Caregiver Community

  • Caregiver Community
    2318 member(s)

    A place where Caregivers come together to share common experiences, challenges,and resources. 

    Caregivers are truly experts in patient management and can help each other because of their intensive experience in patient care at home. Caregivers can ask questions to others on this forum going through a similar caregiving experiences. They can start topics and discuss things like ways to manage daily tasks, where to find doctors, nurses, and other health services, how they manage stress, and any other topics related to caring for their loved one and for themselves. It is a great place for Caregivers to come and chat about the issues that affect them on a day to day basis and take time to focus on their own needs and health.

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  • Composite pic of Prima and her father with stage 4 cancer and the father in the garden on the phone
    My Father's Journey With Stage 4 Cancer
    Prima shares the challenges of caring for her father who was diagnosed with stage 4 cancer of the ureter and kidney, the effect that COVID had on the treatment choices, the pain he went through, the palliative care choices and the emotional turmoil of it all. I vividily remember that afternoon when he implored, “Take me to the doctor, I’m uncomfortable. I’m in pain and want to sleep”. My husband gave him his morphine pill and told him we would go see his doctor soon. He kept saying, he wanted…
  • Person with haemophilia, Vinay Nair in a brown kurta with his wife in a red and gold sari holding baby girl in green and white dress in arms
    बच्चे मेरे बेटे के साथ खेलने को तैयार नहीं थे क्योंकि उसकी मांसपेशियों में ब्लीडिंग होती थी
    32 साल के विनय नायर को हीमोफिलिया है और उनका बचपन, बड़े पैमाने में मध्यम या गंभीर रक्तस्राव के एपिसोड वाला रहा था। उनकी माँ, इंदिरा, अपने बेटे के सकारात्मक रवैये और दृढ़ निश्चय की तारीफ करती हैं और कहती हैं कि इस की वजह से वह अपनी स्वास्थ्य चुनौतियों का असाधारण रूप से सामना कर पाया है। जब विनय 6 महीने का था, तो उसके हाथों और पैरों पर अजीब तरह के नीले-नीले निशान उभरने शुरू हो गए थे, उसी प्रकार के नीले-नीले निशान जो तब होते हैं जब आपको चोट लगी होती है या कोई चुटकी भरता है। ये हालांकि छोटे आकार के…
  • दवा सुरक्षित और सही तरीके से लेने के लिए टिप्स
    दवा लेने में गल्तियों के कारण मृत्यु होने के केस की प्रतिशत काफी ऊंची है, और इन दुर्भाग्यपूर्ण मौतों से बचा जा सकता है। इस के लिए यह निश्चित करना जरूरी है कि दवाओं के प्रशासन को जितना संभव हो सके उतना सुरक्षित बनाया जाए ताकि उचित स्वास्थ्य देखभाल हो और जानलेवा जटिलताओं और मौत के खतरे से बचे रहें। इस लेख में देखें सुरक्षित दवा प्रबंधन के लिए आसान दिशानिर्देशों और सर्वोत्तम प्रथाओं का एक संकलन। दवा के उपयोग संबंधी दिशानिर्देश: दवा लेने के सुरक्षित तरीके  आप जो दवाएं ले रहे हैं, उन के बारे…
  • Rehabilitation Is Essential For Regaining Independence
    Spinal cord injury, stroke and osteoporosis are common causes of disability. The Chandigarh Spinal Rehab centre offers holistic rehabilitation to empower patients and enable independent living. For what conditions or disabilities does the Centre have Rehabilitation facilities? Spinal Cord Injury Traumatic brain injury Stroke Multiple Sclerosis Cerebral Palsy Children with special needs Geriatric Rehabilitation Post Joint Replacement Therapy Spina Bfida Pain Management Other Neuro Conditions…
  • 2 elderly women at a kitchen table
    घर को बुजुर्गों के अनुकूल कैसे बनाएं
    रिहैब (पुनर्वास) विशेषज्ञा लक्ष्मी गोपालकृष्णन घर में छोटे बदलाव के कुछ ऐसे सुझाव देती हैं जिन से बुजुर्गों को अपने कार्यों में आसानी हो सकती है और उनके जीवन की गुणवत्ता में महत्वपूर्ण सुधार संभव है। मैं 15 साल से अधिक समय से रिहैब में काम कर रही हूँ और व्यक्तिगत रूप से 80 साल से अधिक उम्र के चार बुजुर्गों की देखभालकर्ता भी रही हूँ। उनके दैनिक जीवन की गतिविधियों को कैसे बदलें, इस पर सोचने की मुझे बार-बार आवश्यकता होती है। मेरी कोशिश यही रही है कि बुजुर्ग यथासंभव स्वतंत्र रहें और उनका आत्मसम्मान…
  • A family with three generations sitting around a dining table
    बुजुर्गों के लिए भोजन में संशोधन
    जब आपके प्रियजनों की उम्र बढ़ती है, तो उनके लिए सही आहार का प्रबंध करना अधिक ज़रूरी हो जाता है, क्योंकि अधिकाँश केस में अनुचित भोजन लेना अधिक तनाव और परेशानी का कारण बनता है। इस लेख में डॉ। भुवनेश्वरी अपने माता-पिता की प्राथमिक देखभालकर्ता होने के अनुभवों के आधार पर कुछ सरल सुझाव दे रही हैं। बुजुर्गों के आहार पर ध्यान देना बहुत जरूरी है क्योंकि आहार के पैटर्न को बदलने से कुछ ऐसी सामान्य समस्याओं में सुधार हो सकता है जो कई बुजुर्गों में पायी जाती हैं. हमें इस पहलू पर अपनी भारतीय सन्दर्भ (जैसे कि…
  • How To Handle Negative Emotions as a Caregiver
