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Submitted by PatientsEngage on 8 June 2020

A handy list of resources for living with the coronavirus and managing your chronic conditions. Just look for your condition below. If you don't find what you are looking for, please leave a comment and we will get back to you.    

We must live with Covid-19 pandemic for a while. For people with chronic conditions like diabetes, hypertension, chronic kidney disease, rheumatic conditions, pulmonary conditions, it is even more essential to manage these conditions better. For e.g. a person whose blood sugars are under control is better equipped to deal with the coronavirus infection. 

As we prepare for the easing of restrictions, we must be aware of the risks of infection associated with it and mitigate these risks by practicing safety guidelines viz. mask hygiene, regular washing and sanitisation of hands, and maintaining safe distance at all times. 

We must also recognise that we cannot delay seeking help and treatment of our chronic conditions, and seek out the doctor. The process of these has changed in some places. While some places have started OPDs, most still require that you first connect and consult with the doctor through telemedicine. If the doctor advises you to go for tests or go see the doctor in person, please go ahead and not delay diagnosis and treatment. Do not let your fear of Covid-19 risk overtake your need for timely care.

We have also compiled resources for various conditions. Click on the topics you are interested in to get a detailed understanding of your specific condition. If you have specific questions, you can ask in our discussion forums or contact us at  https://www.patientsengage.com/contact

Cancer

1. How to manage cancer treatment during Covid-19 by Dr. Vinay Deshmane, Consultant in Surgical Oncology & Breast Diseases and Medical Director and Jnt. Hon secretary of the Indian Cancer Society. Link to the webinar recording.

2.Also, here is the link to the key notes from the recording of the above webinar    

Diabetes 

1. How to live well with Diabetes during Covid-19 by Dr. Debashis Basu, Diabetes Awareness and You

2. How to manage diabetes during Covid-19 lockdown by Dr. Piya Balani Thakkar. Summary of her webinar recording

2a. How to manage diabetes during Covid-19 lockdown by Dr. Piya Balani Thakkar. Link to the webinar recording

Dementia

1. Dementia Home Care, the COVID-19 infection risk, and Lockdown/ Unlock challenges

This is a good resource to track the impact of the changes due to lockdowns and re-opening of cities and areas and how it impacts dementia care and even elder care. Useful tips for family caregivers of persons with dementia.   

 

 

 

 

 

 

 

 

 

 

      

 

