Caregiver Community

  • Caregiver Community
    2318 member(s)

    A place where Caregivers come together to share common experiences, challenges,and resources. 

    Caregivers are truly experts in patient management and can help each other because of their intensive experience in patient care at home. Caregivers can ask questions to others on this forum going through a similar caregiving experiences. They can start topics and discuss things like ways to manage daily tasks, where to find doctors, nurses, and other health services, how they manage stress, and any other topics related to caring for their loved one and for themselves. It is a great place for Caregivers to come and chat about the issues that affect them on a day to day basis and take time to focus on their own needs and health.

    Login To Join
    Add Discussion
  • Composite pic of Prima and her father with stage 4 cancer and the father in the garden on the phone
    My Father's Journey With Stage 4 Cancer
    Prima shares the challenges of caring for her father who was diagnosed with stage 4 cancer of the ureter and kidney, the effect that COVID had on the treatment choices, the pain he went through, the palliative care choices and the emotional turmoil of it all. I vividily remember that afternoon when he implored, “Take me to the doctor, I’m uncomfortable. I’m in pain and want to sleep”. My husband gave him his morphine pill and told him we would go see his doctor soon. He kept saying, he wanted…
  • Person with haemophilia, Vinay Nair in a brown kurta with his wife in a red and gold sari holding baby girl in green and white dress in arms
    बच्चे मेरे बेटे के साथ खेलने को तैयार नहीं थे क्योंकि उसकी मांसपेशियों में ब्लीडिंग होती थी
    32 साल के विनय नायर को हीमोफिलिया है और उनका बचपन, बड़े पैमाने में मध्यम या गंभीर रक्तस्राव के एपिसोड वाला रहा था। उनकी माँ, इंदिरा, अपने बेटे के सकारात्मक रवैये और दृढ़ निश्चय की तारीफ करती हैं और कहती हैं कि इस की वजह से वह अपनी स्वास्थ्य चुनौतियों का असाधारण रूप से सामना कर पाया है। जब विनय 6 महीने का था, तो उसके हाथों और पैरों पर अजीब तरह के नीले-नीले निशान उभरने शुरू हो गए थे, उसी प्रकार के नीले-नीले निशान जो तब होते हैं जब आपको चोट लगी होती है या कोई चुटकी भरता है। ये हालांकि छोटे आकार के…
  • दवा सुरक्षित और सही तरीके से लेने के लिए टिप्स
    दवा लेने में गल्तियों के कारण मृत्यु होने के केस की प्रतिशत काफी ऊंची है, और इन दुर्भाग्यपूर्ण मौतों से बचा जा सकता है। इस के लिए यह निश्चित करना जरूरी है कि दवाओं के प्रशासन को जितना संभव हो सके उतना सुरक्षित बनाया जाए ताकि उचित स्वास्थ्य देखभाल हो और जानलेवा जटिलताओं और मौत के खतरे से बचे रहें। इस लेख में देखें सुरक्षित दवा प्रबंधन के लिए आसान दिशानिर्देशों और सर्वोत्तम प्रथाओं का एक संकलन। दवा के उपयोग संबंधी दिशानिर्देश: दवा लेने के सुरक्षित तरीके  आप जो दवाएं ले रहे हैं, उन के बारे…
  • Rehabilitation Is Essential For Regaining Independence
    Spinal cord injury, stroke and osteoporosis are common causes of disability. The Chandigarh Spinal Rehab centre offers holistic rehabilitation to empower patients and enable independent living. For what conditions or disabilities does the Centre have Rehabilitation facilities? Spinal Cord Injury Traumatic brain injury Stroke Multiple Sclerosis Cerebral Palsy Children with special needs Geriatric Rehabilitation Post Joint Replacement Therapy Spina Bfida Pain Management Other Neuro Conditions…
  • 2 elderly women at a kitchen table
    घर को बुजुर्गों के अनुकूल कैसे बनाएं
    रिहैब (पुनर्वास) विशेषज्ञा लक्ष्मी गोपालकृष्णन घर में छोटे बदलाव के कुछ ऐसे सुझाव देती हैं जिन से बुजुर्गों को अपने कार्यों में आसानी हो सकती है और उनके जीवन की गुणवत्ता में महत्वपूर्ण सुधार संभव है। मैं 15 साल से अधिक समय से रिहैब में काम कर रही हूँ और व्यक्तिगत रूप से 80 साल से अधिक उम्र के चार बुजुर्गों की देखभालकर्ता भी रही हूँ। उनके दैनिक जीवन की गतिविधियों को कैसे बदलें, इस पर सोचने की मुझे बार-बार आवश्यकता होती है। मेरी कोशिश यही रही है कि बुजुर्ग यथासंभव स्वतंत्र रहें और उनका आत्मसम्मान…
  • A family with three generations sitting around a dining table
    बुजुर्गों के लिए भोजन में संशोधन
    जब आपके प्रियजनों की उम्र बढ़ती है, तो उनके लिए सही आहार का प्रबंध करना अधिक ज़रूरी हो जाता है, क्योंकि अधिकाँश केस में अनुचित भोजन लेना अधिक तनाव और परेशानी का कारण बनता है। इस लेख में डॉ। भुवनेश्वरी अपने माता-पिता की प्राथमिक देखभालकर्ता होने के अनुभवों के आधार पर कुछ सरल सुझाव दे रही हैं। बुजुर्गों के आहार पर ध्यान देना बहुत जरूरी है क्योंकि आहार के पैटर्न को बदलने से कुछ ऐसी सामान्य समस्याओं में सुधार हो सकता है जो कई बुजुर्गों में पायी जाती हैं. हमें इस पहलू पर अपनी भारतीय सन्दर्भ (जैसे कि…
  • How To Handle Negative Emotions as a Caregiver