    Samiksha Sivan, integrates her experience at PDMDS to talk about some of the negative emotions felt by caregivers of persons with Parkinsons and the how they can cope with the negative emotions like anger, resentment, guilt and anxiety. Dealing with a chronic, progressive condition like Parkinson’s disease (PD) can take a significant toll on a person, be it a caregiver or a patient. Being able to cope with everyday tasks at home and work as well as the stresses of caregiving for a Person with…
  • No Way to Go…Mom!
    Divya Gaur from Delhi was devastated when she lost her mother to brain tumour and could not attend the last rites in Bhopal due to the stringent Covid lockdown. Here she pens down her life changing feelings. No matter how we prepare ourselves, losing a loved one is never easy. One is never ever prepared to let a parent go. When I lost my father I was away. I reached only 3 hours after he went. I could not say goodbye, not to him at least. Though it happens with many people who don’t live in the…
  • Risk of polypharmacy in the elderly
    Risks Of Polypharmacy In The Elderly
    Polypharmacy in the elderly is a growing concern and can even cause harm to the patient. Dr. Anita Kumar explains the risks associated with polypharmacy, the symptoms to watch out for and the way forward for patients and their caregivers.     Polypharmacy is an issue that requires addressing because people unknowingly follow polypharmacy and do not recognize the potential harm it may cause. In recent times, polypharmacy has emerged as a public health issue and a concern globally…
  • A couple walking on a road with trees in the background and overlay text Reclaim Healthy Ageing
    Let Us Reclaim Active Ageing
    Older adults often feel vulnerable and disempowered. They may feel that they are losing their independence . But does it really have to be like that? Can older persons reclaim the feeling of being in control? Here is a practical list of what to do and avoid. The Covid-19 pandemic has reduced everyone in their 60s and above to being termed ‘Vulnerable Elders’, with its associated feelings of fear and isolation from even friends and relatives. But it is now time to redefine Ageing and focus on…
Patient not discharged from ICU despite repeated requests
In the last couple of weeks, I have heard of two different cases in India where the hospital kept a patient in ICU on life support for weeks on end. In one case, even after the family asked for the patient to be transferred to a normal room, the…
Counsellor in Ahmedabad
Query from a caregiver Does anyone know a counsellor in Ahmedabad who can go to a patient's home. Patient has had a couple of strokes and even though there is no paralysis believes he is paralysed and does not use his limbs and keeps falling.…
Walking with quad cane assistance
Here is a question from one of our members: My father is 89. He used to walk regularly twice a day and used a simple walking cane. But now he has had a few falls. Doctor says he must use a cane with 4 legs(quad cane) but he refuses to do that. Now…
A family torn apart by illness
When treatment started failing 66 year old Siew Ching, the family became divided into different camps. Some wanted her to stay in hospital so that she could receive maximal supportive care. Others wanted her to be discharged so she could go…
My 95 year old father
My 95 year old father lives with my sister. She takes very good care of him. Normally he is fine. Can manage most daily activities with some help. But he is sometimes very paranoid about domestic helpers coming into his room and trying to harm him…
Tips for Caregivers
We found a great list of tips (in the link below) to help ease the challenges of being a caregiver and help caregivers with self-care - take a look at this list and share with us if you have ever used any of these and how! The tips include:…
Sleep - A big challenge for Caregivers
A lack of sleep or feeling tired is one of the biggest challenges that Caregivers face. Often times we have to wake up at night to check on our loved one, or we have trouble falling asleep because our mind is preoccupied. What are some of your…
How do you ask for help?
As Caregivers we often take on a lot and can get exhausted. It is important to learn how to ask for help - maybe other family members, friends, or neighbors can help take on some tasks and make life a little easier for the Caregiver. For many of us…
Restlessness in semi mobile senior
My MIL is a little bit over weight @ 94, and is able to walk only with a walker very slowly.She is addicted to watching TV whether she understands anything or not, but cannot sit for a long time. WE give her TV time, once a day for 2 hours. For…
Sharing Caregiving Duties Among Siblings or Family
I recently came across a great article that spoke about the importance of sharing caregiving duties among family or siblings. Often, the caregving duties falls upon one sibling or family member, and  this can cause resentment or…

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