Changed
13/Apr/2021

Stories

  • A young woman Shweta Chawre in a black sweater and jeans looking back at the camera as she walks away
    Love, Courage And Drawing Cartoons Helped Me Cope With Childhood Cancer!
    Shweta Chawre, animator and graphic designer, who was diagnosed with stage 2 osteosarcoma, an aggressive type of bone cancer, as a teenager, looks back over her life and celebrates her decade of survivorship with gratitude and optimism. It was the summer of 2008. I was 15 years old and had just completed my SSC board examinations. One day I developed a routine knee pain, nothing that signified a major health trouble. The pain was in my right knee. I was active in sports so we reckoned that the…
  • Pooja in a white dress with  her son and husband on the deck of a ship
    Don't Let Epilepsy Get The Better Of You
    Pooja Mehta Nandi, 40, reflects on how she never ever let epilepsy seizures overpower or crush her - through school, work, marriage or motherhood. Read her motivational account. I have been getting seizures since I was a child. Not random seizures, but those that had a fixed pattern of occurrence. Every time I had fever, I would get a fit. Right through my childhood, the two would invariably come together. As I had no other health problem, and my convulsions would stop as my fever subsided, my…
  • An image of a young person with buzz hair and the title Living Better After Cancer - Adapting to a new Reality with cancer survivors Gauri and Pranay and Oncopsychologist Aneri Shah
    Webinar: Living Better After Cancer - For Young Adults Dealing with Cancer
    Living Better After Cancer - Adapting to a new Reality. This webinar, part of our ‘Living Better’ series on lived experiences of cancer survivorship sessions looks at the psycho-social aspects of young adults who have to deal with cancer. This session covers how cancer re-defines identity, how it affects relationships and friendships, equations at work and perspectives in life. Listen to an insightful and interesting conversation with Psycho Oncologist Aneri Shah and Cancer survivors…
  • Supplement capsules in a spoon in sharp focus against soft focus of vegetables and fruits
    Can I Take Supplements During Cancer Treatment?
    Cancer patients often self medicate with vitamins and mineral supplements and other dietary supplements during the course of cancer treatment. Dr. Shital Raval examines the commonly suggested supplements and herbs and the associated risks. During cancer treatment, eating right is extremely important in order to sustain the side-effects of cancer drugs as well as combat weight loss. Many patients find it difficult to eat, possibly due to loss of appetite, nausea, vomiting, etc. or eat a well-…
  • Ranjana on the right with her stroke survivor mother Vaidehi on the left
    Stroke Takes Emotional And Financial Toll On Family!
    Ranjana Rajan had a difficult time when her mother Vaidehi suddenly got a stroke and returned home with her left limbs paralysed. Here, she narrates her experiences and challenges as a caregiver of a stroke patient and suggests some measures to reduce the burden. April 6, 2014, 9 pm: While eating her dinner, my 80-year old mom’s eyes became blurry, her left jaw dropped and she fell to one side of the chair; we immediately called a nearby hospital emergency service and moved her there. Her BP on…
  • Pregnancy and Diabetes
    Dr Kanika Chaudhuri, practicing consultant Obstetrician and Gynaecologist, Singapore talks of the Risks of Gestational Diabetes and how to control diabetes before, during and after pregnancy As the age of childbirth goes up due to changing demographics, we are seeing more patients with pre-existing diabetes and the incidence of Gestational diabetes mellitus (diabetes developing in pregnant women) is also on the rise. Both these conditions need multi-disciplinary management to…
  • A man in a black t-shirt and blue yoga pants sitting in padmasana or lotus pose
    The Biggest Fear I had to Battle was my Loss of Speech
    Sharad Tekalkote, 44, had no idea what was happening to him when he got a severe haemorrhagic stroke. It left him paralysed on his right side and completely took away his ability to speak. Here, he recounts his traumatic story and perseverance to get back to normal. That Thursday morning lacked the usual workday frenzy as my boss was on holiday. I left home at 10 am for the Expo Centre at Whitefield in Bengaluru to visit some dignitaries. My boss called me at 12:30 pm and I spoke to him for…
  • How To Be An Empowered Cancer Patient?
    An informed and engaged cancer patient has better clinical outcomes and fewer side effects. Knowing the trajectory of the illness also helps the patient and their family plan for the treatment and other care related aspects. Dr. Shital Raval shares an exhaustive set of questions that you may need to ask your cancer specialist.   A Cancer diagnosis can be quite alarming but by taking an active role in planning treatment and care, it can help alleviate the unwelcome stress and anxiety.…
  • Image: Fingers pointing at a Bone Scan Image
    When To Get A Bone Scan?
    What is a Bone Scan? What do the results of the scan indicate? When do you need a Bone Scan? How often should you get a Bone Scan? We give you information that will help you discuss your options with your doctor. What is a Bone Scan  A Bone scan is done to check the bone mineral density (BMD) so as to assess strength of the bones and probability of any fractures. The scan helps identify any mild (osteopenia) or serious bone loss (osteoporosis). The most common bone density test is the DEXA…
  • "Someday Somebody Would Really Understand My Rare Condition"
    Payel Bhattacharya, 38 suffers from a rare condition called VHL and has undergone countless surgeries and a liver transplant to overcome her various challenges. She is a warrior and here she recounts as to how tough her going has been Please tell us a bit about yourself, your condition, as in what you are suffering from and when you were diagnosed. I am Payel Bhattacharya. I was born and raised in Kolkata, but I am currently residing in New Delhi with my mother for the past decade. Ten years…