    Samiksha Sivan, integrates her experience at PDMDS to talk about some of the negative emotions felt by caregivers of persons with Parkinsons and the how they can cope with the negative emotions like anger, resentment, guilt and anxiety. Dealing with a chronic, progressive condition like Parkinson’s disease (PD) can take a significant toll on a person, be it a caregiver or a patient. Being able to cope with everyday tasks at home and work as well as the stresses of caregiving for a Person with…
  • No Way to Go…Mom!
    Divya Gaur from Delhi was devastated when she lost her mother to brain tumour and could not attend the last rites in Bhopal due to the stringent Covid lockdown. Here she pens down her life changing feelings. No matter how we prepare ourselves, losing a loved one is never easy. One is never ever prepared to let a parent go. When I lost my father I was away. I reached only 3 hours after he went. I could not say goodbye, not to him at least. Though it happens with many people who don’t live in the…
  • Risk of polypharmacy in the elderly
    Risks Of Polypharmacy In The Elderly
    Polypharmacy in the elderly is a growing concern and can even cause harm to the patient. Dr. Anita Kumar explains the risks associated with polypharmacy, the symptoms to watch out for and the way forward for patients and their caregivers.     Polypharmacy is an issue that requires addressing because people unknowingly follow polypharmacy and do not recognize the potential harm it may cause. In recent times, polypharmacy has emerged as a public health issue and a concern globally…
  • A couple walking on a road with trees in the background and overlay text Reclaim Healthy Ageing
    Let Us Reclaim Active Ageing
    Older adults often feel vulnerable and disempowered. They may feel that they are losing their independence . But does it really have to be like that? Can older persons reclaim the feeling of being in control? Here is a practical list of what to do and avoid. The Covid-19 pandemic has reduced everyone in their 60s and above to being termed ‘Vulnerable Elders’, with its associated feelings of fear and isolation from even friends and relatives. But it is now time to redefine Ageing and focus on…
What to do when you've reached your breaking point as a caregiver
I came upon this list of great advice from caregivers on what to do when you feel like you have reached your "breaking point" or a point of true exhaustion or frustration as a caregiver. What are some tips you would give others when they reach this…
Dutch students choose to live in nursing homes rent-free (as long as they keep the residents company)
Read the article here...http://www.thejournal.ie/help-the-aged-1814698-Dec2014/ Would something like this work in an Asian context ? I think its worth a few experiments for sure.      
Share your caregiving story!
I moved the Chennai 3.5 years ago to take care of my beloved grandma who developed breast cancer. Being a caregiver for her was a life changing experience for me. It showed me that even when we are caring for someone we love and even if we enjoy our…
What is your biggest caregiving challenge?
We all experience many joys and many challenges as caregivers. Sometimes talking about the tough aspects of caregiving is a good way to make sure we are not keeping our frustrations and diffficulties bottled up. The more we internalize the stresses…
What do you do to take a break from Caregiving?
One of the most important things that Caregivers need to do for themselves and their loved ones is to take breaks. It is so vital to take time to focus on oneself, recharge, and get some rest. If a Caregiver does not take breaks, it can lead to…
Home nursing options
How do you go about finding the right nurse for the patient or the elderly? What level of knowledge of English is important ? What are the top 3 things you look for ?    
Welcome to the Caregiver Community!
Hello fellow Family Caregivers! It is exciting to have an online forum where Caregivers from India and around the world can come together to share and learn from each other. This is a space where you can pose questions, share your story, and just…
Stores dedicated for senior citizens in India and Singapore
I came across http://www.oldisgoldstore.com/ recently. They have retail outlets in Chennai and ship to the southern states. Do you know of stores like these in other cities ?  We would like to add this information in our Resources centre  

Latest Communities

  • Cancer
    2600 member(s)
    This Community will address questions and discussions on all forms of Cancer. We will support each other - patients and…
    Login To Join
  • Diabetes
    21071 member(s)
    Pre-diabetes, Type 1, Type 2, Gestational, Complications, Diet and Nutrition, Yoga for Diabetes, Personal stories, News…
    Login To Join
  • Heart and Cardio-vascular
    Heart and Cardio-vascular
    22747 member(s)
    Hypertension, High Blood Pressure, High Cholesterol, Heart Failure, Heart Disease, Cardiac Arrest, Heart Attack,…
    Login To Join