPCC is one of most common genetic causes of Colon cancer. Here are a few questions to better understand Lynch syndrome and how we can screen for it. 1. What is the Lynch syndrome? Which genes are involved? Lynch Syndrome is also known as hereditary non-polyposis colorectal cancer or HNPCC. It has a genetic disposition, hence the term hereditary and is known to be associated or  the…
  • Image: A woman's left arm is visible, attached to a diagnostic machine in a hospital setting
    I Cried Bitterly The Day I Lost My Hair
    Dora Mukherjee went through the entire battery of tests and procedures after being detected with a Right Breast Carcinoma. She recalls her pain and anguish as well as the love she received during the critical period. The beginning with a diagnosis My painful journey with cancer started on 1st February 2014 when I was referred by my Bank's Medical Officer to Dr Gandhi's Imaging Clinic for Bilateral Mammography in Mumbai. Sonomammography was done which revealed a case of carcinoma…
  • Image: Marianne with her 3 sons and her husband
    I Want To Fight Diabetes To Stay Alive For My Grandchildren
    Marianne de Nazareth, 60, who has diabetes, began controlling her sugar levels in all earnestness after she received a jolt with partial loss of her eyesight. Now she is super conscious about her diet and runs with a passion. Take a leaf from her journey. To be diagnosed with diabetes at 35 was the lowest point of my life. It was during the birth of my third child, Steve, that I was detected with borderline sugar. But I never really had time to bother about it. I was caught in the throes of…
  • Image indicates a caregiver holding the hand of an older person
    Life Lesson I Learnt Watching my Papa Die
    We prepare ourselves for everything, but most of us are in denial about death. Aparna Das shares the one final lesson her father taught her during his last few days as he breathed his last. My father was diagnosed with Pancreatic Cancer in October 2017. Of course, he and all of us did everything in our capacity to save him. But he passed away on the 20th of April 2018. The three days leading to his death were probably the most painful that our family had faced collectively. But I have a…
  • Jacqueline Colaco on a wheel chair, in white at the TCS 10K with some of the other participants
    Adding Abilities with Advancing Age
    Jacqueline Colaco, a feisty 68, does not permit the senior citizen tag to prevent her from pushing her boundaries, acquiring new skills, participating in a range of community activities. She is active on Facebook and has even shaved her head in empathy with her school classmate who was on chemo for cancer! Be ever young at heart. At sixty I thought I’d retire from life... Wanting to go into oblivion with a bang, I gathered about two hundred of my nearest and dearest and celebrated this diamond…